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Friday, June 29, 2012

SISTERS TO SHARE THEIR BATTLE WITH CYSTIC FIBROSIS AT JANM

Rafu Shinpo
Twins Anabel Stenzel and Isabel Stenzel Byrnes will discuss their lives and their documentary


Photo: Anabel Stenzel, left, and Isabel Stenzel Byrnes celebrate their transplanted lungs and honor their donors with activities such as playing bagpipes, competing in swimming races or simply blowing a few soap bubbles. (Photos courtesy Anabel Stenzel)

Isabel Stenzel Byrnes struggled with the conversation on the phone on Tuesday night, doing her best to hear over the drone of her bagpipe group as they prepared for a rehearsal.

“We’re going to be in a Fourth of July parade,” she shouted while speaking with the Rafu. “I’m not sure if you can hear me, but we’re really excited.”

Stenzel Byrnes and her twin sister, Anabel Stenzel, are perpetually grateful to fill their lungs with air and let it out, to make music on the pipes, compete in swimming races or simply to blow a few soap bubbles. They feel fortunate because their lungs were donated.

The sisters, whose mother is Japanese, will be on hand to answer questions after a screening of their documentary “The Power of Two,” which chronicles their lives and how they struggled to overcome cystic fibrosis.

This special public program will begin at 1 p.m. on Saturday, in the Tateuchi Democracy Forum of the Japanese American National Museum, located at 369 E. First St. in Little Tokyo. The film will be presented with Japanese subtitles.

“We hope the message of this film, and of what we’re working for, is to cherish health,” Anabel Stenzel told the Rafu Wednesday. “It’s not just those involved with organ donation and transplants, but it’s the power of a community that helps people overcome all kinds of challenges.”

Read more - see you there
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