
Organ Donation Advocates Share Stories, Work to Raise Awareness
By Robin Hindery
UCSF Heart and Vascular Center director Karen Rago, center, enjoys some fun in the sun with her sisters Barbara Lazenby, left, and Kay Roberts in April 2009, nearly 18 months after Roberts’s double lung transplant.
Over the past 30 years, Karen Rago, RN, has interacted with thousands of transplant patients and has watched organ transplantation evolve from a risky, often short-term solution into a procedure that can offer decades of greatly improved health.
But despite the huge role transplants have played in her professional life, they stayed far removed from her personal life — until recently.
“For so long, the thought that one of my family members would need a transplant never crossed my mind,” said Rago, executive director of UCSF service lines and the UCSF Heart and Vascular Center.
All of that changed a few years ago when her younger sister Kay Roberts, a longtime smoker, began having severe lung problems after a bout with pneumonia. Roberts was soon cycling in and out of the hospital and had to leave her job as a pre-school teacher in Atlanta.
“Eventually, her lung function was down to about 25 percent,” Rago said. “It was so hard to watch that happen to her. I tried to talk to her about being considered for a lung transplant, but I didn’t want to push too hard.”
After quitting smoking and discussing her options further with Kerry Kumar, RN, a transplant nurse-coordinator at UCSF, Roberts agreed to be evaluated for a lung transplant at Atlanta’s Emory Transplant Center. She was found to be a suitable candidate and after a mere eight days on the transplant list, she underwent a successful double lung transplant.
It has been two years since the surgery, and Roberts is now back to work and back to taking part in an annual “girls’ getaway” trip with Rago, their other sister Barbara and their mother.
“Her immune system will always be somewhat compromised, but she’s doing really well,” Rago said.
The experience has reaffirmed Rago’s support for organ donation, and she has encouraged all of her extended family members and their spouses to sign up as donors, she said.
Campaign Sets Ambitious Goal
Rago is also a driving force behind an online effort to enlist the entire UCSF community as organ donors. Today, (Sept. 14), the student group Coalition of Organ Donation Exponents (CODE), is launching a 10-week “eCampaign” to direct students, faculty and staff to the website of Donate Life California, a nonprofit organ and tissue donor registry. The campaign will run through Friday, Nov. 20.
There are currently 20,000 patients awaiting transplants in California, including 775 in San Francisco, according to Donate Life California. Every day, 18 patients die waiting for new organs.
A similar effort by CODE in April yielded 117 signups from UCSF — a higher number than all of the other regional organizations participating in the campaign, according to CODE’s leader, second-year medical student Patricia Zheng.
Zheng said she has received tremendous support for CODE’s efforts from Rago, as well as other members of the UCSF faculty and staff.
“I’ve also been amazed by the amount of dedication shown by UCSF transplant patients and their families, many of whom have been willing to share their stories to help increase awareness,” she said.
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