Amelia was born with Wolf-Hirschhorn syndrome, a genetic condition that affects about one in 50,000 children. The syndrome is characterized by a distinct facial appearance - including a high forehead and broad nose - delayed growth and development, intellectual disability, and seizures.
During a regular appointment with Amelia's nephrologists, Chrissy Rivera was referred to a transplant team to discuss the kidney transplant Amelia would likely need within the year to survive, Rivera wrote on a blog on a Wolf-Hirschhorn support website.
That's when Rivera reportedly met with a doctor and a social worker who told her that Amelia should not have the transplant done because she is "mentally retarded" and would not be able to get on a transplant waiting list. When Rivera said someone in her large family would donate the kidney - thus bypassing the transplant list - the doctor allegedly said Amelia still would not be eligible because of her mental delays and quality of life.
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