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Wednesday, August 15, 2012

Autism Transplant Denial Sparks Debate

ABC News | Sydney Lupkin

An autistic man in Pennsylvania was denied a heart transplant by the Hospital. (Getty Images)

It was hard enough for Karen Corby to hear that her autistic son would need a heart transplant to survive, but it was even harder to take the news that doctors wouldn't give him one.

"I was numb at first," Corby, of Pottsville, Pa., told ABCNews.com, remembering the phone call from Paul's cardiologist when she found out he wouldn't be placed on the transplant list. "Before she hung up, she told me to have a nice day."

Her son Paul, 23, has a left ventricle that didn't close after he was born, so his heart doesn't pump the right amount of blood. The Corbys found out in 2008, and were told it was time for a transplant in 2011.

The cardiologist at Penn Medicine told Corby that Paul was denied "given his psychiatric issues, autism, the complexity of the process, multiple procedures and the unknown and unpredictable effect of steroids on behavior," according to the letter Corby released.

Paul's experience raises questions about how autism and other brain disorders should be factored into transplant decisions. 

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