Friday, January 20, 2017

Fultz family of Sidney visits UD Arena to encourage organ donation

WHIO

Kevin (left) and Pam Fultz, at a special presentation for Life Connection of Ohio during the UD men's basketball game Thursday night, Jan. 19, 2017. (David Jablonski/Staff)
Pam and Kevin Fultz were featured at center court at UD Arena on Thursday night in their continuing efforts to encourage people throughout the Miami Valley to sign up to become organ, eye and tissue donors.

Michael Keith Fultz -- her husband and his father -- died last April from injuries suffered when a motorist struck him while he was riding his bike. He was 54.

The family followed through on the former police officer's wish to donate his organs. He had indicated that election on his driver's license, said Pam, noting that she has made the same choice on her license.

Thursday night, at the Flyers men's basketball game, the mother and son from Sidney were part of the special on-court presentation coordinated by Life Connection of Ohio.

Pam Fultz, who volunteers for the organization, said her family wants to bring special awareness to organ donation, noting that several people were helped through her husband: a woman received his kidneys, a man received his liver, several people were helped with their sight and still others received tissue.
In August, Kevin threw out the first pitch at a Dayton Dragons game to honor his father as part of donor awareness night at the baseball game. Continue reading


Mother of 3, wife of deployed soldier: dual transplant

KXXV |  Brooke Badnarz


TEMPLE, TX (KXXV) - 2016 was a record year for Scott & White Medical Center as they performed 96 total transplants.

The transplants included kidneys, pancreas and hearts.

Talitha Juristo was one patient who received two transplants -- a kidney and pancreas.

"I looked at my oldest who's 13, and I said 'Ty, I just got the best birthday present ever,' and he's like 'You got it?' And so he literally jumped up out of the bed and ran out the door and told my mom before I could because I was still sitting on the bedroom floor just in shock," Juristo said.

After two months of dialysis, Juristo found out she would be receiving a new kidney and pancreas in the final hours of her 36th birthday. Continue reading

Thursday, January 19, 2017

BASEBALL HALL OF FAMER ROD CAREW ‘DOING GREAT’ WITH NEW HEART, KIDNEY

BONNER COUNTY DAILY BEE | American Heart Association


LOS ANGELES – In baseball terms, Hall of Famer Rod Carew has rounded third and is heading for home in his recovery from a heart and kidney transplant.

Carew said his doctors are thrilled with his progress. He recently passed the 1-month milestone without any signs of rejection and is regaining the strength sapped by the grueling operation. He's spent the last week in a rehabilitation center and expects to be released as soon as this weekend.

“I’m doing great,” Carew told American Heart Association News in his first interview since the Dec. 16 operation. “I just want to get the news out to people that they need to get their hearts checked. So many people hear that but don’t pay attention. I want them to really listen to what I’m saying.”

Carew emphasized his gratitude to the family of his organ donor. Both organs came from a young man whose selfless decision helped save several lives, Carew said, who is eager to personally thank the family.

“He’s my blood brother,” Carew said. “I appreciate everything that he and his family have done for me and others.” Continue reading


11-Year-Old Boy Becomes One of the Youngest to Get Artificial Heart

WJB RADIO


WLS(CHICAGO) -- An Illinois boy has become one of the youngest people to receive an artificial heart after recently getting the life-saving device implanted at age 11, doctors said.

Jaheim Whigham is the youngest person to be given a new kind of artificial heart originally designed for women, according to the Ann and Robert H. Lurie Children's Hospital in Chicago, Illinois.

Jaheim underwent a heart transplant at age 7 after being diagnosed with hypoplastic left heart syndrome, a birth defect that affects blood flow through the heart, the hospital said.

During a routine check-up in October, doctors found that his transplanted heart was failing after his immune system started to attack the donated organ.

“We had no other options but to implant Jaheim with the artificial heart,” Dr. Carl Backer, division head of cardiovascular surgery at Lurie Children’s Hospital and professor of surgery at Northwestern University Feinberg School of Medicine, said Tuesday in a statement. Continue reading


WATCH: This crazy heart-hugging robot could save the lives of transplant patients

SCIENCE ALERT


A new type of soft robotic sleeve has been invented to keep a weak or damaged heart beating, and it could save the lives of transplant patients who often have to wait months - or sometimes more than year - to receive a new organ.

The customisable silicon device wraps around the damaged organ, and is able to automatically twist and compress in sync with the beats, and recent animal trials have seen it return their heart function to near-perfect levels after total failure.

"This research is really significant at the moment because more and more people are ending up with heart failure," said one of the team behind the invention, Ellen Roche from the National University of Ireland Galway.

"Soft robotic devices are ideally suited to interact with soft tissue, and give assistance that can help with augmentation of function, and potentially even healing and recovery." Continue reading



FLORIDA HOSPITAL HEART TRANSPLANT PROGRAM NOW BUSIEST IN SOUTHEAST U.S.

WMFE | Abe Aboraya

The Bartch House at Florida Hospital offers transplant patients and their families a low-cost place to stay. Florida Hospital Medical Center did the most heart transplants in 2016 in the southeastern United States.
Florida Hospital Medical Center did the most heart transplants in 2016 in the southeastern United States.

Titusville resident Kevin Grady became the 100th Central Floridian to get a new heart beat. It was a record year for Florida Hospital Medical Center.

Grady got a heart transplant last Christmas after waiting for a year.

“Dr. (Nirav) Raval called, actually I was on the golf course,” Grady said. “And he asked if I had opened all my presents and I said yes. He said well, I think we’ve got one here for you. He said we got a heart.”

Florida Hospital did 52 transplants in 2016. That’s more than any other heart transplant program in the southeast region, according to the Organ Procurement and Transplantation Network. That means Florida Hospital Medical Center did more heart transplants than any center in Alabama, Arkansas, Florida, Georgia, Louisiana and Mississippi.

Researchers have found that high risk heart transplant patients do better at high volume transplant centers doing at least 15 transplants annually. Florida Hospital has quickly ramped up its heart transplant program to a high volume program. It did six heart transplants in its first year in 2012, and did 52 in 2016. Continue reading


Living Kidney Donor Network January Newsletter

Living Kidney Donor Network

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The force is with woman who gets life-saving lung transplant

UNIVERSITY OF CALIFORNIA | Amy Albin

Credit: Amanda Griswold/UCLA
Following a lung transplant, Kathlyn Chassey makes a triumphant exit from the Reagan UCLA Medical Center, accompanied by Darth Vader and storm troopers from "Star Wars."
A 24-year-old cystic fibrosis patient is starting the new year with new hope thanks to help from the U.S. Air Force, the actor who played Chewbacca in the “Star Wars” movies and a UCLA surgeon who said yes to a high-risk case.

Kathlyn Chassey of San Antonio, Texas, was born with cystic fibrosis, a genetic disease characterized by the build-up in the lungs of thick, sticky mucus that traps infection-causing bacteria. While there is no cure, lung transplantation can help alleviate many of the symptoms.

Chassey’s father, Chris, is a chief master sergeant in the United States Air Force. Last November, when her breathing problems worsened, she was hospitalized at the Brooke Army Medical Center in San Antonio. By the end of the month, her condition became critical, and she was placed on life support to take over her breathing function.

The only chance of saving her life, doctors warned, was a lung transplant.

An urgent search began to find a transplant center that would take her case. But one center after another turned her down, deeming the surgery too risky. Continue reading



UNIVERSITY IOWA CLUB PROMOTES GIFT OF LIFE

THE DAILY IOWAN | Eliana Novitch


A new club raises awareness about organ donations in hopes of encouraging people to become donors.

At the age of 9, University of Iowa student Emmalyn Brown became the recipient of a liver transplant after her body’s immune system attacked her liver. Brown had a disease known as autoimmune hepatitis.

“They don’t really know why it all happened. My immune system just went haywire,” Brown said. “I was a perfectly healthy kid until I turned yellow one day and had jaundice. I received my transplant all of two weeks later.”

Brown has been involved with advocating for organ donation with her mother and friends that have also received transplants ever since she received her liver.

“The donation concept can be really hard to grasp; it was especially hard when I was younger. I remember my dad trying to explain it all to me after I woke up from surgery,” Brown said. “They tried to explain that someone else had made a sacrifice and given this gift to me. It was a really hard thing to grasp and still is to some extent.” Continue reading


Lake Dallas ISD partners with donate life

LAKE CITIES SUN | Heather M Goodwin


Lake Dallas ISD middle school and high school student council organizations have become “Unite 4 Life Partners” with Donate Life Texas.

By joining the Donate Life Texas donor registry, a donor can give hope to thousands of people awaiting the transplant they need to survive. Registering to be an organ, eye and tissue donor legally records your decision to be a donor. One gift of life can save as many as eight lives through organ donation, restore sight to others with cornea donations and touch countless others through tissue donation. Continue reading


Wednesday, January 18, 2017

DONOR PROGRAM HELPING TURN TRAGEDY INTO 'GIFT OF LIFE'

WPVI PHILADELPHIA



PHILADELPHIA (WPVI) -- Penn Presbyterian Medical Center is one of several trauma centers in Philadelphia that see a lot of shooting victims. Getting those patients there as quickly as possible is crucial.

But even if a life cannot be saved, others could get a second chance at life, thanks to the most successful donor program in the country.

Just after 8:30 p.m. Tuesday, police rushed to the 5600 block of Ridgewood to find a 25-year-old man shot in the chest. They quickly loaded him into their vehicle and rushed him to the emergency.

Earlier, about a mile away, police found a 37-year-old shot in the face, head and neck. Again, under an effort begun under former Commissioner Charles Ramsey called 'Scoop and Run', officers do not wait for an ambulance and instead take him to Penn Presbyterian themselves.

"Police officers getting to these victims quickly and taking them to a trauma center that has a lot of experience," said Philadelphia Police Chief Inspector Scott Small. Continue reading



Davis’ Work on Rose Parade Floats

ALAMOGORDO DAILY NEWS | Judy Mancillas

Esther Mancillas Davis works on the Donate Life Float for the 2017 Rose Parade in Pasadena, California.
CLOUDCROFT – While most of us were recovering from the Christmas holiday and gearing up for the New Year, Esther Mancillas Davis and her husband Richard were making their way to Pasadena, California.

They were not only going to see the Rose Parade, but they were going there to actually work on the 4 floats that Paradiso Parade Floats designed. Esther, an AIFD and NM Master Florist, was one of 11 florist who was hired to go and work on the floats. There are also hundreds of volunteers that work on the floats. This year, Paradiso Parade Floats built floats for Donate Life, Ragu, UPS and BDK. This year marked the parades 128th year and included 96 entries, 42 of which were floats. There are 24 float awards and each of the 4 floats won an award. The theme of this year’s parade was “Echoes of Success” and the Donate Life Float was called “Teammates in Life” for which it won “The Theme Trophy” as is was the best presentation of the parade theme..

It was especially meaningful that Esther was able to work on the Donate Life Float. The Donate Life float featured a Catamaran as 24 transplant recipients paddled through a Hawaiian paradise. The sails of the craft included floragraphs of 60 donors to honor them and their decision to give life to others through organ donation. Living donors and recipients also walk along side of the float. Organ donation is a cause close to Esther’s heart, as her brother, Joe Mancillas, waited 4 years for a kidney transplant. Esther was able to dedicate a white rose in Joe’s memory and place it on the float. Esther volunteers her time and talents with The Ultimate Gift of Life Foundation, a Texas-New Mexico non-profit whose mission is to raise awareness about organ donation and to increase the number of registered organ donors. She chairs The Joe Mancillas Trees of Hope Festival which is an annual fund raiser for The Ultimate Gift of Life named in memory of her brother Joe. Continue reading



Flu, norovirus, other ills making the rounds in eastern Nebraska

NEBRASKA PUBLIC RADIO | Karla James



There are plenty of Nebraskans suffering from winter illness.

Dr. Chelsea Navarrette is an internist at the University of Nebraska Medical Center – Nebraska Medicine and says in the last week alone they have treated many more patients for influenza. Symptoms include a dry, hacking cough, fever, chills, sore throat, severe muscle or body aches and fatigue. She says it is important to seek treatment within the first 48 hours if you suspect influenza.

Dr. Navarrette says, “Typically I like to see patients within the first 48 hours of influenza symptoms and the reason for that is there are anti-viral medications that can help the duration and the severity. If you are older than age 65, or pregnant, diabetes, cancer, heart disease, you are more at risk of getting severely ill and I would want to see you in clinic.”

Also making the rounds is para-influenza that causes a mild respiratory illness similar to a cold. There is a bigger concern if the person has had a stem cell transplant or an organ donation. Those individuals can get very ill if exposed. Continue reading


How Did Spain Get So Many Organ Donors?

VOCATIV | Alexandra Ossola
Can the U.S. learn something from the world's leader in transplants?

If you need an organ in the U.S., there’s a much better chance you’ll get one than if you lived somewhere else. In 2016 there were more than 33,000 organ transplants; a 2015 survey from the World Health Organization estimated that the U.S. ranked third in the world, though there are still 119,000 people waiting for a transplant.

The country that ranks number one, however, is Spain, with 101 transplants per million people (compared to 93 in the U.S.). It’s taken decades of concerted, continued effort for Spain to become the world’s leader. As U.S. health officials strive to increase the number of transplants that happen within its borders, some are turning to Spain as a model.

The Spanish government has been working on increasing its transplant numbers since 1989, when it created an agency called the Organizacion Nacional de Trasplantes (ONT) to coordinate donations and transplant activities. In the decades since, it has established an opt-out program in which it’s assumed people will be donating their organs — families have to explicitly tell health care staff if they want don’t want to participate.

Another major change: who donates organs. They can come not only from patients who are braindead, which is standard across the world, but they can come from “non-traditional” donors, such as patients who have died of drug overdose, certain types of cardiac death, and older patients, too. Because of these measures, Spain doubled the number organs donated from deceased donors within a decade. The agency’s successes and continued challenges are detailed in a review published last Monday in the American Journal of Transplantation. Continue reading


Tuesday, January 17, 2017

BC organ donations up last year but more donors needed

NEWS 1100 | Kayla Butler


VANCOUVER (NEWS 1130) – More and more people are registering as organ donors in the province, something BC Transplant is particularly proud of.

But the organization also says there’s no such thing as too many donors.

Over 400 people received a life-saving transplant in 2016; almost 100 of these saviors were dead registered organ donors. This is a record high in BC.

Living kidney donations were down to 95 last year, from 113 the year before.
  • Several other transplant-related records were also set in 2016:
  • 40 lung transplants (39 double-lung, one single-lung), four more than in 2015
  • 8 heart transplants, nine more than in 2015
  • 83,505 people registered their organ donation decision in 2016, and the 1 millionth British Columbian registered their decision in the Organ Donor Registry
The donation rate is about 20 donors per million people but Doctor Sean Keenan with BC Transplant says there’s a very real need for more donors. Continue reading


3RD ANNUAL ORGAN DONATION AWARENESS TOURNAMENT

NATIONAL KIDNEY FOUNDATION


Right now there are over 118,000 people on the waiting list for an organ transplant—over 98,000 of which are waiting for a new kidney. Every ten minutes another person is added to the transplant waiting list, and 22 people die a day waiting for a new organ.

On Sunday, March 5th, 2017, join the National Kidney Foundation Serving the National Capital Area (NKF/NCA) for a charity basketball tournament to raise awareness for organ donation at the Verizon Center! Participants will enjoy reserved seating for when the Wizards take on the Magic at 5pm following the tournament, and the opportunity to participate in the Wizards fan tunnel and high-five their favorite player. NKF/NCA will be on the concourse during the game signing up organ donors in honor of Donate Life Month.

Prior the Wizards game, NKF/NCA and our sponsors will take the court for a 16-team, single-elimination tournament. Teams will compete in six-minute, half-court scrimmages in order to advance to the next round, but only one will win the championship! Continue reading


Arizona organ donors saved more than 600 lives in 2016

KPNX 12 NEWS


Arizona set a new record in 2016 for lives saved by organ donation, according to a release from the Donor Network of Arizona.

In total, the network said, 614 people were saved by 225 donors who had lost their own lives in 2016.

Last year, nearly 300,000 Arizonans registered to donate organs, moving the total number of those registered in the state to almost 3 million, according to DNA.

“Saving these many lives and healing countless more would have not been possible without the dedication of donation champions who work tirelessly to save lives, including hospital partners and the MVD,” said Sara Pace Jones, vice president of Development and Referral Services at DNA, in a statement. Continue reading


OneLegacy Announces Record-Setting Year in Organ Donation

BUSINESS WIRE | OneLegacy

LOS ANGELES--(BUSINESS WIRE)--OneLegacy, the nonprofit organ procurement organization dedicated to saving lives through organ, eye and tissue donation in the greater Los Angeles area, announced today a new national record of organs recovered and transplanted in 2016.

According to Chief Executive Officer Thomas Mone, the year just concluded saw a 9.2 percent increase in transplants over 2015 to a national record of 1,463 recovered from a OneLegacy all-time high of 481 organ donors (a 4.6 percent increase). The year also saw OneLegacy set a national record of 2,732 tissue donors and 1,535 cornea donors, increases over 2015 of 6.1 percent and 4.9 percent, respectively.

OneLegacy donation professionals collaborate with colleagues at more than 200 hospitals, 11 transplant centers, seven sheriff coroner departments, and hundreds of funeral homes while educating local communities to register and say “yes” to organ, eye and tissue donation. In addition to this outreach, OneLegacy and its transplant colleagues “continue to pioneer clinical innovations to successfully transplant more organs from these donors as part of our efforts to end deaths on the waitlists and give waiting recipients a second chance at life,” says Mone.

As a result of these and other year-round efforts, over the past 15 years OneLegacy has increased the number of organ donors by 75 percent, from fewer than 300 to nearly 500 donors per year. In addition, the actual life-saving donation rate of those who are medically eligible to donate (those who say “YES”) at the time of their deaths is now at 76 percent and steadily increasing. Mone expects this “remarkable sign of the community’s generosity” and this growth to continue, saving more lives in the process. Continue reading


Kidney donation forges rare bond for Beaumont policeman

12 NEWS NOW | William Blanchette, KBMT


In 2014, Danny Valdez was diagnosed with a rare kidney disease that threatened his life as much as any gun wielding suspect would. The 24 year veteran officer was forced to self administer dialysis treatments five days a week and Valdez needed a kidney transplant.

Former Beaumont office, Doug Kibodeaux, offered to donate his kidney to Valdez, but the match wasn't preferable.

"Without Doug, I would still be on the transplant list, so Doug facilitated me getting a transplant," said Danny Valdez, a Beaumont police officer.The wheels were moving though and then Valdez received a phone call. Continue reading



A young father with ‘80-year-old’ lungs has only one wish

MIAMI HERALD | Daniel Chang

Andres Perez with one of his 10-month-old twins. Perez has cystic fibrosis, which requires him to take twice daily breathing treatments and lots of antibiotics. Jose A. Iglesias
For as long as he can remember, Andres Perez has scheduled his life around the twice-daily breathing treatments that keep him alive.

Every morning and every night, Perez slips into a pressurized vest that squeezes and shakes free the mucus that clogs his lungs. Then he inhales a vaporized mixture of antibiotics and other medications that help to keep his airways clear.

Each session can take up to two hours, Perez said, and with each improving breath he tries to imagine a future where his movements are not limited by the inherited, life-threatening disease he was diagnosed with in early childhood, cystic fibrosis.

“My lungs are like an 80-year-old person’s lungs,” says Perez, who turns 30 in February.

Because cystic fibrosis affects the cells that produce mucus, sweat and gastric juices — making them thick and sticky — Perez also takes enzymes to help him digest his food. And he injects insulin to control his cystic fibrosis-related diabetes.

“It kind of puts a damper on your outlook because you fight so hard and you know there’s not much you can do,” Perez says of his progressive disease. “It sucks.” Continue reading

UPMC celebrates its 2,000th lung transplant with one patient still well 28 years later

PITTSBURGH POST-GAZETTE | David Templeton

Darrell Sapp/Post-Gazette    Paul McGuinness of Avalon talks about his double lung transplant at Presbyterian Hospital 28 years ago.
Paul McGuinness of Avalon talks about his double lung transplant at Presbyterian Hospital 28 years ago.

Knowing that fateful day someday would arrive, Paul McGuinness sat with his family as his doctor explained the life-and-death decision he faced. Neither option held much hope.

Continue with available cystic fibrosis treatments and he’d likely be dead within a year, with round-the-clock struggles to breathe. Or get an experimental double-lung transplant at UPMC with a 10 percent chance of living five years.

“The choice was to die or get a lung transplant, and, of course, I wanted to live longer,” said Mr. McGuinness, who chose the transplant. “If I didn’t make it, I’d help advance science.”

His double-lung transplant occurred Oct. 19, 1988 — 28 years ago. He not only beat the odds but also obliterated them and now is considered one of the longest surviving double-lung transplant patients with cystic fibrosis in the United States, if not the longest. Continue reading


'Epic little free spirit:' 7-year-old Mac stays positive :

WRAL | Hannah Webster


Seven-year-old Mac Hogstrom doesn’t know a stranger, according to his mother, Belinda Hogstrom.

“He just has such a big personality,” she said. “Every person he meets is his next best friend.”

“He’s such a joy.”

His father, Matt Hogstrom couldn’t agree more.

“Mac is like this epic little free spirit,” he said. “He’s very positive. He’s got a great sense of humor.”

But Mac’s seven years on earth have been far from easy — 15 surgeries, 125 appointments with doctors and specialists, 175 needles and more than 400 days and nights in the hospital.

Mac was born with a failing liver, and originally he could not be placed on the donor transplant list. Doctors feared with a limited number of organ donations, giving him the organ with little chance of a positive outcome would be wasting the organ. Continue reading



Monday, January 16, 2017

Tragedy becomes hope through a gift of life

WOOD TV | Barton Deiter


HUDSONVILLE, Mich. (WOOD) — A wife’s worst nightmare came true for a young Hudsonville mother when she learned her husband was killed in a hit-and-run crash as he walked along a busy street in Georgetown Township.

But despite the grief of a family that includes two preschool daughters left without a father, there is a glimmer of hope thanks to the gift of organ donation.

Emily Friar met the love of her life, Korey Taphouse, in 2007 and a few years later they were married and raising a young family in a new house in Jenison.

“He wasn’t afraid to roll around on the ground and make goofy voices and dance and it was great for them. They just had the world’s silliest daddy. Which was wonderful,” said Taphouse.

But Korey was killed in a crash as he went for a walk around 5:50 p.m. Sunday, Nov. 27 beside Port Sheldon Street, near 48th Avenue near his home. Continue reading


Merced 1-year-old lives ‘hour to hour’ awaiting a kidney transplant

MERCED SUN-STAR | Monica Velez


When Dezi Padilla was 33 weeks pregnant, she had an emergency cesarean section, the umbilical cord was wrapped around her baby’s neck, and soon after he was pronounced dead.

Doctors resuscitated baby Jayce Valencia and, about 30 minutes later, his mother says, his heart started beating on its own again. But his kidneys failed and he’s been on the list for a kidney transplant since his birth.

“It felt like a nightmare,” the 34-year-old Padilla said.

Donor Network West, a federally designated organ-procurement organization covering Northern California and Nevada, reported 2,287 kidney transplants done in California last year, with 97 of those performed on people under age 18.

“The kidney is an extremely important organ in the body,” said Waldo Concepcion, the chief of pediatric kidney transplantation at Lucile Packard Children’s Hospital Stanford. “They help the body develop all the functions for growth of the bones.”

Without functioning kidneys, there is no way for the body to keep levels of electrolytes or make hormones that create red blood cells, contribute to strong bones and regulate blood pressure.

“When you don’t have a kidney working, your blood has a lot of toxins,” Concepcion said. “The kidney has a little involvement in other organs. When the kidney’s not working well, a lot of other things are happening.” Continue reading



Community reaches out to help Old Lyme man who needs liver transplant

THE DAY | Kimberly Drelich

Artist Rob Wallace of Arch One Design in Old Saybrook demonstrates his glass blowing technique as he makes glass icicles at the Fourth Annual Fire & Ice Festival at Saybrook Point Inn, Marina & Spa Saturday, Jan. 14, 2017. Wallace, 52, was diagnosed in late 2015 with liver cancer. He and his family, with the community's support, are doing everything they can do to find a living liver donor for him. (Tim Cook/The Day)

Old Lyme — Rob Wallace's Old Saybrook glassworks studio is full of artistic pieces from his journey over the past year.

Pendants with swirls of bright blue, orange and red are on display, along with glass candle holders affixed to driftwood found along the shore and other glass artwork and jewelry.

His signature jewelry piece, a stack of glass stones in a rainbow of colors depicting a cairn, represents his own path since being diagnosed with liver cancer in late 2015.

"It's your waypoint," he said in a recent interview at the studio. "Before there were roads and directions, people would use those as landmarks to find their way home. So I thought, all right, I have to find my way back. That's going to be my signature piece of jewelry."

Rob, 52, who lives in Old Lyme with his wife, Lori, and three children, has been focusing since his diagnosis on creating handmade jewelry pieces and artwork, which he finds therapeutic. He started offering classes at his studio, Arch One Design, to share the relaxing benefits of making glass artwork while listening to soothing music.

Rob's doctors have told him that he needs a liver transplant, as soon as he can find one, he said. Rob is listed on the United Network for Organ Sharing list, but it could take up to two years to receive a liver offer, said his wife, Lori. Waiting carries the risk of the cancer growing and spreading. Continue reading

The woman donating organs to strangers

BBC NEWS | Adam Eley and Jo Adnitt


Tracey Jolliffe has already donated a kidney, 16 eggs and 80 pints of blood, and intends to leave her brain to science. She is now hoping to give away part of her liver to a person she may never meet.

"If I had another spare kidney, I'd do it again," Tracey tells the BBC's Victoria Derbyshire programme.

She is what is known as an "altruistic donor" - someone willing to give away an organ to potentially help save the life of a complete stranger.

A microbiologist in the NHS, and the daughter of two nurses, she has spent her life learning about the importance of healthcare from a professional standpoint.

But she has also been keen to make a difference on a personal level. Continue reading