Sunday, September 30, 2012

Proposed rule shift would benefit some kidney patients on waiting list for transplant

Trib Live | By Luis Fábregas


Photo: Warren Whitlock of the West End, gets a dialysis treatment at Allegheny General Hospital Saturday, September 29, 2012. Heidi Murrin Pittsburgh Tribune-Review

Dialysis patients who were not informed about kidney transplant possibilities could move up on the waiting list through a proposed rule that would give credit for time spent on dialysis.

The proposal addresses a long-standing problem: The failure of doctors and dialysis clinics to disclose that a kidney transplant could add about 10 years to a patient’s life.

“Patients often get referred late for transplant,” said Dr. John Friedewald, a transplant nephrologist at Northwestern Memorial Hospital in Chicago and chair of the Kidney Transplantation Committee of United Network for Organ Sharing. “Getting a transplant sooner is better. We realized that some patients were being underserved because they weren’t being referred before they started dialysis.”

The proposed rule change is part of a broader policy review of kidney allocations by UNOS, which oversees allocation of transplant organs in the United States. Kidneys are by far the most needed organ with more than 93,000 people waiting for kidney transplantation nationwide. About
10 percent of those candidates die each year while waiting.

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{Register to be an organ,eye and tissue donor. To learn how, www.donatelife.net or www.organdonor.gov}

Waldorf 5-K for Organ Donation

KIMT3


FOREST CITY, IA - Today is National Heart Day, another opportunity to raise awareness of heart disease. But one local college is racing to spread the word on the importance of all our organs.

Waldorf College is supporting organ donation by hosting their 15th Annual Homecoming 5-K.

According to the Iowa Donor Registry, over 600 people living in the state are awaiting an organ donation and over 100,000 in the U.S.

Event organizers say that donating can have a huge impact on not only the community, but someone you may know.

Director of Student Heath Services Mathiasen said, "You know, once you've seen or known someone who's needed an organ or donated an organ, it becomes more personal and you realize that this is really important and people need to know."

All proceeds from the run will be donated to the Iowa Donor Network.

Story source
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28 Award Winners Highlight Innovation in Social Entrepreneurship

Forbes| Devin Thorpe
Two different and independent awards this week have highlighted innovation in the World of Social Entrepreneurship. The Tech Museum in San Jose has granted awards to technologists who are having a significant social impact while the Classy Awards have recognized philanthropists and other social entrepreneurs for their creativity and impact.

The Classy Awards:

The ClassyAwards recognized 16 individuals and organizations who receive fundraising opportunities through eBay and StayClassy. The winners for 2012 were:

The Charity of the Year award went to the Wounded Warrior Project, which works “To raise awareness and to enlist the public’s aid for the needs of injured service members; to help injured servicemen and women aid and assist each other; and to provide unique, direct programs and services to meet their needs.”

The Small Charity of the Year award went to Team Rubicon, which “unites the skills and experiences of military veterans with medical professionals to rapidly deploy emergency response teams into crisis situations.”

The Best New Chairty of the Year award went to Taylor’s Gift Foundation, which advocates for organ donation and was named for Taylor Storch, whose organs were given to five different people, in some cases saving their lives and restoring vision to one.


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Visit Taylor's Gift
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Heroic 'cyster' act for six friends who received double lung transplants and are triumphing over lifelong battle with cystic fibrosis

New York Daily News | Heidi Evans


Photo: Six women, (from l.) Lyndsey McLaughlin, Kelley Chaffee, Allison Lennon, Katy Starck, Kristy Fabrizi and Piper Beatty share a special bond, as they have all undergone lung transplants and survived cystic fibrosis.

Newfound sorority met online and aim to take their show on the road to spread word about breath-robbing disease

Meet the “cysters” of the traveling lung transplants — Lyndsey, Kelley, Allison, Katy, Kristy and Piper — six young, gorgeous, smart New York women who all received double lung transplants at New York-Presbyterian Hospital and are triumphing over a life-long battle with CF, cystic fibrosis.

They get together for birthdays, engagements and 10K runs and are at each other’s side in a flash when one texts to say she is back in the hospital.

The new-found sorority — who met online searching for CF support groups — now want to take their show on the road to spread the word about organ donation and the breath-robbing disease.

“We are all pretty young but we are old souls,” said the cysters founder, Katy Starck, a 28-year-old nurse from Whitestone, Queens, who was diagnosed with the genetic defect when she was a year old. “We know that life is precious and can be taken away in an instant,” said Starck, who received a transplant last November. “We are amazing friends, ‘cysters’ and family.”

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Newlyweds to run in honour of organ donor

Independent | NIAMH HORAN
A NEWLYWED couple will take part in Run for a Life together to honour the husband's deceased donor.

The event is being organised by the Irish Kidney Association (IKA).
Just two months after tying the knot, newlyweds Colm and Nicola Clifford will take part to promote the need for organ donation and to celebrate Colm's successful kidney transplant, which he received 22 years ago.

The couple, from Milltown, Co Kerry, tied the knot in July this year, and together they will jog 10km in the charity fundraising event, which will take place at Park West Business Park, Dublin 12, on Saturday, October 13.

The 35-year-old was born with just one kidney and, after reflux, damaged it. He also suffered renal problems and poor health throughout his childhood.
At aged 11, he started dialysis treatment, which he got for two years before being called for his life-changing transplant in November 1990.

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{Register to be an organ,eye and tissue donor. To learn how, www.donatelife.net or www.organdonor.gov}

Location:Newlyweds to run in honour of organ donor - Ireland

Kidney’s gone, heart is intact

Journal Gazette | Jaclyn Youhana


Samuel Hoffman | The Journal Gazette
Rachel Bennett Steury, with husband Mathew, donated a kidney this summer.

Auburn woman becomes good Samaritan donor

Every year in November, Rachel Bennett Steury gives a gift to someone else for her birthday.

Sometimes she donates blood or attends a charity auction – anything, she says, to give back.

In July, Bennett Steury, a healthy 30-something from Auburn, celebrated an earlier birthday by giving a kidney to a stranger in Pennsylvania.

After watching a CBS “Evening News” report about the National Kidney Registry, the largest online database of living organ donors in the country, Bennett Steury decided to become what the registry calls a good Samaritan donor – a person who donates a kidney to someone they don’t know.

The news report featured a donation chain in which a good Samaritan donor donated a kidney to a 25-year-old woman, whose brother donated his kidney to a 45-year-old man, whose wife donated her kidney to an 83-year-old man, and so forth, for a total of 20 people.

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Blind army veteran Steve Shepherd's determination for half-marathon test

This is Nottingham


A BLIND Army veteran from Netherfield will join the thousands taking part in tomorrow's Ikano Robin Hood Half Marathon.

For Steve Shepherd, the race will be one of the biggest challenges he has ever faced.

The 60-year-old, of Curzon Street, went blind in 2005, because of type II diabetes.

"The biggest challenge of my life has been getting over being blind," he said. "But this marathon is certainly up there.

"I decide to run it to prove to myself that I can still do things."

Mr Shepherd, who was posted to Northern Ireland and Germany during his time as an Army mechanic, has also recently recovered from a double organ transplant, after he received a new kidney and pancreas in April last year.

"When I became blind I had to make a decision: Do I want to sit around and do nothing or do I want to get on with my life? I went for the latter and Blind Veterans UK have been absolutely fantastic."

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{Register to be an organ,eye and tissue donor. To learn how, www.donatelife.net or www.organdonor.gov}

Melbourne City Council tells organ transplant families to pay for picnic - Australia

Herald Sun | Wes Hoskin
Boy talk about how wrong politicians can be.
A GROUP of organ transplant recipients and their families are dumbfounded by Melbourne City Council's bid to slug them for a survivors' picnic.

The event has been held at Fawkner Park near The Alfred hospital each Christmas for more than 20 years.

Read more - subscription required
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New organ donation campaign aims to help save lives in Wayne County

Home Town Life


Photo: Wayne County Executive Robert Ficano (seated) with Wayne County residents awaiting organ transplants, including Robert Blackwell of Livonia (standing, far right). The residents appear in the Gift of Life video, Waiting to Live-Wayne County

Gift of Life Michigan, the state's organ and tissue recovery organization, is trying to help Michigan's largest county close the gap between its great need for more organ transplants and the relatively low percentage of its residents signed up to be organ, tissue and eye donors.

The Ann Arbor-based nonprofit and its partners launched a video campaign Thursday featuring five Wayne County residents - all waiting for life-saving organ transplants. The videos include Robert Blackwell of Livonia, who's awaiting a lung transplant at Henry Ford Hospital. and a 10-year-old girl from Inkster who needs a new heart to survive. The spots were filmed at Detroit-area landmarks and will run through November on Comcast in the Wayne County market.

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{Register to be an organ,eye and tissue donor. To learn how, www.donatelife.net or www.organdonor.gov}

Saturday, September 29, 2012

West County: Transplant toddler lives up to her middle name - Hope

Maryland Gazette | By ELYZABETH MARCUSSEN Community News Editor


Ellie Green at play. Ellie Green, of Hanover, swoops down a slide at Kinder Farm Park under the watchful eye of her mother, Alissa Green. Since her kidney transplant, Ellie has more of the energy one would expect of a 2 year old.

If Ryan and Alissa Green had listened to a midwife and a specialist, Ellie Hope Green would not be running around Kinder Farm Park or picking apples with her baby brother, Weston.

During a routine ultrasound to check for growth and gender 20 weeks into Alissa’s pregnancy, the midwife told the Greens that there was no amniotic fluid around the baby. Her heart and skull were abnormal, and she had no kidneys. The midwife’s only advice was to terminate the pregnancy.

The Greens told her that wasn’t an option and headed to a maternal fetal specialist. A sonogram showed that, though the baby had kidneys, they were not functioning. The baby’s head was not deformed and the heart looked great. Their excited response was squashed as the specialist said she did have an irreversible kidney disease. If she survived to birth, she would die minutes after being born. Again, they were told to terminate the pregnancy and try again.

Instead, the Hanover couple found a pro-life clinic, where they found information about pro-life doctors and met Dr. Chuka Jenkins at Harbor Hospital.

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{Register to be an organ,eye and tissue donor. To learn how, www.donatelife.net or www.organdonor.gov}

Two new leases on life, one new book

St Albert Gazette | Scott Hayes


Author White hosts book launch next Saturday

Anthony White went through hell a few years ago. Now that he’s back in good health, he wants to share his story with the world and tell people that life is for the living, and organ transplants are the best kind of gift.

The 67-year-old British Columbia native had hepatitis B but was otherwise in pretty good health. He played baseball and he still knew how to drink. He was taking Heptovir to manage the virus and some blood work came back in 2008 that there was no sign of hep B.

He thought that he had beaten it. He stopped taking the drug, a mistake he now admits. A couple of drinks at Christmas did much damage, he would soon find out.

In early 2009, now living in Grande Cache, he started losing energy and getting confused. One day, someone looked at him and said, “Is it the light in here or are you turning a shade of yellow?”

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{Register to be an organ,eye and tissue donor. To learn how, www.donatelife.net or www.organdonor.gov}

Video: Donor exchange gives gift of life

The Montreal Gazette | Charlie Fedelman


Surgeon Dr. Gabriel Chan (2nd from left) and resident surgeon Dr. Alexandre Viau (left) work on the kidney transplant surgery for 72 year-old Cosmo Fazioli, not seen, at the Rosemont-Maisonneuve Hospital in Montreal on Monday, August 6, 2012. Fazioli had spend the last few years undergoing dialysis three times a week and the last five years on a kidney transplant list.
Photograph by: Dario Ayala , The Gazette

MONTREAL - Domenic Fazioli looked at the spot on his abdomen where a surgeon had drawn an X in black and realized there was no going back. He was about to sacrifice a healthy kidney to a total stranger.
Domenic Fazioli looked at the spot on his abdomen where a surgeon had drawn an X in black and realized there was no going back. He was about to sacrifice a healthy kidney to a total stranger.

The gift was not an impulsive act of charity. Fazioli, 41, a Montreal television journalist, would gladly have given a kidney to his elderly father, Cosmo Fazioli, 73, when his stopped working five years ago. But direct donation proved impossible because father and son were not a good immunological match. His father's name went on a transplant list but years later there still was no donor in sight. Time was running out.

Fazioli then heard about a Canada-wide kidney exchange program for people in the same situation — patients with willing but incompatible donors — and both he and his brother jumped on it nearly three years ago, impatient to help their father.

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{Register to be an organ,eye and tissue donor. To learn how, www.donatelife.net or www.organdonor.gov}

How to Get Your Patient a Kidney

Clinical Correlations | By Ilina Datkhaeva


Faculty Peer Reviewed

We give hope to patients with advanced kidney disease that a transplant will save them from their Monday, Wednesday, Friday trips to the dialysis unit. But how certain are we that they even qualify to be a recipient? And if they do, are they going to live long enough to get their new lease on life?

Kidney donation has received its fair share of publicity recently, from the allocation of organs to illegal immigrants[1] to Good Samaritans starting a chain of kidney transplants.[2] Despite efforts to recruit more donors, thousands of people continue to die while on the transplant list. The average mortality rate on the waiting list is 6% per year and, with most people waiting 3-4 years, almost a quarter won’t survive.[3] So what do you tell your patient when they ask you, “Doc, how much longer?” The best thing one can do is to give them the facts.

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{Register to be an organ,eye and tissue donor. To learn how, www.donatelife.net or www.organdonor.gov}

Libertyville hospital lauded

Mundelein Review
LIBERTYVILLE — Advocate Condell Medical Center recently earned the U.S. Department of Health and Human Services (HHS) Gold Medal of Honor for its commitment to saving lives through organ and tissue donation.

Advocate Condell is one of more than 400 hospitals across the country to have earned this distinction and will be recognized during the 7th Annual National Learning Congress Oct. 4-5, in Grapevine, Texas.

HHS awards the Gold Medal of Honor to hospitals that have achieved organ donation goals established by the Breakthrough Collaborative on Organ Donation in 2003. These include ahieving an organ donation conversion rate of at least 75 percent; achieving a rate of at least 3.75 organs transplanted per donor; and recovering transplantable organs in at least 10 percent of cases involving donation after circulatory death.

Gold Medal winners have met or exceeded all three goals in the previous two years.

Condell achieved an organ donation conversion rate of 93 percent, an organs transplanted per donor rate of 3.92 percent and a donation after curculatory death rate of 16.7 percent.

Advocate Condell Medical Center is the only hospital in its region ­— among 16 other hospitals — to receive the “Gold Medal” designation, hospital officials said in a news release.

Strangers no more

Spokesman | John Stucke
Dan Pelle photo. Rick Anhorn, left, received a kidney transplant from Tom Silver on Jan. 31.

Thomas Silver never waffled. Never had a second thought – even as surgeons prepared to slice him open and remove one of his kidneys for donation to a complete stranger.

People like Silver, a 55-year-old Wal-Mart shelf stocker in Newport, Wash., are called altruistic donors in the world of organ transplants. To the sick and suffering, Silver is simply a hero.

About 18 people die each day across the country awaiting a kidney.

So Rick Anhorn is one of the lucky ones.

“Tom gave me an awesome gift,” Anhorn said.

Meeting for the first time this week at Providence Sacred Heart Medical Center in Spokane, the two men gave each other a big hug and began sharing stories that illustrated how their lives intertwined.

Anhorn worked as a banker, didn’t take good care of his body and fell ill with type 2 diabetes.

He had been on dialysis for years as his kidney functions failed.

Monday memorial in Monument to pay tribute to Kyle Keefe

Canon City Daily Record | Rachel Alexander
Man died after being struck by vehicle while riding his bike

The victim of the fatal hit-and-run accident in Cañon City will be remembered by family and friends with a memorial mass Monday in Monument.

Kyle Keefe, 49, died after being hit while riding his bicycle Tuesday on Leslie Lane. He suffered massive head injuries in the accident.

Keefe's family spoke to the Cañon City Daily Record on Saturday about him.

"My brother lived life as fully as he could," said Harry Keefe. "He was a good brother, a good friend."

Kyle was raised in Monument, where he graduated from Louis-Palmer High School. He received a degree in science and mathematics from the University of Colorado-Colorado Springs in 1990 and worked as software engineer.

He also was a musician who played the acoustic guitar, drums, harmonica and various Gaelic instruments, his brother said. He was a member of the band Three Legged Hound.

Tiana owes her life to new liver - Australia

Herald-Sun | Barclay Crawford
Tiana Zilifian had a liver transplant 2 years ago, and will now be competing in track and field event and bocce at the Transplant Games. Pictured at North Sydney. Picture: Bob Barker Source: The Daily Telegraph

STARTING school is a big step in any child's life but for little Tiana Zilifian, it was particularly significant.

Aged just four, doctors told Tiana's parents she wouldn't reach the age of five unless she received a new liver.

And the toddler, who had suffered from biliary atresia since birth, endured an agonising 11-month wait before a healthy match was found.

Her mother Aleen said Tiana spent about one year of her life in hospital while doctors tried to find a way to make her better.

Scriptures can guide on organ donation

Progress-Index | TOM LOVORN, TH.D. (BIBLE Q&A COLUMNIST)
Question: Does the Bible speak against donating organs upon one's death?

-Tonya Martin, LaCrosse

Answer: The Bible has nothing specific to say about organ donations because the practice wasn't known then. But, we can discern Biblical principles which will help us decide if we think God would frown upon organ donation. A good rule to remember is that if the Bible doesn't specifically speak to an issue, we are free to pray and decide our own answer.

The first bone transplant made possible a new person when God took a piece of flesh and bone from Adam's side for Eve's life. Later, Moses challenged Israel in Deuteronomy 30:19, "Choose life that both you and your descendants may live." A paraphrase of Proverbs 3:27 says, "Do not withhold good from those who need it when it is in your power to do so." Jesus, himself, said in Matthew 7:12, "In everything do to others as you would have them do to you." Then, Jesus gave the ultimate transplant: his life for ours!

Jesus taught us how to show his love toward our fellowman in Luke 6:35-38. Years later, the Apostle John wrote, "Beloved, since God loved us so much, we also ought to love one another" (1 John 4:11). Therefore, if we are to pattern our lives after Jesus, who was love incarnate (1 John 4:8), then God surely smiles when we give to extend life to others whom he made in his image.

Running with someone else's lungs

CNN
(CNN) -- Justin Legg could dead-lift a washing machine and carry it across the street. He could swim miles on end and run a marathon on one day's notice.

The former Navy SEAL stayed in top shape because his life -- and the lives of his teammates -- depended on it.

But when his physical strength deteriorated in a fight against cancer, Legg had to rely on his mental fortitude to carry him through four years of excruciating pain, a bone marrow transplant and two collapsed lungs.

Finally back on his feet, Legg now has a new mission. He's relearning to run, one step at a time, in honor of the 19-year-old boy who saved his life.

Newlywed nightmare

The pain started in his ribs. Legg brushed it off, figuring a martial arts fight had gotten the best of him.

He and his new wife, Suzanne, were enjoying their first few months of marital bliss in Louisiana. He was rebuilding their house -- the one that Hurricane Katrina had destroyed -- in between training at a military base in Mississippi.

But the pain persisted and his workouts soon started to suffer.

"For me it was pretty easy to run 10, 15 miles," Legg says. "Suddenly I couldn't run five. I got to three and my legs just ground to a halt."

Organ Donation Becomes Part of California’s Curriculum

CBS San Francisco | Melissa Curloss
SACRAMENTO (KCBS) – Students in the state’s public schools are about to get a lesson or two in organ and tissue donation.

Gov. Jerry Brown this week signed legislation requiring the inclusion of such education in California’s overall health and science curriculum. AB 1967 was authored by Assemblyman John A. Perez (D-Los Angeles).

“This bill,” according to California Legislative Information, “would require the (Instructional Quality Commission) and the (State Board of Education) to ensure that the health and science curriculum frameworks adopted in the course of the next submission cycle, as specified, include the subject of organ procurement and tissue donation, as appropriate.”

KCBS’ Melissa Culross Reports:
Advocates are applauding the move, which they believe will ultimately help whittle down the number of patients waiting for an organ. Nationwide, more than 115,000 people are on transplant waiting lists.

Friday, September 28, 2012

CAMBRIDGE MAN HAS BEEN POSITIVELY AFFECTED BY ORGAN TRANSPLANT

The Daily Jeffersonian


BARNESVILLE -- Last year approximately 28,000 Americans received a life-saving organ transplant and more than one million Americans received a life-changing tissue transplant. When just one individual makes the decision to donate, they can change the lives of more than 50 others.

For those who have been blessed with good health, the thought of needing a life-saving organ transplant to survive has probably never crossed their mind. However, for the more than 115,000 Americans awaiting a life-saving transplant, this is everyday life. Tim Jones of Cambridge is one of those who has been positively affected by organ transplant. Tim, a heart transplant recipient learned of his heart condition at the age of 14, when his doctor realized his aortic valve was leaking.

Despite several surgeries over the course of his life, Tim received the devastating news that he would need a heart transplant in the future to survive.

Fortunately, Tim was one of the lucky ones; he received his new heart July 2, 2004, thanks to the gift of a selfless stranger. Tim credits his full life to that of his hero Patty, an organ donor who saved his life. "Without her gift, I would not be golfing, watching the Buckeyes, volunteering for Lifeline of Ohio, increasing what I consider to be my extended family, meeting so many wonderful people at my school talks and health fairs, participating in the U.S. Transplant Games (loosely speaking!) and most importantly, keeping Patty's name alive, in honor of her generous act of heroism. Patty saved four lives that day."

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{Register to be an organ,eye and tissue donor. To learn how, www.donatelife.net or www.organdonor.gov}

Team who are putting bodies on the line - UK

The is Bristol
Photo: BACK ROW Martyn Smith: Kidneys Tony Parsons: Lungs Andy Hoq: Heart FRONT ROW Joynal Abdin: Eye Jo Parsons: Syringe Photographer: SUBMIT NOT FOR RESALE

IT was an idea cooked up in an Indian restaurant – and now a team of five will be doing their bit to raise the profile of organ donation by taking part in the Bristol Half Marathon.

The team will wear eye-catching outfits to show people some of the organs that can be donated. And rather than running the whole course they will walk for the first hour so they spread the message to as many people as possible.

Owners of the Shadin Indian Restaurant in Staple Hill wanted to raise awareness of the need for more people from Asian and black communities to sign up to the organ donor register.

They recruited Martyn Smith from Wick, who in turn signed up his friend Tony Parsons, of Hanham, whose wife Jo benefited from a cornea transplant 18 years ago, for the running event on Sunday.

Dialysis: cruel and unusual treatment Agonizing wait for a life-saving kidney transplant

Chestnut Hill Local, Philadelphia | Claudio Bordo
Claudia is seen on July 5, the day after her kidney transplant operation at Jefferson Hospital, with her sisters (from left) — Jane Pelullo of Lower Gywnedd, Monica Sinker of Ambler, Lois Rosenberg of Ambler and Brenda Gissy of Orlando, Florida. Claudia is holding a “get well” gift from her sisters.

(Ed. Note: Claudia Bordo, 61, was born and raised in South Philadelphia, but she has lived in Chestnut Hill for the past 20 years. Claudia was a much-loved employee of the Chestnut Hill Local from 2001 to 2010, when she had to leave for medical reasons.)

Waiting for a kidney that can save your life is no easy feat, and it’s not for the weak. How do I know? On a hot July day in 2009, I went to the Chestnut Hill emergency room, where the kidney specialist on call told me that I needed to start dialysis right away.

This was something I was trying desperately to avoid. I had gone to the ER because I couldn’t eat or drink for days. I was in total kidney failure, but I tried to keep my composure.

At 16 years of age I was diagnosed with Crohn’s disease, a chronic inflammation of the small intestines. Two operations left me often malnourished and dehydrated. Kidneys don’t like being dehydrated, and they form stones, which interfere with kidney function.

Davis Hospital recognized for achievement in tissue donation

Te Standard-Examiner
LAYTON – Davis Hospital and Medical Center recently received the Outstanding Achievement in Tissue Donation award from Intermountain Donor Services, a non-profit community service organization dedicated to the recovery and transplantation of organs and tissues in Utah, southeastern Idaho, and western Wyoming.

The award, given every two years, is based upon the highest percentage of tissue donation, which involves eyes, skin, and bones, to trauma centers in a regional service area. In addition to tissue donation, IDS also recognizes the outstanding performance and dedication of hospital staff members who are involved with donation education. This year, Davis Hospital qualified for the title due to its donation rates in both 2010 and 2011. In 2010, there were 38 eligible tissue donor referrals and 26 tissue donations, equating to a donation rate of 68 percent. In 2011, there were 50 eligible tissue donor referrals and 40 tissue donations, equating to a donation rate of 80 percent.

"We are so honored that Intermountain Donor Services recognized Davis Hospital for our commitment to donor education within our community," says Davis Hospital and Medical Center CEO Mike Jensen.

Intermountain Donor Services (IDS) is a nonprofit community service organization serving 2.7 million residents, 79 hospitals, and three transplant centers in Utah, southeastern Idaho, and western Wyoming. IDS provides organ and tissue procurement services to medical communities and educates healthcare professionals and the public on the importance of organ and tissue donation.

Saturday Kidney Walk includes a special 14-month-old

WDBJ TV 7 | David Caplan
THAXTON, Va.—Life hasn't been easy for Jay Jay Martin and his parents Dustin and Lesley so far, but they all deal with it.

A normal day for Jay Jay includes seven changes of his catheter and taking a daily regiment of antibiotics to keep him as healthy as possible.

The transplant will hopefully be in four or five years, but for now Jay Jay is as much like any other kid as he can be. He's obsessed with Sesame Street, he's got a smile that can light up a room and he has an impressive array of toys to play with.His family is keeping him healthy for that one day, that day where he will get a new kidney and live his life like any other young boy would.
The walk is tomorrow in Downtown Roanoke in the SunTrust Plaza.  Organizers say they hope to raise $45,000 for the Kidney Walk, but are just short of it as of Friday night.  But according to the website for the walk, Martin's family has raised the most money; right around $2,500.

Harrell still waiting for a heart – Transplant Awareness Day event Sunday

The Herald Sun | Dawn Baumgartner Vaughn
DURHAM – Ivan K. Harrell is still waiting for a heart transplant, but he’s not waiting to get back into the game. A tennis phenom in his youth and then a local tennis coach, Harrell’s health sidelined his tennis game.

Harrell has congestive heart failure, ventricular tachycardia, cardiomyopathy and atrial fibrillation among other health problems that began in 1993 at age 29. In 2010, he had surgery to implant a Left Ventricular Assist Device, or LVAD. The over-the-shoulder straps look like he’s wearing a backpack.

The LVAD surgery and recovery was much harder than what he’ll go through for a heart transplant at UNC, Harrell said. He still has a bag packed and shaves body hair like his arms to be ready for an IV when the time comes. He’ll arrive with hospital socks on already, he said.

In the meantime, Harrell is getting back into tennis. When he was feeling low, going to watch a tennis tournament and meeting players made a big difference in his outlook.

He can’t run around the court like he used to, but he can still hit and will start teaching tennis lessons at Global Scholars Academy, a charter school next to his church, Union Baptist. His first day teaching tennis is Oct. 8. He turns 50 the next day.

Read more: The Herald-Sun - Harrell still waiting for a heart – Transplant Awareness Day event Sunday
For information about Heart for Harrell, contact Allen at 919-824-9873 or email kdemarcusa@gmail.com. To learn about organ transplants, visit www.transplants.org.

Organ donation offers a second chance at life

CBS 42 Birmingham, AL

JASPER, Ala. (WIAT) - Recipients describe it as getting a second chance at life, however, in Alabama, more than 35-hundred people are on the waiting list for an organ transplant.

donation supporter Sandy Sides describes Savannah Faith Sides and Alexis as her two "daughters" although they look nothing alike.

Savannah Faith Sides savanna on the left passed away in 2007 ... but made it clear she wanted to be an organ donor if she died after seeing commercials on tv and talking to her mom and dad. They admit being reluctant to talk to their daughter about death at first, but it meant so much to her that they agreed to register her as a donor.

One month later Savannaha was in a car accident and her liver saved Alexis' life, today she is a healthy 7 year old .... and a close friend of the family.

In fact, Alexis served in Savanna's sister's wedding recently. The Sides family say Alexis will always have place in their life and encourage others to be organ donors. Find out more, go to www.alabamaorgancenter.org
Story source: 

CALIFORNIA TO INCLUDE IMPORTANT ORGAN & TISSUE DONATION EDUCATION IN SCHOOLS

Donate Life California
GOVERNOR BROWN SIGNS AB 1967


SACRAMENTO, CA, September 26, 2012 – Governor Jerry Brown on Sept. 26 signed Assembly Bill 1967, a bill introduced by the Speaker of the State Assembly John Pérez (D-Los Angeles), that will ensure information on organ and tissue donation is taught in health and science classes statewide.

“I am very pleased the Governor has signed my legislation which will encourage young people to choose to become organ donors by ensuring they have access to the information to help them make an informed decision,” said Pérez. “More than 20,000 Californians are currently awaiting an organ to become available through donation, and by ensuring students have information on how to sign up, we can help ensure that these Californians can have a new lease on life that comes with an organ transplant.”

As with drivers in other states, California teenagers obtaining their first driver licenses are presented with the question, “Do you wish to register to be an organ and tissue donor?” According to Donate Life California (DLC) data, young drivers (between the ages of 15 and 19) have been less likely to register as organ and tissue donors than those aged 20 to 49. Clerks at the California Department of Motor Vehicles (DMV) report uncertainty about the donation process among teenagers and their parents when it comes to the donation question on the driver license application.

In keeping with the goal of preparing students to make informed donation decisions, DLC sponsored Assembly Bill (AB) 1967 (John A. Pérez).  This bill, which passed the State Assembly and Senate with strong bi-partisan support, requires the Instructional Quality Commission and State Board to ensure that the health and science curriculum frameworks adopted in the course of the next submission cycle include the subject of organ procurement and tissue donation as appropriate.

“We greatly appreciate the tremendous support we have received from the Governor, the Speaker, the Legislature and the Department of Education for this vital legislation. Updating California’s health and science frameworks will give teenagers accurate information so they can make a confident decision about signing up to save lives on the Donate Life Registry,” said Donate Life California President Lisa Stocks. “We also hope that students will help us educate their parents and grandparents about the important Gift of Life possible from organ and tissue donation.”

California has the largest state donor registry in the country with more than nine million designated donors.  But it also has the largest waiting list with approximately 20,000 transplant candidates.  Californians lag behind most of the rest of the states when offered the opportunity to register. Of the 26 million licensed drivers and ID holders, only 36 percent have signed up to be organ and tissue donors (as compared to the 43% average for state registries nationwide).  In 2011, only 26.9 percent of California DMV customers checked ‘Yes’ on their forms to register as donors, which places our state seventh from the bottom.

Despite the state’s lower donor registration rates, the DLC Organ and Tissue Donor Registry plays an increasingly essential role in saving and healing Californians in need of organ and tissue transplants.  In 2011, one in four recovered organ donors and one in three recovered tissue donors were registered donors. Since the on-line registry was founded in April 2005, donors who had registered prior to death conservatively have saved and healed more than 100,000 lives through organ and tissue donation.

“It is a tragedy that nearly one third of individuals currently on the waiting list will fail to receive their transplant in time. I am hopeful that this bill will save more lives,” said Speaker Pérez.

About Donate Life California
Donate Life California is a nonprofit, state-authorized organ and tissue donor registry, administered by California’s four nonprofit, federally designated organ procurement organizations, each responsible for facilitating the donation process in the state: California Transplant Donor Network, Lifesharing, OneLegacy and Sierra Donor Services. As a state-authorized public service, the registry assures that all personal information is kept confidential and stored in a secure database, accessible only to authorized organ and tissue recovery personnel.

For more information about the Donate Life California Organ and Tissue Donor Registry and how donation can save and improve lives, visit www.donateLIFEcalifornia.org or in Spanish at www.doneVIDAcalifornia.org.


Bear, with me: Bowie boys basketball coach gives dad a second chance with kidney transplant

El Paso Times | Felix Chavez
Luis Celaya points to the signature on a special pillow of the doctor who performed his kidney transplant while sitting in the family living room with his son, Bowie High School boys basketball coach Daniel Celaya, who donated his kidney to his father. (Vanessa Monsisvais / El Paso Times)

The decision was never in doubt for Daniel Celaya.

His father, Luis Celaya, was in need of a kidney transplant. Daniel Celaya was a match.

Luis Celaya is a loving, kind and supportive father who would do anything for his children. It seems his children have learned those values. Daniel says he was just doing something his father would have done.

"I knew if I could donate my kidney and everything was set physically, there would be no hesitation on my part," said Daniel Celaya, the boys basketball coach at Bowie High School. "It took some time for all of this to happen. I had to lose weight and there were some hiccups along the way. Everything had to be just perfect."

It was yet another step in a long, emotional journey for the Celaya family, which had seen the patriarch of the family battle through pain for years. The family bonded and kept their faith that things would work out.

On Sept. 4, father and son flew to San Antonio and on Sept. 6 at the University Transplant Center, the surgery took place.
Read more

Donating organs for cash sparks controversy

Fox News | Trevor Stokes
Would you donate a kidney for cash?

In a new survey from Canada, 45 percent of people said that money is an acceptable incentive for organ donations from living donors, while 70 percent of survey respondents said that cash is an acceptable enticement for people to donate their organs after death.

"We do need to consider a system where we compensate people for their giving," said study researcher Dr. Braden Manns, professor of nephrology at the University of Calgary in Canada.

The idea of paying organ donors is not new. "We have more patients on dialysis, but we don't have more donors; so we're looking at other ways to motivate people to donate," Manns said.

However, while the survey found that many people's think cash incentives are acceptable, people's answers may be different than their opinions when faced with the grueling realities of donations.

"Surveys are quick measures of people's feelings that may be relatively uninformed," said Peter H. Schwartz, a faculty investigator at the Indiana University Center for Bioethics who had no role in the new study.

Wall Dedicated to Organ Donors

The Port Arthur News | Josh Brown
Photo: Morgan Jones/ The News Joan Sheehan dedicates the Hero for Life wall to organ donors and family members on Wednesday at The Medical Center of Southeast Texas.

The main lobby in the Medical Center of Southeast Texas filled with employees, families, community members and the Nederland High School choir to dedicated a wall to organ donors.

In works for months, the “Heroes for Life” dedication serves to recognize and remember people who saved the lives of others after their time had passed.

The Noyola family became a main proponent of the dedication after Tyler, a 23-year-old Port Neches-Groves graduate, passed away 17 months ago. Greg Noyola, Tyler’s father, said he hopes it will help promote organ donation.

Craigslist kidney donation sparks unique friendship in Palm Beach County

WPTV News Channel 5 | Dan Corcoran
Photo: Selina HodgePhotographer: Dan Corcoran/WPTV

PALM BEACH COUNTY, Fla. - A Palm Beach County woman's online plea lead to a life-saving kidney transplant. Now, ten months after surgery, the organ donor and organ recipient have built an unbreakable bond.
It was on Craigslist that c posted her plea. The headline on her listing read 'Young Female Needs Kidney'. She received that kidney - and a whole lot more - after another young woman answered Selina's call for help.
You could call it a 'side effect' of a life-changing medical procedure. Under the knife together for an organ transplant was recipient Selina Hodge and donor Stephanie Grant. They were strangers who suddenly became connected. 
"It's very important that we keep our friendship no matter what," said Selina. 

That friendship began with Selina's unlikely posting on Craigslist. She was dealing with kidney failure, and in turn, years of dialysis. She needed help. She needed an organ donor.
Read more

Following Tragedy, Susco 8K Race Provides Hope

The Connection Newspaper | Amiee Freeman
Photo: Former Olympian Alan Webb, number 292, participated in the Susco 8K. Tim Susco and Webb were teammates on the South Lakes cross country team. Webb completed the race in 24:19. Photo by Amiee Freeman.

Many of the 650 participants in the Brain Aneurysm Race for Awareness, held in honor of Tim Susco, a 1999 South Lakes graduate who died suddenly in 2007 at the age of 25 from a brain aneurysm, participated in the event in memory of someone who had passed away following a brain aneurysm.

Members of Team Barb were there in honor of Barbara Chirles, who passed away in 2008 at the age of 35. Barbara’s husband, Brian Chirles of Reston, said that shortly after Barbara’s death, he was looking for a way to remember his wife and perhaps do a bit of good, when he came across the Susco 8K. He and Barbara’s mother, Debby James of Lorton, along with a group of friends and family have participated in the Susco 8K every year. “This is a way to help keep Barb’s memory alive,” said Chirles.

Joan Olinger of Reston and Lisa Novick of Alexandria were classmates of Tim’s. This was their third year participating in the race, “although I’m not much of a runner,” said Olinger. “It’s a good way to keep Tim’s memory alive,” she added.

The 30 members of Team Alive, the majority of whom were members of the military, were there to support a friend whose mother had passed away from a brain aneurysm.

Organ donation hopefuls press for greater participation in Wayne County

The Detroit News | Tony Briscoe
Ten-year-old Aiyana Wesley needs a heart.

Wesley received a transplant when she was 3, but doctors shocked her mother, Chantel, when they told her that she needed another as her heart could fail.

"Doctors said it could be 10 days or it could be 10 years," Chantel Wesley said.

Aiyana, one of more than 3,000 Michiganians waiting on a transplant, is encouraging more Wayne County residents to sign up to be on the organ and tissue donor registry. One-third of all Michigan organ transplant recipients are from Wayne County, while only one-fourth of donors reside there.

Gift of Life Michigan, the state's organ and tissue recovery program, and Wayne County announced a new PSA campaign Thursday that they hope will reduce that disparity.

The project, called "Waiting to Live," will feature several Wayne County residents, including Aiyana, who could benefit from transplants.

"It's just not about the numbers; it's really about caring and real people," said Wayne County Executive Robert Ficano. "I think we don't realize that but it is something that is so precious because you're touching so many people: the family, friends and those that are affected."

Meet the organ transplant team – video

The Guardian-UK | The Newton Channel
The recently opened Institute of Transplantation in Newcastle upon Tyne is the first of its kind in the UK – a 'one-stop shop' offering all the services transplant patients will need from finding a suitable donor through surgery to aftercare. In this film, members of the team explain their role, including the transplant coordinator, the consultant physician, clinical scientist and surgeon. At the centre of it all, of course, are the patients. A woman with diabetes about to receive a donated kidney and a man whose life was saved by a liver transplant tell their stories.

20,000 U.S. Hispanics awaiting organ transplants

VOXXI
The number of Latino families agreeing to donate organs at the death of a relative in a hospital increased 75 percent last year—a record number and a dramatic hike from 40-60 percent a decade ago. (Shutterstock photo)

Paulina Guevara of East Los Angeles thought her fate would soon be that of her father who died young because of a hereditary kidney disease.

Without a new kidney, says 21-year-old Guevara who was on a long list of people awaiting organ transplants, she would surely have died.

“I was lucky,” says Guevara. “A stranger gave me a healthy life and for that I will forever will be grateful.”

Today, Guevara’s story is commonplace among Hispanics in America where more than 20,000 Latinos are currently awaiting an organ transplant.

They are people like Carlos Aguilar, 20, of Hillsboro, Oregon, who has been on dialysis for several years—but who recently learned that he will receive a kidney transplant next month.

Officials, though, say Latinos are among the 18 Americans of all ethnicities that die each day—more than 6,000 annually—because of the shortage of qualified matches.

It is a crisis, they say, caused by misconceptions and cultural taboos.

Thursday, September 27, 2012

SHARE YOUR ‘JOURNEY OF THE HEART’ WITH A ROSE IN THE DONATE LIFE FLOAT’S DEDICATION GARDEN

Donate Life Float


To date, 86 dedications from 22 states and the District of Columbia have been made for this year’s Donate Life Dedication Garden.

Each $30 charitable contribution in memory, honor or support of a loved one includes a rose with your message in the Donate Life float’s Dedication Garden; your personalized dedication posted on the float website; a thank you card acknowledging your dedication; a personalized digital certificate emailed to you; and the joy of knowing you are helping the Donate Life float inspire the world to be organ, eye and tissue donors! When making your dedication you also have the option of sending the card and digital certificate as a gift. Dedicate your rose today:

Click here to order your dedication

Following is a selection of this year’s dedications to date:

· Missouri: In Memory of Brandon Hsueh. Brandon came to us on a sunny day 14 years ago. He left us on a sunny day 10 months ago. He could brighten any place and bring smiles to anyone. He was and always will be our dearest son and brother.
· Connecticut: In Memory of Tyler Alexander Brozowski. Dearest Tyler: May your passing not be in vain and may your memory, heart and spirit live on in those we help in your name. You are in my soul always and forever. Love, Mom
· California: In Honor of Brian Davis. You're the best brother. You saved my life and that is something I will never be able to repay, but I want you to know that I will always love you and brag that I have the best brother alive.
· Texas: In Memory of David H. Ritz. To the Love of My Life: Dave, I miss you so very much. I am counting the months and days until I can join you in Heaven. All My Love Forever, Becky
· Illinois: In Memory of Donna S. Payne. Loved forever, missed every day.
· California: In Support of Cameron Fischer. Precious son, your courage in handling life's challenges is amazing. You are an inspiration. Your beautiful spirit continues to grow & your gratitude for life is so much more than most will ever know.
· Arkansas: In Memory of Elzie Cain. I love you to the moon & back. Love, Mom
· South Dakota: In Memory of Ryan Anthony Cressman. Thank you Ryan for giving the gift of life to many others. Well done.

Read more dedications HERE
{Register to be an organ,eye and tissue donor. To learn how, www.donatelife.net or www.organdonor.gov}

Governor Jerry Brown signed AB 1967 (Perez)




Dear Donate Life California Friends and Supporters,

We are very pleased to announce that Governor Jerry Brown signed AB 1967 (Perez). This new law will ensure that information on organ and tissue donation is taught in health and science classes statewide.

As you know, the signing of this bill culminates years of advocacy on this important issue by Donate Life California and the transplant community.

We are truly grateful for your steadfast and loyal support in this effort. Collectively, you submitted over 200 letters to the Governor and Members of the Legislature supporting this bill. Many of you took time away from work and personal commitments to come to Sacramento and testify in support of the bill. Your advocacy and active participation in the legislative process was invaluable in the ultimate success of AB 1967.

Today, thanks to Governor Brown, Assembly Speaker John Perez, and each of you, over 20,000 Californians on the organ transplant waiting list have renewed hope for a lifesaving miracle. Together, we have taken a big step toward making organ and tissue donation routinely embraced in California.

Sincerely,

Charlene Zettel
Chief Executive Officer
Donate Life California


{Register to be an organ,eye and tissue donor. To learn how, www.donatelife.net or www.organdonor.gov}

14 donor organs save 11 lives over Yom Kippur

Jerusalem Post | By JUDY SIEGEL-ITZKOVICH


PHOTO: COURTESY RABIN MEDICAL CENTER
Organ transplant coordinators and transplant teams work around the clock despite the fast day.

The lives of 11 patients were saved over the eve of Yom Kippur and the fast day itself as they received 14 transplant organs from three people who suffered lower-brain death.

Organ transplant coordinators and transplant teams worked around the clock despite the fast day and the logistical difficulties when all but acute medical care comes to a halt.

The families of two patients who suffered fatal strokes gave permission at Haifa’s Rambam Medical Center to donate organs, while the third donor died of respiratory problems and a stroke at Rabin Medical Center-Beilinson Campus in Petah Tikva three hours before Yom Kippur began.

At Rambam, a 32-year-old woman and a 44-year-old man received kidneys because they were registered with the ADI transplant registry as potential donors and so received a higher place in the queue. At Hadassah University Medical Center in Jerusalem’s Ein Kerem, a 54- year-old woman received a liver.

Read more
{Register to be an organ,eye and tissue donor. To learn how, www.donatelife.net or www.organdonor.gov}

Family plans walk to remember 12-year-old daughter who died of aneurysm

Michigan Live | Megan Hart
Malauri Wilkinson, 12, poses with her Samoyed puppy Sully in this undated photo. Malauri suffered an aneurysm Aug. 2 and her parents made the decision to donate her organs. A walk in her memory is planned for Oct. 6 in Grand Haven.

MUSKEGON COUNTY, MI – Malauri Wilkinson loved sports and animals, tie-dyed T-shirts and art.

The 12-year-old Muskegon girl suffered an aneurysm Aug. 2 while walking her dog. Her parents made the decision to share her life by donating her organs.

Now, they want to share her passions while raising awareness about organ donation.Malauri’s family and friends are meeting at the waterfront stadium in Grand Haven for a walk in her memory at 6 p.m. Oct. 6. People who would like to participate are encouraged to bring their dogs to walk or a balloon to release at the end of the walk to the pier and back.
Read more

Wallington youngster named 'Artist of the Year' by Kidney Fund

North Jersey | Katherine Milsop
Photo: Katherine Milsop. Amelia Rowniewski (right) and her sister, Julia, at their home in Wallington last week. Amelia has been named the American Kidney Fund's 'Artist of the Year.'

Wallington's Amelia Rowniewski, 7, will be honored at the American Kidney Fund's (AKF) annual national gala, The Hope Affair, in October as "Artist of the Year" in Washington, D.C.

Earlier this year, Rowniewski, the recipient of a kidney transplant, learned that her drawing will be the cover art on the 2013 American Kidney Fund Calendar.

When she was 2, she developed complications with pneumonia that led to a disorder called hemolytic-uremic syndrome (HUS) which causes renal failure.

Kin speak out on organ-harvest suit

New York Post |  FRANK ROSARIO and LORENA MONGELLI
Photo James Messerschmidt. TRAGIC: Charles Cheng yesterday holds a photo of son Clifford, who was named in a lawsuit as a hospital patient taken off life support too soon.

Relatives of two organ donors who were taken off life support at city hospitals said yesterday they believe their loved ones could not have been saved — and they were happy to help others live.

The families of Clifford Cheng and Carolyn Kelly insist they were not pressured by the New York Organ Donor Network to pull the plug, although their cases were cited in a lawsuit filed against the group.

“There was no sign that he was alive. He was completely brain-dead,” said Norman Cheng, whose brother died at Kings County Hospital in October after suffering a seizure and choking on his own vomit. “Since he lost his life, why not save someone else’s life?”

The lawsuit — filed by former network transplant coordinator Patrick McMahon — charged that the network pressured doctors to declare patients brain-dead so their organs could be transplanted.

McMahon, 50, also claimed network staffers were trained by marketing gurus how to pressure grieving families to sign consent forms to allow the body parts to be harvested.