Peaks of Inspiration | Petra
When my youngest son was born there was this illusion that he too would be healthy just like my other children. No one ever suspects their child to be born sick (unless you can get confirmation prior to birth). It was soon after his birth and bringing him home that “things just didn’t feel right”. I wanted to believe the doctors that my son just wasn’t getting enough fluid – but the reality was vastly different.
When we learned that my son had a rare genetic disorder at the age of 4 – I almost felt relieve. Crazy I know but it was in that moment I knew I was not going insane or imagining things – my gut feelings have been right all along. A year after his diagnosis however, we were faced with a huge decision that was a matter of life and death.
In order to survive and have any kind of chance at life, my son needed a liver transplant or he would eventually succumb to his genetic disorder. It was only a matter of 3 weeks from the time he was listed until we received the call “we have a potential match”. But it wasn’t enough – 24 hours after the first transplant – he needed a second liver.