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Wednesday, May 9, 2012

SickKids: Parents’ chat about organ donation suddenly becomes intensely personal

The Star
HALIFAX—Brooke Godsoe and her husband Eddie Sheppard had a conversation last year about organ donation, the kind of routine talk parents everywhere have about what's best for their children.

Godsoe's 4-year-old son Taten had just received his provincial medicare card, which required his mother to indicate whether the boy would donate his organs if, for some reason, he died.

At the time, Godsoe was also pregnant with her second son. “Zander was in my belly,” she says, “and I was in an emotional state. I was overwhelmed with the question of whether I should donate my child's organs.

“I said, ‘I'm a donor, so why shouldn't my son be?' But Eddie wasn't an organ donor and he said, ‘No way, you're not going to donate Taten's organs.'

“And I said, ‘What if we were a family in need? Imagine being that family at the hospital, waiting for an organ donor? Could you ever imagine being that family?' ”

A year later, those words became a stark and sudden reality in the couple's life.

Six months after Zander was born — a seemingly healthy, smiling, vivacious baby — he was diagnosed with a rare genetic disorder that required him to have a double transplant, a new kidney and liver, in order to survive.

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