The boy needs a new set of lungs to save him from cystic fibrosis.
The Ashton family have uprooted their lives and temporarily moved from Queensland to Melbourne so he can undergo a lifesaving transplant through The Alfred's Paediatric Lung Transplant Service.
"We've had no other choice, it's last chance stuff for Coen. If he doesn't receive a set of lungs, we don't know how long he will have," his mother Dawn Ashton said.
The 14-year-old, who won the Pride of Australia's People's Choice medal last year for boosting organ donor rates by 1000 by riding 2000km on a jet ski, has found his sea legs.
"It's a new adventure," he said.
The family of four are living on their catamaran at the Docklands while they work out where they will stay.
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