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Showing posts from May, 2012

Senate Passes Bill to Encourage Online Organ Donation

News LI


Sponsored by Senator Kemp Hannon

(Long Island, NY) The New York State Senate today gave final legislative passage to legislation (S6972), sponsored by Senator Kemp Hannon (R-C-I, Garden City), Chairman of the Senate Health Committee, that would make it easier for New Yorkers to register online to become an organ donor.

“I continually stress the importance of becoming a donor because donating an organ is saving a life,” Senator Hannon said. “This bill would make the process of registering for organ donation online more convenient by allowing donors to receive electronic confirmation of their registration and amend or revoke their registration online.”

“When it comes to organ donation, the need far exceeds the supply,” Senate Majority Leader Dean G. Skelos said. “More than 1,500 people in our state receive donated hearts, livers and kidneys each year, but there are 10,000 New Yorkers on waiting lists. This bill would make registering for donation more convenient for potential dono…

Spare Parts’ and pumping hearts

Williston Observer | Luke Baynes


‘Spare Parts’ relay team members (left to right): Trish Thompson, Dawn Bissonette, Chris Chiarello, Dr. Antonio Di Carlo and Bella Carter. Not shown is Williston resident Michelle Pierce, who filled in for the injured Chiarello and ran anchor for the team at the 24th annual KeyBank Vermont City Marathon & Relay on May 27. (Courtesy photo)

It wasn’t just the neon green Donate Life Vermont T-shirts that made “Spare Parts” unique among the 1,443 relay teams that participated in the 24th annual KeyBank Vermont City Marathon & Relay on Sunday.

It was also what the shirts represented.

The five members of the Spare Parts relay team and their injured captain have all had their lives shaped by organ donation.

Michelle Pierce is a living kidney donor.

Trish Thompson is a liver recipient.

Bella Carter, a cross-country runner at Enosburg Falls High School, is the niece of a woman whose heart, liver, kidneys and corneas were donated after she died in a car acciden…

Guilty decision upheld for doctor who received kidney illegally

Mainichi Shinbun

TOKYO (Kyodo) -- The Tokyo High Court on Thursday upheld a lower court decision that sentenced a doctor to three years in prison for paying millions of yen to illegally receive a kidney in a transplant operation.

The three-judge high court panel turned down an appeal from the doctor, Toshinobu Horiuchi, 56, and from his former wife Noriko Usui, 49, who was sentenced to two and half years for conspiring with the doctor.

Presiding Judge Shoji Ogawa said the two defendants' acts damaged public trust in the fairness of organ transplant, noting that Horiuchi spent a huge amount of money to receive a kidney and Usui played a key role in mediating the transplant through underworld contacts.

In conspiracy with Usui, Horiuchi, who had suffered kidney failure, paid a total of 10 million yen between 2009 and 2010 to mediators who introduced a kidney donor to him, court findings show.

But after the plan hit a snag, with the mediators seeking further payment, the defendants sought …

Heart transplant recipient sets Half Iron Man as next physical test

The Argonaut | Vince Echavaria
Kyle Garlett is no longer held back by the fear of taking his body to physical extremes.

Early on as a heart transplant recipient, Garlett was hesitant to push himself beyond a certain limit when not knowing how much his body could withstand during physical activity. Due to concerns of safety and inexperience with a new condition, it was common for the former Marina del Rey resident to pull back when challenged physically.

But thanks to time and a few demanding, competitive feats - triathlons, half marathons and a couple Half Iron Man races - behind him, that fear has become a thing of the past for Garlett. He will next attempt another scaled down version of what is considered one of the ultimate physical tests, the Iron Man triathlon. In the Half Iron Man on the Kohala Coast of Hawaii June 2, Garlett and the competitors will attempt to swim 1.2 miles, bicycle ride 56 miles and run 13.1 miles consecutively.

He has done most of his training throughout the lo…

Vote Yes by June 15 on Proposed Changes to Lung Allocation

Pulmonary Hypertension Association PHA


The United Network of Organ Sharing (UNOS) uses an assessment called the Lung Allocation Score (LAS) to help determine the allocation of organs to patients in need, including PH patients awaiting lung transplant. Currently, the LAS significantly underestimates a PH patient's need for transplant, but that could change soon and you can help.

Recently, Raymond Benza, MD, of the West Penn Allegheny Health System, worked with UNOS on an initiative to “even the playing field” for PH patients seeking lung transplants. As a result of this work, the Thoracic Organ Transplant Committee proposed revisions to the LAS system that would greatly benefit PH patients and others waiting for transplants.

UNOS and the Thoracic Organ Transplant Committee want to hear from you about these changes! They’ve opened a public comment period on these revisions until June 15, 2012.

Public comments may come from private citizens, health professionals, patients, caregivers, …

The DMV Tried to Get Me to 'Just Say No!' to Organ Donation

The Huffington Post | Dr Randi Hutter Epstein MD, MPH
In a New York Times piece this month, Pauline Chen, a liver transplant surgeon, writes about checking the "yes" box on her renewed driver's license, committing herself to organ donation should she get into a tragic accident. Even this experienced physician said the question took her off-guard for a split second. One minute she was going through the mundane process of paperwork, the next minute contemplating her own death.

Everyone knows that our country suffers from a dearth of organs for those who desperately need them, particularly organs from minorities. Years ago, I wrote about the savvy promotional schemes to get more people to think about organ donation and to check the "yes" box. And yet, what happens in committee meetings that discuss clever marketing strategies is often very different from what happens in the real world.

Chen points to a study, published in the Archives of Internal Medicine. It found …

ORGAN DONATION: Part of you is kept alive by a stranger - Malaysia

New Straits Times

I REFER to the article "Long wait for transplant" (NST, May 20). I cannot help but agree that the supply of organs for donation in our country is low but the demand is on the rise. With all the organ donation campaigns carried out in the country to increase public awareness, why do we still face this problem?

Organ donation for most Malaysians remains an idea far removed from their daily lives, until they need one. Many are not aware that organ and tissue donation is the ultimate act of charity. Organ donation is the gift of one's body parts after death for the purpose of transplantation. Transplantation involves the replacement of diseased and defective organs and tissues with healthy ones from donors. This helps save lives.

Commonly transplanted organs are the kidneys, heart, liver, lungs and pancreas while transplantable tissues are eyes, bones, skin and heart valves. Thus, a single donor can save a number of lives.

Most major hospitals provide infor…

Barcelona's Abidal could return to play again, doctor says

Chicago Tribune | Sports | Reuters
MADRID (Reuters) - Barcelona defender Eric Abidal could return to play football again after his liver transplant, the surgeon who carried out the operation has said.

The France international, 32, had surgery to remove a tumour from his liver last year, but after returning to play again, was forced to undergo a transplant on April 10 with part of an organ donated by his cousin.

"It's up to him. I wouldn't stop him. Time will tell," doctor Juan Carlos Garcia-Valdecasas was quoted as telling Spanish television station TV3 on Thursday. "If Eric responds well, there is no reason why he shouldn't.

"The liver is an organ that regenerates in three months. Abidal has to recover little by little, but between three and six months, or up to a year after the intervention, the patient is able to have a normal life.

"He is always in high spirits. He is a very positive character, it is tremendous. He has never complained about anythi…

Torch of Life comes to Garden City

Niagara this Week
Photo: Torch of Life comes to Garden City. Olivia Hubert of St. Catharines is proud to be part of the Torch of Life relay through Niagara. She will be carrying the torch in St. Catharines, before bringing it to Grimsby town hall, on Friday. She has been a volunteer with the Trillium Gift of Life Network since last February, speaking out about organ and tissue donation to youth, and distributing promotional materials to area high schools. Scott Rosts/Staff Photo
When Olivia Hubert signed up to volunteer with Trillium Gift of Life Network last February it started as a way to give back.

“I thought it was a really great cause and a good way to support the community,” said the 18-year-old St. Catharines resident.

She started to spread the word about organ and tissue donation, making presentations at Aapex Driving Academy every weekend, and started providing promotional materials and educational resources to 20 high schools in Niagara.

Then, just a few months ago, things hit c…

Who Gets A Donated Organ? It's Complicated

Hartford Courant | William Wier


Transplant Waiting Lists Weigh Variety Of Factors And Are Frequently Readjusted When Colby Salerno received a heart transplant earlier this week, he was one of 26 people in the state waiting for a new heart, and one of more than 3,000 in the U.S.

Exactly when someone on a waiting list for an organ transplant receives a new organ depends on a lot more than just where they are on that list.

Joel Newman, a spokesman for the United Network for Organ Sharing, said a number of factors are involved and are calculated by computer, which frequently readjusts the lists.

"It is an algorithm," he said. "When information does come in, there's the matter of location, blood type, body size and other biological factors."

Geography is also considered. Rather than ship an organ from 1,000 miles away, as sometimes happens, it's preferable if the organ is nearby.

The United Network for Organ Sharing compiles the list nationwide and makes recommendati…

Michigan City firefighter waits for a donated kidney

The News Dispatch | Lois Tomaszewski MICHIGAN CITY — Capt. Jack VanEtten, who has spent the last 19 years working to save lives with the Michigan City Fire Department, is on a mission to save his own.

VanEtten is on the National Organ Transplant list, awaiting a kidney. His own kidneys are functioning at only 10 to 15 percent. Even with that, he counts his blessings. He has not started dialysis, he has a job that allows him to monitor his well-being and he has the support of family, friends and coworkers.

He has been on the organ transplant list about a year, waiting for an organ with the right blood type to be removed from a cadaver. The typical waiting time is two to five years, with the patients considered most critical on the top of the list.

This week, 114,578 patients are on the transplant list, with 73,000 considered active candidates. In January and February, 4,403 kidney transplants were completed, and 2,222 organs were donated.
Read more: http://www.thenewsdispatch.com/articles…

Infographic: The Long Wait for Donated Organs

Good Lifestyle
Organ donation rates have increased considerably as awareness of organ donor programs has grown over the past 20 years, yet nearly 20 Americans a day still die while waiting for a transplant.
Story source: http://www.good.is/post/infographic-the-long-wait-for-donated-organs/

Montclair fatal crash victim to be honored through 5K race

North Jersey | Dan Prochilo
Alexandra Niles waited for about two hours on March 30, 2011, as doctors at St. Joseph's Regional Medical Center in Paterson performed surgery on her mother, who had been hit by a van while walking to catch a train at the Upper Montclair Train Station.

Betsy Niles, who had turned 60 years old on Jan. 4, suffered a serious head injury from the collision. The van had been heading down Bellevue Avenue toward Valley Road and made a left to enter the parking lot across the street from the Bellevue Theater when it struck her at 8 a.m., after the driver failed to see Niles in the crosswalk "because of the sun," the victim's daughter said. The driver stopped and called 911.

Although it had been "a low-impact collision," the crash knocked Betsy Niles over, left her unconscious, and inflicted an injury that was catastrophic, according to Alexandra Niles.

At the hospital, it took surgeons a couple of hours to open one side of the victim's …

Canada AM broadcast sparks increase in organ donor registration

Cartt.ca

TORONTO – Last Friday’s episode of Canada AM entitled ‘Be A Donor’ generated a spike in online donor registration at Ontario’s organ and tissue donation and transplant agency Trillium Gift of Life Network, CTV said.

The live two-hour special, aimed at generating awareness and calling to action, featured Canadian organ donation crusader Hélène Campbell in her first one-on-one interview since receiving the gift of new lungs last month. It also included heart-felt stories of recipients, wait-list patients, donors and families, all encouraging Canadians to take action over the weekend.

Trillium’s website www.BeADonor.ca saw 968 new online registrations on Friday alone, nearly 20 times the daily average, and 274 new registrations over the weekend. In addition, a total of 2,318 Ontarians used the site on May 25 to either register as donor or to check or update their donor status, setting a new one-day record.

“Our aim in producing the special was to drive Canadians to register their …

Ride 4 Life focuses on organ donation

The Charlotte Post | Herbert White

Greg and Rikki Myers waited on a miracle to save their son Skylar’s life.

Their only child was born in 2008 with a congenital heart defect and suffered a heart attack two months later. Doctors expected Skylar to die within 10 days.

“You just can’t put into words what it was like to count down and not know if he would make it,” Greg Myers said.

On day six, the Myers got the call. A donor heart was found and Skyler took the transplant at Carolinas Medical Center. Now free to lead a normal life, Skyler was enrolled in pre-school in March and on June 2, he’ll take to his tricycle as grand marshal of the Collier Lilly Ride 4 Life, a fundraiser that benefits LifeShare Of The Carolinas.

The ride, now in its ninth year, is held in memory of Collier Cobb Lilly, a Davidson College student whose organs were donated after he died in an auto wreck.
Read more: http://www.thecharlottepost.com/index.php?src=news&srctype=detail&category=News&refno=4674

Tees transplant patient’s bike ride test to raise cash for hospitals - UK

Gazette Live UK | Lindsey Sampson
A GRANDAD who has found a new lease of life after having a kidney transplant is taking on a 135-mile bike ride as a thank you to the hospitals that cared for him.

Phil Davis, 52, of Middlesbrough, will cycle the coast-to-coast route from Whitehaven to Sunderland along with 30 others to support Middlesbrough’s James Cook University Hospital and the Freeman Hospital in Newcastle.

Phil first noticed something wasn’t right three years ago when he began to feel fatigued.

He was referred to the renal investigation unit at James Cook, where he was told his kidney function was deteriorating.

As he faced the possibility of a life on dialysis, Phil’s consultant, Dr John Main, referred him to the Freeman and he was added to the transplant list.

Phil, who lives with wife Denise, 54, and has two daughters, Rachael, 30, and Laura, 27, as well as three grandchildren, said: “My brother, sister and wife all went for tests to determine whether they could be live transplants…

Aussie donors refuse to part with skin, eyes

9 News | Phillipa Lees
While most Australians agree with the idea of organ donation, surgeons say not enough people are opting to give up their most familiar body parts — their eyes and skin.

Extensive organ waiting lists highlight the need for more donors, but research shows the reasons Australians decline "cosmetic" donations are often spiritual or superstitious.

While 90 percent of Australians agree with the idea of organ donation, 48 percent will turn down the request to donate their deceased relative’s organs, according to recent data from the Organ Donor Registry.

"The quote that keeps coming up in my research is 'the eyes are the windows to the soul'," Holly Northam, a researcher at the University of Canberra, said.

"You might sit with a family and if the children are involved they will normally say yes to everything to help another person — except the eyes and heart. Because we attach more emotion to those parts."
Read more: http://news.ninems…

Gabriel's Gift: Jackson Co. Family Encourages Organ Donation

WSILTV | Emily Finnegan and Andy Shofstall
DESOTO -- The family of a young Jackson County boy killed last week is speaking out in support of organ donation.

Gabriel Mazurek, 6, of DeSoto died Saturday, four days after closing an automatic car window on his neck.Authorities call it a tragic accident, but from that tragedy, but Mazurek's parents have found a way to share his life with others.

"When we knew that we had lost him, the decision to donate organs, for both of them, it was just, 'yes, that's what we want to do,'" said Gabriel's grandfather, Joe LeForge.

LeForge remembers his grandson as a little boy with a big personality. Fearless and spunky, Gabriel loved action figures, video games and zombies. He celebrated his sixth birthday just a few weeks ago.

But last Wednesday, a ride in the car turned tragic. Gabriel was in the backseat and rolled down the window and stuck his head outside. Williamson County authorities say somehow the boy hit the button ag…

Riverside: Walkers support Brandon Pentz Memorial Fund

The Press-Enterprise
On April 28, friends and family gathered together to honor and support the Brandon Pentz Memorial Fund as its team participated in the 10th Annual Donate Life Run/Walk at Cal State Fullerton. Pentz, of Riverside, became an organ donor after he died in 2010 from an accidental fall. Seventy-five individuals joined the team which raised more than $8,500 and still counting to help educate and inspire the community about organ and tissue donation while benefiting Donate Life California Organ and Tissue Donor Registry.

“It has been almost two years since we were forced to say goodbye to Brandon but not an hour goes by that we don’t think of him and the impact his life made on so many individuals. This event was a wonderful way for Brandon’s family and friends to join together in an important cause and remember how blessed we were to have Brandon and, even though he is gone, continues to make a difference in others by being an organ donor,” said Oran Pentz, Brandon’s fath…

May is Older Americans Month - Any age is the right age to share the gift of life.

US Department of Health & Human Services

THE NEED IS REAL114,557 people are waiting for an organ18 people will die each day waiting for an organ1 organ donor can save up to 8 lives> More statistics and figures

Kuwaiti woman rescued thanks to Saudi organ exchange pact

Kuwait News Agency | By Fawaz Al-Otaibi


Photo: chief surgeon at Hamid Al-Essa Organ Transplant Center Dr. Mustafa Al-Mousawi

KUWAIT, May 30 (KUNA) -- A Kuwaiti woman's life was saved after she was given a new liver as part of an organ exchange deal with Saudi Arabia.

The Kuwaiti, who was suffering from liver failure, was handed the functional liver of a deceased Saudi male in a transplant operation that was carried out at Saudi Arabia's King Faisal Specialist Hospital and Research Centre.

Since the start of the year, some 28 donated organs have switched sides between the two neighbouring countries as part of a Gulf Cooperation Council health deal signed in 1996, said chief surgeon at Hamid Al-Essa Organ Transplant Center Dr. Mustafa Al-Mousawi.

Story source: http://www.kuna.net.kw/ArticleDetails.aspx?id=2244038&language=en

{Register to be an organ,eye and tissue donor. To learn how, www.donatelife.net or www.organdonor.gov}

What Air Traffic Can Teach Us About Kidney Transplants

90.0 WBUR Boston's NPR Radio Station | Chana Joffe-Walt
This is the second of two stories we're doing this week on organ transplants. See the first story, Who Decides Whether This 26-Year-Old Woman Gets A Lung Transplant?

Nikolaos Trichakis is a Harvard Business School professor who studies air traffic. He was watching the news one night when a segment came on about the waiting list for kidney transplants.

He'd never thought much about organs, but it immediately became clear to him that his insights into air traffic might help patients waiting for kidneys.

Trichakis and his colleagues try to figure out how to balance fairness and efficiency.

In a purely fair system air traffic system, planes take off in exactly the order that they are scheduled. But if what you care about is efficiency, you may let a plane full of passengers with layovers take off first, so you don't have lots of people miss their connections.

In an organ-allocation system based solely on fairness, organs ma…

Stars Hit The Fairway To Support The Lopez Foundation 200 Golfers Participated in the Event Raising More Than $500,000

Sacramento Bee | The Lopez Foundation
LOS ANGELES, May 30, 2012 -- /PRNewswire/ -- Celebrities golfed for a good cause on Monday, May 7 to benefit The Lopez Foundation at the sold out 5th annual George Lopez Celebrity Golf Classic & Mercedes-Benz Dealer Championship. The record-setting event, held at Lakeside Golf, welcomed 200 golfers and raised more than $500,000 to benefit the foundation.

"I'm excited to announce that we raised a record-setting amount this year at my celebrity golf tournament. Thanks to all my friends and sponsors, The Lopez Foundation will be able to send kids with kidney disease to The Painted Turtle Camp, where they can go and have fun and not worry about being sick, it's amazing," said George Lopez.

"This year really surpassed our goals and has been the best year so far. The money we raised will go to such a worthy cause, we appreciate everyone who came out to support the foundation," said Linda D. Small, Executive Director of The…

More Families Seek Kidney Donations on Facebook

Researchers unsure if social media is a safe, effective route to finding donors

WEDNESDAY, May 30 (HealthDay News) -- More patients and families are using Facebook to seek kidney donations, but it's not clear if doing do improves the chances of obtaining a donor organ, a new study finds.

Researchers from Loyola University Medical Center in Maywood, Ill., examined 91 Facebook pages that were seeking kidney donations for patients aged 2 to 69 and found that 12 percent of the pages reported receiving a kidney transplant and 30 percent reported that potential donors had come forward to be tested for compatibility.

One page reported that more than 600 people had been tested as potential donors for a child, according to the study recently presented at a meeting of the National Kidney Foundation.

On kidney solicitation pages where identities could be determined, the researchers found that 37 percent of the pages were created by patients, 31 percent by patient's children, and 32 percent …

Hundreds remember girl killed in crash, Ashton Sweet

Orange County Register | Brian Martinez


IRVINE – Hundreds gathered at Irvine Boulevard and Culver Drive on Tuesday night to mark the one-year anniversary of a crash at that intersection that killed Northwood High School freshman Ashton Sweet.

Friends, family, classmates and well-wishers lighted more than 100 candles in her memory. Many of the candles, along with pink and white roses and rose petals, were placed on mirrors around the crepe myrtle tree the city planted there in Sweet's honor.

The 14-year-old cheerleader died when a man suspected of drunken driving with a previous DUI conviction is said to have driven his pickup into the sedan she was riding in on Memorial Day weekend. The driver, Austin Jeffrey Farley, is charged with murder in her death.

"Ashton Sweet will never be forgotten," her friend, Amber Aviles, said at the vigil. "She was such a happy, beautiful person who affected so many lives for the better. She will be forever missed. And everyone knows sh…

Sturgis man dies after MMA fight in Rapid City

Meade County Times Union | Jeff Budlong

A Sturgis man died one week after competing in a mixed martial arts competition at Rushmore Plaza Civic Center in Rapid City.

Dustin Jenson, 26, was participating in full-contact fights at a RingWars event May 18 when he tapped out — a signal to end the fight. According to his mother-in-law, Violet Schieman, Jensen then watched the next two fights before going to the locker room area, where he suffered a seizure.

"He laid down to do his stretches, and another fighter heard a moan," Schieman said. "He went over and saw Dustin having a seizure. They called an EMT, which took him to Rapid City Regional Hospital."

Schieman said medical personnel determined that Jenson had increased pressure on his brain and put him in a medically induced coma before surgery was performed to relieve pressure. He was declared dead May 24 and was taken off life support the next day, Schieman said.

"He did not wake up after the surgery and was declar…

NEWARK BETH ISRAEL MEDICAL CENTER PROMOTES NATIONAL AND LOCAL INITIATIVES TO INCREASE THE NUMBER OF REGISTERED ORGAN DONORS

The Alternative Press | Beth Salamon

Transplantation gives hope to thousands of people with organ failure, helping them to achieve renewed and active lives. Currently, more than 110,000 men, women and children in the U.S. are awaiting organ transplants to save their lives. Thousands more are in need of tissue and cornea transplants to restore their mobility and sight. With organ donation producing such life changing results, it is surprising that while 90 percent of Americans say they support donation, only 38 percent of licensed drivers are registered to be organ donors.

“The hope is that people will read news stories about how patients’ lives have been changed so dramatically because of the gift of organ donation, and that this will prompt their registration as an organ donor,” says Sadanand Palekar, M.D., Program Director of the Renal and Pancreas Transplant Program at Newark Beth Israel Medical Center (NBIMC). The Renal and Pancreas Transplant Program of Barnabas Health is one of…

“I am a donor,” the awareness campaign on the National Day of Organ Donation

M24Digital
The Central Unique National Institute Coordinator of Ablation and Implant (INCUCAI) launched an emotional awareness campaign on donation for the National Day of Organ and Tissue Donation.

The video, produced by Watts Videos, shows people from different countries expressing their pride in having donated so that others can continue to live. “I’m a donor and I’m telling the world” is the motto.

“On May 30 the National Day of Organ Donation. The proposed date for the birth of the son of the first patient who gave birth after receiving a liver transplant in a public hospital, which represents the possibility of living and give life after a transplant,” said INCUCAI.

M24Digital shows you the video:

Memorial Notebook: Compton returns for fourth Memorial

Columbus Sports Network | PGA Memorial Tournament | J. Justin Boggs



The road back to the PGA Tour and the 2012 Memorial Tournament has been a long one for Florida native Erik Compton. Compton is participating in his fourth memorial Tournament at Muirfield Village after spending a year in the Nationwide Tour.

Compton’s path has been one of struggle and near death. Compton has battled viral cardiomyopathy which has forced the 32-year-old to have a pair of heart transplants. After facing his first heart transplant at 12, he played part time on the PGA starting in 2000. He stopped playing contact sports at 12 and focused on playing golf.

From 2000-11, Compton participated in a total of 30 PGA Tour events.

In 2007, Compton suffered a massive heart attack leaving him in need of a second transplant. In May, 2008, Compton got his second transplant. Less than six months later, he made his first PGA start in the Children’s Miracle Network Invitational with a 72-hole score of 6-under.

Last year, …

Tears of Happiness, Tears of Grief

RJ. org - News and Views of Reform Jews | Kate Bigam

I remember the first time I cried tears of joy. I was a teenager, home alone, when the phone rang: A donor had been found, and my younger cousin Joe would soon be getting a new liver. It was entirely foreign to me to cry for happy reasons – but there I was, tears streaming down my face as I thanked God for giving Joe the opportunity to for new life. For healthy life. For the life every kid deserves. After a childhood full of illness and worry, this was the news we’d worried would never come.

Today, Joe is a happy, healthy college student. We don’t talk about his liver transplant anymore, or the fact that we spent his younger years worrying that he might never reach today – but still, I remember. I remember that fear every time he got sick and that relief when we learned he would be receiving a transplant. I also remember the sadness: Someone had to die so that Joe could stay with us, and that fact was never lost on me. That afternoon…

Consequences in the rise of illegal organ trafficking

FOX News | Dr. David Samadi
Earlier this week, the World Health Organization (WHO) released a report demonstrating a rise in the number of human organs being sold on the black market. According to the paper, in 2010 over 10,000 organs were sold, translating to more than one organ sold every hour.

Organ transplantation is a necessary treatment for many individuals whose organs have failed and has been in practice in the United States since the 1950s. In the U.S. organ donations are regulated by an independent non-for-profit organization, United Network for Organ Sharing (UNOS). Organs are given to those whose need is the greatest, regardless of wealth or position. Unfortunately, the need for organs greatly outweighs the current supply. As of March 2012 over 113,115 patients are currently waiting for an organ to become available.

An illegal market has capitalized on these individuals’ desperation, and the prospects of large profits are creating unfortunate incentives, with patients willin…

'Super Optimistic' student overcomes obstacles to graduate

Crestview News Bulletin | Brian Hughes
Like many of his fellow members of the Crestview High School Class of 2012, Taylor Nelson has his nose in the books as he tackles final exams. But in the coming year, after that magic moment Friday evening when he flips the tassel to the other side of his mortarboard, Taylor’s going to face some even greater tests.

Taylor has cystic fibrosis, diabetes, asthma and more recently, was diagnosed with cirrhosis of the liver. His time is divided between Crestview and the University of Alabama at Birmingham Hospital, where he’s spent a substantial part of his final semester completing coursework and taking exams while undergoing treatment.

“I’m finishing up my end of course exams right now,” Taylor said when contacted last week. “I’m looking forward to graduation very much.”

“He really wants to graduate really bad,” Crestview High Principal Bob Jones said. “I was very touched by his desire and his intense need to get his education. He didn’t want any short…

Cambridge Music Collective Dowsing for Sound Supports the Cystic Fibrosis Trust - UK

PR Web
Dowsing for Sound has chosen to support the Cystic Fibrosis Trust with a contribution from its Corn Exchange gig on the 16th of June because it has singers affected by Cystic Fibrosis.

Cambridge, Cambridgeshire, UK (PRWEB UK) 30 May 2012

Dowsing for Sound’s charity choice is no random pick.

Dowsing for Sound is a Cambridge music collective of 60 voices and a ripping house band. This year, on the 16th of June, the group is performing at the Corn Exchange in a line up which promises to be inspiring, exciting and rousing with a repertoire that ranges from Scandinavian soundscapes to the driving beats of indie-rock tracks.

Dowsing for Sound aims to donate some of the proceeds from the gig to two charities, one of which is the Cystic Fibrosis Trust; a charity which holds very personal meaning to a few members in the choir who either suffer from cystic fibrosis or have children who do.

Will Cramer sings in the tenor section and is known for his beautiful solo performances. Will was diagnos…

Blaine sisters shared the need for a new heart

ABC Newspapers | Mandy Moran Froemming
Sisters usually swap toys, clothes and secrets.

But Madison and Sidney Rippy have also shared something quite rare – the need for a new heart.

Both Madi, 6, and Sidney, 3, have been diagnosed with dilated cardiomyopathy – a disease that affects the size of the heart and how it pumps. They have also both received heart transplants at the Mayo Hospital.

For parents Linsey and Noel Rippy of Blaine, the last four years have been anything but what you might expect raising a couple of little girls.

Madi’s story

Madi first got sick when she was 2 1/2 years old, while Linsey was pregnant with Sidney in October 2008.

“One day she started acting really weird, her eyes were funny and she was slumped to one side so we called an ambulance,” said Linsey.

After being transferred quickly from Mercy Hospital to Children’s Hospital, doctors performed an MRI and discovered the little girl had suffered multiple strokes.

“When they did an X-ray they found she had this enormo…

Celebrating the Gift of Life

LifeCenter Northwest

LifeCenter Northwest, SightLife and LifeNet Health Northwest are excited to announce the 2012 Donation Celebrations!

We invite you to join us for a picnic gathering of appreciation and fellowship to honor all those who have given the gift of life and health through organ, eye and tissue donation. This event is an opportunity for donor families, transplant recipients, hospital staff and community donation advocates to come together and share stories of those touched by donation and celebrate the precious, life transforming gifts that have been given and received.

Come with your loved ones and an appetite for picnic food, ice cream and fun! There will be games for attendees of all ages, a collection of Donor Memorial Quilts and opportunities to learn more about donation and transplantation. We will also hold a short program with stories from donor families, transplant recipients and donation advocates followed by a dedication balloon release.


Ailing teen who posted 'My Final Goodbye' video dies

The Star-Ledger
Shaun Wilson-Miller, a 17-year-old Australian boy, unexpectedly found fame earlier this month when he posted a video about his ailing health called "My Final Goodbye" and saw the clip go viral.

Saturday, Wilson-Miller died while holding his father's hand in Melbourne, according to a report by the New York Daily News.

"I'm numb at the moment. It still hasn't registered with me," his father Cameron Miller said. "I was sitting with him. We were going to watch the football that night."

Wilson-Miller posted the video on YouTube on May 1, explaining that he suffered from chronic heart rejected after a second heart transplant had failed.

"I won't be here for as long as I thought,” he said in the video.
Read more - Video: http://www.nj.com/news/index.ssf/2012/05/ailing_teen_who_posted_my_fina.html

Tom Brady inspires man to give kidney to stranger

NBC Sports | Mike Florio
Patriots quarterback Tom Brady tried unsuccessfully to find a kidney for his mentor Tom Martinez, who died earlier this year while awaiting an organ donation. Thanks to Brady’s efforts, however, at least one other person will not perish.

According to NECN.com, 48-year-old Peter Hughes has donated a kidney to a woman he didn’t know.

Hughes used the Matching Donors website, promoted by Brady. And Hughes was found to be a match for Asja Bethiel, a mother of two.
Read more: http://profootballtalk.nbcsports.com/2012/05/29/tom-brady-inspires-man-to-give-kidney-to-stranger/

'Lung washing' could boost transplants

BBC News Health | James Gallagher
"Washing" lungs before they are transplanted could increase numbers of the organs suitable for donation, according to doctors in Newcastle.

Only one in five donated lungs are good enough to be transplanted safely.

A trial, being led by Newcastle University, is trying to improve the quality of the lungs by pumping nutrients and oxygen through them.

The British Transplantation Society said the technique could "dramatically" increase the number of lungs used.

Around a quarter of people waiting for an organ transplant die in the first year on a transplant list.

The lungs are delicate organs and the events which lead to a donor's death can also damage the lungs. It is why so few can be transplanted.Spruce up

Doctors are using a modified heart-lung bypass machine to prepare the organs. Air is pumped into the lungs, which can absorb oxygen, while nutrients are pumped through the blood vessels.

The technique called "ex-vivo lung perfusio…

How Facebook is Changing the World for Good

Forbes | Rahim Kanani
In advance of the 2012 Social Innovation Summit taking place this week at the United Nations Headquarters in New York City, and as the fourth installment of an exclusive interview series, I spoke with Libby Leffler, Strategic Partner Manager at Facebook focusing on community partnerships and programs. Throughout the interview, we discussed how individuals, communities and organizations are using Facebook to educate, inspire, and mobilize for positive change.

At Facebook, Libby works with the causes, nonprofits, public figures, cultural institutions and media organizations that partner with Facebook around high-impact integrations. Libby was the co-anchor of “Facebook Live”, the company’s official video streaming channel, during the 2011 and 2012 World Economic Forum meetings in Davos, Switzerland.

Prior to joining the platform partnerships team, Libby was the Business Lead to Facebook’s Chief Operating Officer since 2009. As the Business Lead to the Chief Operating…

Any Age Can Potentially Save Lives

Gift of Life Donor Program


A common myth that deters some people from registering as an organ and tissue donor is that he or she is too old to donate their organs. That simply isn’t true! People in their 50s, 60s, 70s, and beyond can save lives! Despite the facts, nearly a quarter of people 65 and older think that they are too old to donate an organ, according to a Gallup survey.

In observance of Older Americans Month in May, the Health Resources and Services Administration (HRSA), in partnership with the Administration on Aging and the National Institutes of Health launched a campaign to educate post 50 year olds and encourage them to become organ and tissue donors. The campaign will include brochures, radio spots, advertisements, and web banners.

Read more: http://www.donors1.org/blog/tag/organ-transplants/

{Register to be an organ,eye and tissue donor. To learn how, www.donatelife.net or www.organdonor.gov}

Highview Fire Department holds organ donor registry drive

WHAS 11, Louisville, KY | Tyler Druin
LOUISVILLE, Ky. (WHAS11) - - A Louisville teen is in need of two new kidneys and Tuesday there was an organ donor registry drive to try and make that happen.

Austin Hoyt, 14, was only 12 when he found out he had a chronic kidney disease and both of his kidneys were severely damaged.

Austin has been on the organ transplant list for over a year and is on dialysis every night as he sleeps.

Tuesday people were encouraged to come to the Highview Fire Department and register to be an organ donor so that they can help out Austin and others like him.

To learn more about the Kentucky Organ Donors Association or how to become an organ donor click here

Read more - VIDEO: http://www.whas11.com/community/Louisville-fire-department-holds-organ-donor-registy-drive--155367765.html

Helping ‘a true gentleman’: Comics rally ‘round ailing Mike MacDonald June 1 at Johnny Eh’s

My Kawartha
Photo: Canadian comedy giant Mike MacDonald is ill and in desperate need of a new liver. On June 1 at Johnny Eh’s, several comics will perform in support of him as well as raise organ donation awareness.
(PETERBOROUGH) For those who believe that a first impression isn’t all it’s cracked up to be, Jon Bryan is here to tell you otherwise.
It was back in March 2010 that Bryan, the owner of Johnny Eh’s in downtown Peterborough, scored a coup when Canadian stand-up comedy star Mike MacDonald performed at the Water Street eatery.
As a member of Rotary, Bryan had met MacDonald earlier when he performed as part of a fundraiser for the service club; a “true gentleman” as he recalls his first impression of the comic.
“We stayed in touch after that,” recalls Bryan.
“Eventually, he had an opening in his schedule between shows west of Toronto and home in Ottawa and asked if he could play here. He asked what I could afford, I threw out a figure and he said OK.”
Now, with the Hepatitis C-stric…

Patient receives long awaited new heart

WTNH News 8 | Jocelyn Maminta
Photo: Colby Salerno was forced to live in the cardiac ICU at Hartford Hospital while he waited for a heart transplant. He received his new heart on May 29, 2012.

HARTFORD, Conn. (WTNH) -- After waiting 166 days for a lifesaving transplant, 24-year-old Colby Salerno now has a new heart.

News 8's Jocelyn Maminta first met the young man from Cheshire back in January.

A rare disease had weakened his heart and Colby was forced to live in the cardiac ICU at Hartford Hospital while he waited for a donor.

Then on Tuesday morning, a posting on the "Have a Heart for Colby" Facebook page indicated that a match had been found and Colby was headed into surgery to receive his new heart.
Read more: http://www.wtnh.com/dpp/news/health/patient-receives-long-awaited-new-heart#.T8UumVKRlI4

Who Decides Whether This 26-Year-Old Woman Gets A Lung Transplant?

KNAU Arizona Public Radio | Chana Joffe-Walt Ashley Dias, 26, is waiting for lungs. She has cystic fibrosis and needs a lung transplant to survive. She's got a tracheostomy tube in her neck so she can only mouth out words.
When doctors come to see Ashley in her hospital room at the Cleveland Clinic, she has only one question. She pulls out a marker and writes in enormous capital letters, as if it's the only thing she's ever wanted a voice to say:

ANY NEWS ON LUNGS

So far, there is no news on lungs. Ashley's still waiting.

Ashley's doctor, Marie Budev, has 124 patients on the waiting list for a lung transplant. The doctor desperately wants all of them to get transplants. But there aren't enough lungs to go around.

Scarcity is a problem with organ transplants in general. And, unlike other scarce resources, organs can't be bought or sold. So doctors have had to develop systems to figure out who should get transplants and who should wait. Coming up with a syste…