Wednesday, October 31, 2012

A tale of two transplants

Editor's note: In the Human Factor, we profile survivors who have overcome the odds. Confronting a life obstacle – injury, illness or other hardship – they tapped their inner strength and found resilience they didn't know they possessed. Two years ago, we profiled singer Charity Tillemann-Dick, whose lungs were failing due to pulmonary hypertension. But she survived thanks to a double-lung transplant. This week Dr. Sanjay Gupta reports on how this soprano from Denver, Colorado, was facing death a second time because her lungs were failing again. Here, Tillemann-Dick writes about her struggle

It was the worst of times. I was afraid to go to sleep, fearing the next breath just wouldn’t come if I didn’t force my diaphragm down. The muscle is supposed to work involuntarily, but I think my diaphragm forgot that fact.

I had tubes coming out of my arms, wrists, chest and anywhere else you might be able to fit a tube. My body ached. My head pounded. I was miserable. Still, all I wanted was to live. I wanted to wake up and see my husband. I wanted to sit down at a meal and eat with my family. I wanted to stay up late gossiping with my mother and my sisters. I wanted to go outside and take a walk. I wanted to continue my life-long dream of being an opera singer.

I was waiting at The Cleveland Clinic for a lung transplant. But I wasn't waiting for my first. One year earlier, my body began to reject the first set of transplanted lungs and so I waited behind others, hoping a match would come but knowing it wasn’t a sure thing -– it wasn’t even likely.

In the same ward of the hospital was Ashley Dias. Like me, she had one transplant which, ultimately was rejected by her body. As a 20-something-year-old, Ashley waited, hoping for a match, hoping for her life back. Like, my mother, her mother waited with her in Cleveland, looking forward to the day when they would go back to Boston together.
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Happy Halloween!

Photo Credit:  Gift of Life Donor Program

Are you a donor?

Inside Halton | Michael Howie
Are you a donor?. Keith Childerhose with wife Sarah Taylor.
NORTH OAKVILLE TODAY – Oakville’s Keith Childerhose is not a smoker. He played hockey as a kid and, as an adult, continued to rollerblade, ride bikes and stay active. Sixteen years ago, at the age of 25, he noticed he was out of breath more often. He had a cough that wouldn’t go away.

Two years of tests, specialists and misdiagnosed opinions finally led Childerhose to the truth: he had diffuse panbrochiolitis.

The disease is a severe, progressive form of bronchiolitis, most often found in men of Asian decent. That Childerhose, a caucasion, was diagnosed with it made scientific journal headlines.

For the next dozen years, Childerhose, along with his wife Sarah Taylor and their children, was able to live a relatively ‘normal’ lifestyle.

“It was last winter that did him in,” said Sarah. “He went from reasonably health to sick. He was exhausted. We run a handyman business: he was still going out on jobs. But when he’d get to a clients house and go up a flight of stairs he had to rest for 10 minutes. It became evident he had worsened.”

Trot your dogs Registration still available for runners, dog costume contest

Weatherford Democrat | Brian Smith
The fourth annual Hot Dog Trot, which is sponsored each year by Wright Chiropractic, switched times this year. Typically held in August, the race has been moved to this weekend — making for a much cooler Hot Dog Trot. This year's event benefits The Society for Organ Donor Awareness.DEMOCRAT FILE PHOTO

PARKER COUNTY — There’s still time to register and take part in Saturday’s annual Hot Dog Trot.

The fourth annual event, sponsored by Wright Chiropractic, takes place at Parker County Physical Therapy, 879 Eureka in Weatherford. Events include a 1K and 5K run/walk, costume contests and more.

The event benefits The Society for Organ Donor Awareness, an organization which wants to spread the word about the need for organ donors.

Those who want to take part can register online before 11:59 p.m. Nov. 1, drop off registration forms at Wright Chiropractic, 702 Eureka, or register beginning at 7 a.m. Saturday at the race site. Registration runs until 8:15 a.m. The 1K race begins at 8 a.m. with the 5K starting at 8:30 a.m.

Organ Donation Scotland unveils new website created by Story

The Drum 

Organ Donation Scotland has revealed its new web presence designed and implemented by Story.

The Scottish Government initiative aims to get the Scottish public to ‘think’, ‘act’ and ‘talk’ about organ donation. The website launch follows the release of a new TV advert for the campaign, created by The Leith Agency. The site takes the visitor on a journey, encouraging people to find out more about the organ donation process and why it is so important.

The website has a clean, contemporary look with a wall of photographs - representing those already registered - dominating the homepage. The audience are invited to become part of the expanding network with visitors encouraged to share their wishes and their reasons for registering on social networking sites to further continue the discussion into the mainstream.

Gail Lyall, spokesperson for Organ Donation Scotland, comments: “Scotland currently leads on registrations in the UK but there are still significant numbers of Scottish people, not opposed to organ donation, who have not yet registered. It is important that we communicate how important it is to do so.

“Story has made the website, registration process and call to action engaging, educational yet very simple.”

Gift of Hope earns top award for organ donation efforts

The Rock River Times
ITASCA, Ill. — The U.S. Department of Health and Human Services (HHS) has recognized Gift of Hope as one of just eight “high-performing” organ procurement organizations (OPOs) in the nation that have met or exceeded national best practice benchmarks for helping to increase the availability of transplantable organs. As a result, Gift of Hope received a “Gold Medal of Honor “ award from HHS during a special ceremony Oct. 4.

Since 2003, Gift of Hope and the nation’s other 57 OPOs have been working with hospitals and transplant centers to achieve the following three critical goals identified as key factors in driving the success of organ transplantation:

• Increase success rates in converting eligible donors into actual donors;

• Increase the number of organs transplanted from each donor; and

• Increase the number of donations after cardiac death as a percentage of all donors.

“Being recognized by HHS as a top-performing OPO indicates that Gift of Hope, in collaboration with our hospital and transplant center partners, is achieving these goals and providing lifesaving organs for the people we serve,” said Jerry Anderson, president/CEO of Gift of Hope.

OPOs’ success at converting eligible donors to actual donations is the principal measure for how effectively they are collaborating with their partnering hospitals, Anderson added.

“The current benchmark for optimum performance is a 75 percent conversion rate,” he said. “Through effective teamwork between Gift of Hope and our partnering hospitals, we exceeded that standard with a conversion rate of 80 percent over the last two years.”

Gift of Life memorial at University of Kentucky hospital creates ‘lasting tribute’ to organ and tissue donors

Ky Forward | Allison Perry, University of Kentucky
Photo: The Gift of Life wall is located inside UK Chandler Hospital Pavilion A, adjacent to the Gill Heart Institute. (Photo from UKNow)

A new memorial Gift of Life wall designed to honor organ and tissue donors has been unveiled at the University of Kentucky Chandler Hospital.

The unveiling took place during a special ceremony that also included reading aloud the names of 240 donors listed on the wall.

“Creating a lasting tribute to those who have given hope and new life through donation has been a dream of UK and KODA (Kentucky Organ Donor Affiliates at UK HealthCare) for many years,” said Donna Slone, client services coordinator for KODA. “There have been nearly 1,000 donors at UK since transplantation began here in 1964. Some have chosen to remain anonymous, but we hope other families of UK donors that we did not reach this year will see the Gift of Life wall and allow us to add those names in the future.”

More than 500 donor family members and guests on hand for the unveiling. Michelle Landers, whose 17-year-old daughter, Hannah, became an organ donor in 2008, was involved in the memorial planning and shared her daughter’s story.

“I am very honored to have been a part of the planning committee for the donor memorial wall and to have been asked to share Hannah’s story,” Landers said. “Our family continues to be very proud of her decision to be an organ donor, and we are so grateful that UK and KODA have chosen to publicly honor her and the many other organ and tissue donors in such a beautiful way.”

Get on organ donation bandwagon

The Toronto Star

The fact that only 22 per cent of eligible Ontarians have registered their consent to organ and tissue donation is very disconcerting and disturbing. And in some of the province’s biggest communities, the rates are even lower.

In Ontario, more than 1,500 patients are on the waiting list for an organ donation; of those, 72 per cent need a kidney.

At the end of 2011 according to the Canadian Institute for Health Information, across the country there were 23,188 patients on dialysis. Of these, 18,244 were on institution-based hemodialysis. The cost to keep one patient on hemodialysis is $70,000 a year, which works out to over $1 billion annually nationally. A huge cost to our health care system, especially at a time when the system is so financially challenged.

According to Trillium Gift of Life Network, the one-time cost for a kidney transplant is $23,000 plus $6,000 a year to maintain the transplant. Over a five-year period, a transplant therefore costs almost $250,000 less per patient than dialysis, while in the process improving the quality of life. Need more be said.
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Tuesday, October 30, 2012

Mom donates kidney to daughter

Herald-Citizen | Amye Wright

Photo: Charmin Dishman lovingly embraces her daughter, Heather. Heather was born with a genetic defect resulting in the need for a recent kidney transplant. Charmin was the donor for the kidney.

COOKEVILLE — They say there’s nothing stronger or more intense than the love a mother has for her child.

That love drove Charmin Dishman to do what ever she could to save her child’s life.

Her daughter, Heather Dishman, 17, was born with a serious genetic disorder called Chromosome 21q Deletion Syndrome. Heather also has endured a bilateral cleft lip and cleft palate, bladder dysplasia, end-stage kidney disease and is legally deaf.

It all began in 1994, when Charmin was approximately four months pregnant with Heather.

“At four months, I woke up bleeding and hemorrhaging,” Charmin explained. “I went to the hospital ... and that’s when they started doing testing and discovered she (Heather) had a rare genetic disorder and that she wasn’t going to live outside utero.”

Charmin then had to go to Vanderbilt University Medical Center twice a week for a few months for tests and check-ups.
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Organ donor changes lives of 2 friends

CBC News | Nova Scotia
Nova Scotia women obtained kidneys from the same donor

Photo: Lisa Walsh-Kirk was on dialysis for five years before her kidney transplant last week. (CBC)

Two young friends in Halifax have forged an even stronger bond after their lives were saved by the same organ donor recently.

Lisa Walsh-Kirk, 24, had been waiting for five years for a kidney donation, spending three days a week on dialysis. Finally, her pager went off and she was told to report to the hospital the next morning.

She said she could hardly believe her life-changing moment had finally arrived.

"It was shocking," she said. "It didn't really set in until I was at the hospital the next day."

But Walsh-Kirk was in for a second surprise. As she walked into the hospital, she ran into one of her best friends, who was also on the waiting list for a kidney transplant.
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LIFE SAVER: For NAVAIR Employee, Kidney Donation Marks a Personal Milestone

The Bay Net | NAVAIR

Photo: Helen Wernecke, General Training department head for the Naval Aviation Training Systems Program Office (PMA-205) at Naval Air Station Patuxent River, Md., and church-friend Michael Pipkin, recently celebrated their five-year kidney transplant anniversary. Wernecke donated one of her kidneys to Pipkin on Oct. 3, 2007. (Courtesy photo)

An aviation training manager, Helen Wernecke spends most of her days tracking major acquisition milestones for the Navy.

In October, Wernecke marked another key milestone, not measured with databases and engineering metrics, but with grace.

The General Training department head for the Naval Aviation Training Systems Program Office (PMA-205) responded to an email in May 2007, and with the click of a mouse, triggered a chain of events that led her to donate a kidney to fellow church member Michael Pipkin.

More than five years later, Wernecke and Pipkin celebrated the journey that began with an email request from his wife. In the email, Dawn Pipkin shared that her husband, born with only one kidney, needed a transplant. She asked friends and family with type O blood to consider contacting the Washington Hospital Center to be screened as donors.

Five minutes later, Wernecke forwarded the email to her husband, Ray Wernecke, telling him she was interested in becoming a donor.

“As soon as I read [the email], I thought ‘I’m type O blood,’” Wernecke said. “‘How can I turn my back on this man without even giving it some sort of due diligence?’”
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HHS gives Bronze Award to Lafayette General Medical Center for Organ Donation and Transplantation

Lafayette General Medical Center

The Department of Health and Human Services (HHS) announced awards for hospitals, organ procurement organizations and transplant programs across the nation for their success in increasing the number of organs available and transplanted. Lafayette General Medical Center was given a Bronze Award for achieving a 75 percent or greater collaborative conversion rate.

"Over the years, countless lives have been saved thanks to organ donation,” says LGMC President and CEO David L. Callecod, FACHE. "I can’t stress how important being an organ and tissue donor is, and how vital it is to Lafayette General’s mission to restore, maintain and improve health.”

"I applaud these award winners for bringing the ‘gift of life’ to so many,” says HHS Assistant Secretary for Health Howard K. Koh, M.D. "Their tireless efforts to make improvements in the donation and transplantation field will continue to help save lives.”

The Health Resources and Services Administration (HRSA) at HHS supports the Donation and Transplantation Community of Practice, which brings together donation and transplantation professionals, hospital staff and other professionals involved in the donation process to identify and share best practices.

HRSA is also in the midst of a national Hospital Organ Donation Campaign, which enlists the help of hospitals across the country in increasing the number of people who enroll as future donors on their state donor registry.
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Shands re-opens pancreas transplant program

The Gainesville Sun | Kristine Crane
The pancreas transplant program at Shands at the University of Florida re-opened last week, after a 14-month closure.

In August 2011, the program closed when three surgeons left unexpectedly. Two new surgeons joined the faculty this summer, and the United Network for Organ Sharing approved the program’s reactivation on Oct. 22.

Dr. Jeffrey Fair, chief of the department of surgery’s division of transplantation, said the “perfect storm of the loss of personnel ... is getting behind us now in the rearview mirror.”

Dr. Kenneth Andreoni, the lead surgeon on the pancreas transplant team, and Dr. Brendan Boland, an assistant professor, are the new doctors on the pancreas team.

Fair explained that being able to do pancreas transplants again is important because kidney and pancreas transplants are often done simultaneously in type I diabetes patients.
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Better Use of Donated Organs Proposed By Kidney Transplant Committee

Health AIM

The governance committee that oversees kidney transplants in the United States proposed several changes that are aimed at improving the use of the country’s supply of deceased-donor organs. There are more than 93,000 people currently waiting for a kidney transplant. Many people waiting for a kidney transplant must have dialysis three times a week. More than 14,000 kidneys are recovered from dead donors each year. 16,813 patients received transplants last year while 4,720 patients on the list died.

A new index for better estimating the quality of the donor kidneys is central to the plan. The top 20% of kidneys would be directed to candidates expected to survive the longest after a transplant. This would be a considerable change from the current wait-list system, which operates on a first-come-first-served basis. The plan’s creators estimated that the recommended changes would produce an additional 8,380 years of life from one year of transplants.

The plan was issued by the kidney transplantation committee of the United Network for Organ Sharing. The network manages the nation’s Organ Procurement and Transplantation Network, under a federal contract with the Department of Health and Human Services, and is based in Richmond, Virginia. A previously considered plan that would have matched many kidneys to recipients by age was abandoned after federal officials warned that it would violate age discrimination laws.
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Family of Dead Israeli Youngster Donates Boys Organs

Shalom Life | David Shear
Yotam's Family
Parts of Yotam Melamed will live on in five transplant recipients

Just over two weeks after the death of a 16-year-old Israeli High School student whose family donated his organs to save the lives of six transplant recipients, another tragic death of an Israeli teen has saved more Israeli lives.

Yotam Melamed, a young boy who lost his balance and fell from his skateboard last week, suffered severe, irreversible brain damage as a result of the fall, before passing away.

As was the case with the 16-year-old, Yotam’s unfortunate death will benefit five others whose lives were saved over the weekend when six of the boy’s organs were donated by his family.

After the fate of their beloved son was confirmed by doctors, Yotam’s family decided to donate his organs at Tel Aviv’s Sourasky Medical Center, while the transplants were performed at the Rabin Medical Center-Beilinson Campus.

Yotam’s lungs were donated to two men, one in his 50s, the other in his 60s, while his liver will live on in a 57-year-old man, while one of his kidneys and his pancreas were transplanted into a 36-year-old woman, with his other kidney going to a 23-year-old man.

Area hospitals achieve Governor’s Award for Life

The Intermountain

The Center for Organ Recovery & Education, a federally designated not-for-profit organ procurement organization serving Pennsylvania, West Virginia and parts of New York, recently recognized 19 West Virginia-based hospitals with the West Virginia Governor's Award for Life 2012.

The award recognizes area hospitals that have been successful in supporting organ, tissue and cornea donation within their own health care facilities and have achieved increased donation rates as a result.

Leaders from the following hospitals were recognized by Susan Stuart, president and CEO of CORE; and Joe Letnaunchyn, president and CEO of the West Virginia Hospital Association, who presided over an awards presentation that took place during West Virginia Hospital Association's annual meeting Sept. 27 at the Greenbrier Resort in White Sulphur Springs: Davis Memorial Hospital in Elkins; St. Joseph's Hospital in Buckhannon; Bluefield Regional Medical Center in Bluefield; CAMC General Hospital in Charleston; CAMC Memorial Hospital in Charleston; CAMC Teays Valley Hospital in Hurricane; CAMC Women's and Children's Hospital in Charleston; Grafton City Hospital; Logan Regional Medical Center; Mon General Hospital in Morgantown; Ohio Valley Medical Center in Wheeling; Pleasant Valley Hospital in Point Pleasant; Princeton Community Hospital; Raleigh General Hospital in Beckley; Thomas Memorial Hospital in South Charleston; United Hospital Center in Bridgeport; Weirton Medical Center; Wheeling Hospital; and WVU Hospitals in Morgantown.

New pediatric heart failure guidelines a first in Canada

Medical Express
The Canadian Cardiovascular Society is the first in Canada to issue guidelines aimed at helping primary care and emergency physicians, as well as specialists, recognize and manage heart failure in children. The guidelines were released today at the Canadian Cardiovascular Congress.

Pediatric heart failure is often fatal and occurs in about 3,000 children annually in North America. Worldwide, the problem is far greater and the causes are diverse. To date there has been little guidance to assist practitioners who deal with children with heart failure. "The previous guidelines, produced in 2004 by the international Society for Heart and Lung Transplantation, are now dated and were not designed for front-line practitioners who deal with these children at the first encounter," says Dr. Paul F. Kantor, who chaired the guidelines and is head of pediatric cardiology at the Stollery Children's Hospital, University of Alberta. "Providing guidance in this area may help to solve one of the biggest challenges we have: that children with heart failure are usually not recognized early and treated effectively. When heart failure presents late in the disease course, it is more dangerous and can be fatal." Heart failure in children is far more likely to cause death than cancer, but the problem is not nearly as well recognized, says Dr. Kantor.
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Speaking from the heart Event targets No. 1 killer of women

The Times Herald-Record | Fina Bruce
Photo: “I can go hiking with my friends, I can climb waterfalls, I can be the person that I want to be,” says heart-transplant recipient Brianna Barker, 15, of Washingtonville. “My old heart was holding me back, and now I have nothing holding me back. I can do everything that I want to do.” Barker shared her story at the recent American Heart Association Go Red for Women Luncheon in Central Valley.DAVID DOONAN/For the Times Herald-Record

It's not just a man's disease. It kills 421,000 women per year — almost one every minute — more than all cancers combined. And most women have no idea that it's their No. 1 killer.

It is heart disease, and according to cardiologist Dr. Bonnie V. Seecharran, cardiovascular disease is "eminently preventable" by lifestyle choices involving diet, exercise and not smoking.

Seecharran, director of the cardiac rehabilitation program at Orange Regional Medical Center, and who practices at Middletown Medical, presented information and took questions at the American Heart Association's Oct. 24 Go Red for Women Luncheon at Falkirk Estate and Country Club in Central Valley.

Women's symptoms differ

The session highlighted the differences between heart attacks in women and men, risk factors and prevention. Giving an overview of cholesterol — understanding what the numbers mean and the "good" and "bad" types — was Dr. Amala Chirumamilla of Metropolitan Cardiology Consultants, Bon Secours Medical Group.

Donor Alliance Honored with Three Awards for Outstanding Communications Surrounding Organ, Eye and Tissue Donation

PR Newswire
Organ procurement organization celebrated by Colorado Healthcare Communicators with awards for Community Relations, Writing, Large Event

DENVER, Oct. 29, 2012 /PRNewswire/ -- Donor Alliance, the federally-designated, non-profit organ procurement organization and American Association of Tissue Banks (AATB) accredited tissue bank serving Colorado and most of Wyoming today announced its receipt of three Gold Leaf Awards from the Colorado Healthcare Communicators (CHC). The annual awards program recognizes excellence in healthcare communication by local organizations and professionals.

Donor Alliance received three honors from the 2012 CHC Gold Leaf Awards:
  • A Gold Leaf Award in the Ongoing Community Relations category for the Transplantation Science initiative. Donor Alliance offers the free program for seventh through 12th grade students in Colorado and Wyoming as a community service teaching young people about the science behind organ, eye and tissue donation and transplantation around the time they apply for their first driver's license. In the 2011/2012 school year, Donor Alliance revamped classroom materials, reached more than 5,500 Colorado students and expanded to include Wyoming classrooms for the first time.
  • A Silver Leaf Award in the Large Events (2,500+ attendees) category for the Donor Dash. The Donor Dash is the signature event hosted each July by Donor Alliance as a way to raise awareness for organ, eye and tissue donation in Colorado and Wyoming. Launched in 1999, the Donor Dash has grown into one of Denver's larger 5K races and the region's forefront public event for organ, eye and tissue donation. The 2012 event increased attendance by 5% over 2011 with 4,278 participants, making it the largest Donor Dash ever. Additionally, the 2012 event had more sponsors than ever before with a total of 19, a 36% increase over 2011.
  • A Silver Leaf Award in the Writing Speeches/Editorials category for an original byline published in the Denver Post. April is National Donate Life Month, a month-long observance honoring the generosity of organ, eye and tissue donors and their families and commemorating all transplant recipients in the U.S. This year, as a part of the PR efforts surrounding National Donate Life Month, Donor Alliance placed a contributed editorial from President and CEO Sue Dunn about the topic in the state's largest newspaper, the Denver Post, generating terrific local visibility. (TheDenver Post website boasts more than 2 million unique visitors per month.)
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New lungs: Saginaw Township Manager Rob Grose back at work, doing well after surgery

MLive | Heather Jordon
Photo: Saginaw Township Manager Rob Grose attended the dedication ceremony for the new MBS International Airport in Freeland on Friday, Oct. 26. He has returned to work after a double-lung transplant.Jeff Schrier |

SAGINAW TOWNSHIP, MI— Saginaw Township Manager Rob Grose was in his home office on the first Saturday in January when he received the phone call he had been anticipating for months.

Grose, diagnosed with sarcoidosis in 1983 and pulmonary hypertension in 2007, underwent a double-lung transplant at University of Michigan Health System on Jan. 8.

“I had just gotten up, was in my home office, started to sit down and work, and I get this call,” he said. “And it was the transplant coordinator saying, ‘It’s time. We’ve got a match. Be down there at 2 o’clock in the afternoon.’"

Wolverines for Life - Rally on the Diag - October 31st

Donate Life Michigan
Join the Wolverines for Life for a few hours on the U-M campus Diag to encourage students, faculty, staff and visitors to sign up on the Michigan Organ Donor Registry and set appointments to donate blood in the annual Blood Battle against Ohio State University. This event is a promotion for the November 4 “Be a Hero at the Big House” donor drive.

For more information visit

Monday, October 29, 2012

Adult Kidney Failure Tied to Excess Weight as Teen

WHPTV CBS 21| WebMD Medical News

Oct. 29, 2012 -- Being overweight or obese as a teen is tied to higher risk of kidney failure by midlife, a new study shows.

The study points to yet another looming consequence of the childhood obesity epidemic -- growing ranks of adults who will need dialysis or transplants to replace their ailing kidneys.

“We should not underestimate how much harm obesity can cause in our children and young adults. That is definitely something that this paper conveys,” says Halima Janjua, MD, of the Cleveland Clinic Children's Hospital, in Ohio. Janjua was not involved in the research.

Tracking End-Stage Kidney Disease

The study, which is published in the Archives of Internal Medicine, followed more than 1.2 million Israeli 17-year-olds who were given thorough medical exams before they started mandatory stints in that country’s military service.

Some 25 years later, those who were overweight or obese as teens were roughly three to seven times more likely to be on dialysis for end-stage kidney disease compared to their normal-weight peers.
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Industry Expert Returns to AlloSource as Vice President of Operations

Sacramento Bee | Allosource
CENTENNIAL, Colo., Oct. 29, 2012 -- /PRNewswire-USNewswire/ -- AlloSource, one of the nation's largest non-profit providers of skin, bone and soft tissue allografts for use in surgical procedures and the world's largest processor of cellular bone allografts, today announced Elizabeth Hearty's return to AlloSource as Vice President of Operations.

Hearty returns to AlloSource with more than 18 years of experience in operations, finance and business management. Prior to returning to AlloSource, Hearty held the position of Chief Executive Officer for LABS, Inc., a full-service testing laboratory with expertise in regulated testing for human organs, cells, tissues and implantable biologic products and devices. While with LABS, she dramatically grew the business and helped LABS stay true to its mission of dedication to the organ, eye and tissue industry. In her previous role at AlloSource, Hearty served as Chief Financial Officer and Vice President, giving her a unique, varied perspective of the different facets of the allograft tissue business.

"We are thrilled to have a person with Elizabeth's leadership experience joining us once more," said Thomas Cycyota, President and CEO of AlloSource. "I look forward to working with her because she knows the organ and tissue donation industry and understands the important role operations plays in our ability to follow through on our mission of honoring the gift of human tissue donation."
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Does The Facebook Organ Donor Life Event Change Users’ Habits?

All Facebook | Justine Lafferty

Earlier this year, Facebook added organ donation to the life events section, allowing users to announce it to their friends. But does announcing that you’re an organ donor on Facebook really change your offline habits? According to a Purdue University health expert, no.

In addition to allowing users to post their status as an organ donor, Facebook also connects people to resources and information regarding organ donation.

While Susan Morgan, a professor of health communication at Purdue University in Indiana, admired Facebook’s efforts to bring more awareness to the need for organ donors, she doesn’t think it will lead to a change in users’ habits away from the computer:

While it’s great to see people supporting registration, social media is not a cure-all for changing people’s behaviors. It looks easy compared to rounding up volunteers or grassroots communication efforts, but if social media were that powerful we would see more changes and a greater increase in donor registrations. It’s a negligible effect that generates some excitement. … Facebook is powerful, and it is great to see the focus on registering to be an organ donor, but how does posting lead to action? Its reach to millions of Americans is appealing, but we need to remember change is on a more personal and individual level.
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Heart transplant patient backs NHS Organ Donor Register drive

BBC Scotland

Photo: Samantha Bell was given a new heart last year

A heart transplant patient has helped launch the Scottish government's organ donor register drive and spoke of the donor who gave her the "gift of life".

Samantha Bell, from Cambuslang, has backed the TV and radio campaign to encourage more people to sign up.

More than 40% of Scots have joined the NHS Organ Donor Register.

However, health workers have warned that 15% of potential donors are lost in Scotland each year due to families overruling their loved ones dying wish.

Scotland's largest health board, NHS Greater Glasgow and Clyde, said it was encountering the issue "all too often" with "distraught" families and urged potential donors to make sure relatives were fully aware of and respected their decision.

The Scottish government has said that more than two million people have signed up to the register, but it wanted to see that number increase.
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Brothers unite for kidney health awareness


Tommy Barrett and his brother Tunney, of New Orleans are active volunteers with the National Kidney Foundation of Louisiana. Tommy got involved after he recovered from kidney disease through a transplant, and Tunney became part of the group as he watched his brother struggle in the years before the transplant.
Both men and their family members will be helping out at the annual New Orleans Kidney Walk to be held Sunday, at Audubon Park.
“They put me to work good,” said Tommy Barrett, 55, who had a kidney transplant in 2009 that has restored him to health.
“But I don’t mind ... I’ve made some good friends (with the foundation). They’re wonderful people,” said Tommy, who’s an assistant technician with Lockheed Martin and worked with the Shuttle space program, before it recently came to an end.
Torie Kranze, chief executive officer of the National Kidney Foundation of Louisiana based in New Orleans, expects more than 1,000 people to come out for the 2.2-mile pledge walk that will wind its way around Audubon Park on Sunday.
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Scottish Government launch new TV drive to convince more Scots to donate organs

Scotsman | Natalie Walker

Photo: Heart transplant patient Samantha Bell from Cambuslang with her partner Lee Foley

NEW drive has been launched to encourage more Scots to sign up to donate their organs when they die.

It comes as latest figures show four in ten people in Scotland have joined the NHS Organ Donor Register – the highest percentage in the UK.

But experts say thousands more donors are needed every year to give people waiting for transplants the gift of life.

A new TV and radio campaign has been launched by the Scottish Government to encourage more people to sign up and to get people talking about donating - including telling loved ones they want to donate when they die.

Samantha Bell, of Cambuslang, who had a life-saving heart transplant last year has backed the campaign. She was diagnosed with severe cardiomyopathy when she was 22 and last year her heart stopped while she was out for dinner.

Ms Bell, 29, said: “I desperately needed a new heart and doctors moved me onto the urgent heart transplant list. I didn’t have time to wait, if I didn’t get a new heart soon I would die.
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Boomers not playing fair with organ transplants - Canada

The Star | Barbara Turnbull

Photo: DREAMSTIME Nearly half of the nine million people eligible for transplants but unregistered in Ontario are over 50.

Baby Boomers are the most likely to need an organ transplant — and the least likely to donate

Thrive, baby boomers, organ transplants, 50 report.

Almost two thirds of the 1,529 Ontarians awaiting a life-saving transplant are age 50 and older, but only 39 per cent of the 2.5 million registered organ and tissue donors fall in that age group, according to the Trillium Gift of Life Network. The new numbers, compiled by TGLN analysts who examined the registry, were released last week.

“We generally think we are too old to donate” says Ronnie Gavsie, baby boomer and CEO of the network . “I hear people say ‘You wouldn’t want my kidneys’; ‘You wouldn’t want my liver.’ “They say it jokingly but there’s a lot of truth in the humour,” she says.

Nearly half of the nine million eligible unregistered Ontarians are over 50. Gavsie believes many in this group carry a signed card in their wallet thinking this means they are registered. But signed cards are obsolete, as people now have to register online or at a Service Ontario office.

When families are approached to donate a loved one’s organs and tissue they almost always agree when that person is registered on the provincial database. Consent plummets without registration — particularly among people over 50.
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University of Kentucky HealthCare, KODA Unveil 'Gift of Life' Memorial for Organ Donors

University of Kentucky News | Allison Perry
LEXINGTON, Ky. (Oct. 29, 2012) — UK HealthCare and Kentucky Organ Donor Affiliates (KODA) held a special ceremony this past weekend at UK Chandler Hospital Pavilion A to unveil a new memorial wall designed to honor organ and tissue donors. The ceremony is the first in what will become an annual tradition of honoring donors both past and present.

“Creating a lasting tribute to those who have given hope and new life through donation has been a dream of UK and KODA for many years,” said Donna Slone, client services coordinator for KODA at UK HealthCare. “There have been nearly 1,000 donors at UK since transplantation began here in 1964. Some have chosen to remain anonymous, but we hope other families of UK donors that we did not reach this year will see the Gift of Life wall and allow us to add those names in the future.”

The names of 240 individuals who provided the gift of life through organ and tissue donation were read aloud during the official ceremony and unveiled on the Gift of Life wall, located inside Pavilion A adjacent to the Gill Heart Institute.

More than 500 donor family members and guests attended the ceremony to honor their loved ones. Michelle Landers, whose 17-year-old daughter, Hannah, became an organ donor in 2008, was involved in the memorial planning and shared her daughter's story as a featured speaker.

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Slaley girl fighting fit after heart op at Freeman Hospital unit - UK

The Journal UK | Helen Rae
Photo: Ruby Sanger, who is recovering from a heart transplant

FUN-LOVING Ruby Sanger likes nothing more than playing outdoors with her family.

To look at the four-year-old it’s hard to believe that in the first few months of life she was fighting to survive after being diagnosed with a serious heart problem.

But thanks to the outstanding work of medics at Newcastle’s Freeman Hospital the youngster has been given a second chance of life.

Ruby, of Slaley, Northumberland, was born with the rare illness Holmes Heart – a congenital heart defect where the organ has not formed correctly.

At the age of just five months old she was given a life-saving heart transplant at the Freeman Hospital’s children’s heart unit.

Since then the Slaley First School pupil has gone from strength to strength and is enjoying life to the full with her siblings, Jenny, 18, Molly, 17, and Owen, 14.
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Watauga man preps for new lungs, liver

Watauga Democrat | Sherrie Norris
Photo: David Shore says he is grateful for the love and support of his family and friends, especially his wife, Tina, left, and daughter Chelsey. 

After six years of battling a degenerative lung disease known as pulmonary fibrosis, Watauga County native David Shore is hoping to breathe a little easier in the near future as he prepares for a double lung transplant.

Additionally, Shore expects to receive a new liver at the same time. Damage to his own liver, he said, resulted from medication used to treat his lung disease.

Shore recently completed an extensive weeklong evaluation at Duke University Medical Center to prepare him for the next step in his journey to wellness -- a series of at least 23 sessions of pulmonary rehabilitation leading up to his official placement on the transplant list.

For Shore and his family, that's good news, but it also means relocating to Durham for at least six months (maybe a year, depending on the surgery's success) and a mountain of medical and living expenses, which will include costly anti-rejection drugs that far exceed their reserve.

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West Seattle girl to get a new kidney for Halloween

KOMO | Rose Egge
Photo: Evelyn will be wearing a different mask this Halloween as she receives a donated kidney from her dad.  
Evelyn Sherman is going to be 3 years old on Nov. 10. In many ways, she’s just like other kids her age. Evelyn loves chicken noodle soup and bedtime stories. Her accomplishments include flying extra high on her local swing set and building sand castles. Evelyn’s best friends are Bevelyn Bunny, Cousin Bear, and her two sisters.

But Evelyn also is unlike most other kids – she has kidney disease. This week, on Halloween day, she will receive her first donated kidney from her dad. And while the family is spending most of their days in the hospital caring for their daughter, they are also raising money for other transplant patients in a special event they call “Trick or Treat for Transplant.”

As a baby, Evelyn was diagnosed with “failure to thrive.” By the time she was 1 year old, she was diagnosed with kidney disease. Parents Keith and Julianne were forced to face the fact that their daughter had a life-long, serious medical condition.

“There was a lot of tears and trying to figure out how we were going to handle this,” Keith says. “She’s such a beautiful, sweet kid. To have to fight for her life, it’s not easy.”

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Tragedy turned miracle for PG reporter David Templeton: Life after organ transplant

Pittsburgh Post Gazette | David Templeton
Photo: Donor organs came from the late Kevin Hager, 31, of Harrison City, front center. He is surrounded, from left, by his stepfather George Ord, mother Denise Ord, brother Rocky Ord, Rocky's wife Kim Ord, and his sister, Jamie Zierski.

For this 57-year-old, the past year has featured major surgery, recuperation, health challenges, medical mysteries, weird drugs and hand washing -- lots of hand washing.

Still, it's been one of the best of my good life.

Free at last from 45 years of the tyrannical type 1 diabetes and 25 years of kidney-disease terrorism. Energy and outlook restored. Interest in hobbies and projects renewed. Dreams once melting away are intact and upgraded to goals.

It all began Oct. 25, 2011, when I received a kidney and pancreas transplant at UPMC's Thomas E. Starzl Transplantation Institute after spending 23 months on the waiting list. My diabetes, diagnosed Nov. 1, 1966, led to kidney disease in the mid-1980s. The transplants, performed by UPMC transplant surgeon Henkie P. Tan and his team cured both, by replacing the failing kidney and a pancreas that failed to produce insulin.

The donor organs came from Kevin Hager, 31, of Harrison City, who had hydrocephalus and died unexpectedly from an infection the day before the transplant occurred. His mother, Denise Ord, and her family nobly decided to donate his organs and turn their tragedy into health miracles for others.
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Columbus Crew’s Anor Recieves Donate Life Champion Award

Lifeline of Ohio
Photo: Lifeline of Ohio’s Heather Blausey (pictured left) and Marilyn Pongonis (pictured right) presented Bernardo Anor (center) with the Donate Life Champion award at the final 2012 Crew home game.

Lifeline of Ohio presented Columbus Crew midfielder Bernardo Anor with the Donate Life Champion award Sunday at the Crew’s final home game of the 2012 season. Anor, a two-time tissue recipient from injuries he sustained on the soccer field, has served as a Donate Life spokesperson the last two seasons.
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Done Vida honors donors at the Dia de los Muertos celebration

OneLegacy | Sonia Navarro
Yesterday, the 3rd Annual Dia de los Muertos event was held at Rose Hills Memorial Park & Mortuary. Over 10,000 people participated for a family friendly event celebrating the traditions and culture of this special day.

OneLegacy and the Done Vida California celebrated the tradition of Dia de los Muertos by honoring organ and tissue donors by creating a Garden of Love.

If you missed this event, please join OneLegacy and Done Vida California at the Dia de los Muertos (Day of the Dead) at the Oakdale Memorial Park in Glendora this coming Sunday, November 4th, 12pm – 4pm. Done Vida will be assembling an altar to honor our area donors.


Kelvin Smith
Kelvin brings that old saying to light "many irons in the fire". He's an author, inspirational speaker, business owner, and a personal manager of NFL athletes. Although a fresh face to the literary game, he is already in high demand to inspire many people of diverse groups. His life has been an expedition bringing him from a rough and tumble childhood, to a "made for movies" type of adult.

His brand new book The Unlikely Candidate – An Amazing Journey Of A Heart Transplant Patient is right on cue with the title. Always the athlete, he prided himself on continuously staying active and fit, but at age 37 an obstacle came his way. Digging deep into his faith, as well as modern technology, Kelvin received the ultimate gift from an angel, a new heart. " I give praise and thanks to my donor and his family to making the tremendous decision at such a difficult time, which saved my life."

Now as a way to give back, Kelvin volunteers his time at the New York Organ Donor Network (NYODN), as well as speaking at support groups. Helping facilitate their wide range of emotions, he communicates with other families assisting them through the transition he had to endure. " I'm relentless in my pursuit to raise organ donor awareness. I strongly suggest to never be the one to say it can't happen to me."

Whether it's speaking to hundreds at an immunization and naturalization service or an organ awareness event, the subject matter is the same: Sign up to be an organ donor because in the event of an unfortunate situation, as many as seven lives could be saved.

Kelvin's commitment to the community is evident in his work mentoring many young adults and helping them strive to reach their goals. Currently he is spearheading a committee to establish a Boys and Girls Club in his hometown of Ramapo, NY. As a former a athlete and coach he has helped guide the career paths of various local athletes including his son Kelvin Jr. and brother Keith Bulluck of the National Football League.

The owner of a mobile auto detailing service, Kelvin employs many teens each summer to build their working integrity and to increase their sense of purpose. "Sometimes we all need a big brother or someone who shows they really care. Kids are our future and such an investment is necessary."

"My life is great right now but I know if it weren't for the gift of a stranger, I wouldn't be able continue to do the things I'm doing. The cards I was dealt didn't seem fair but in the end my story is one of TRIUMPH."

Kelvin is a graduate of Fayetteville State University where he majored in biology, is married and has five kids. He lives in New Hempstead, NY.

Sunday, October 28, 2012

Celebrating Brittany's Birthday

Organ and Tissue Donation Blog

Photo: Credit, Leslie Franklin. left to right, Tom Mone, CEO, OneLegacy; Raquel Lynn Gonzales, Brittany's mom; Leslie Franklin, recipient, Donate Life Ambassador

Yesterday was Brittany Cail's birthday. Brittany was an organ and tissue donor saving four lives and helping countless others through tissue donation. To honor their daughter, Brittany's. parents held a fundraiser BBQ at Britt's BBQ - your guessed it, the popular Torrance BBQ joint was named after her.

Proceeds from the successful BBQ benefited the OneLegacy Foundation.
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People who agree to donate their organs could be given NHS priority

Telegraph | By Edward Malnick and Laura Donnelly
People who agree to donate their organs when they die could be given priority if they themselves need a transplant, under controversial health service proposals

The idea, floated by NHS Blood and Transplant, last night met a backlash from the Church of England and patients' groups, who say such a change would mean doctors treating two patients differently - something which would undermine medical ethics.

The quango is also examining whether hospitals should also be allowed to keep brain-dead patients alive in order to harvest their organs.

Currently, patients approaching death can be put on artificial ventilation for a short period to enable their relatives to say goodbye. Under the new proposals, those who have sustained catastrophic brain damage, for example due to head injury or stroke, and will not survive, could be kept alive longer, solely so there is enough time to arrange an organ transplant.

The radical ideas have been outlined by NHSBT as possible ways to increase the number of people who sign up to the Organ Donation Register, and to increase the number of successful transplants carried out in the UK.
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After trepidation, desperation and complication, finally hope, and home.

Sydney Morning Herald

Photo: Setback ... Tianna is told the bad news that the donor organs are not viable, in a devastating setback before her successful transplant. Photo: Janie Barrett

After months of treatment and a heart and double-lung transplant, Tianna Formosa was hopeful of enjoying a bit of normality this weekend.

''I am looking forward to going out for the first time this weekend to my friend Cameron's birthday, and seeing a lot of my friends for the first time since my transplant,'' the 18-year-old told The Sun-Herald on Thursday.

''I'm finally home now with my mum, dad and baby brother. My hopes are long-lasting health and finally being able to be a normal teenager and do everything my friends do.''

Tianna is exhausted, sore and severely underweight after more than a month in intensive care. She is anxious, too, because there have been several speedbumps on the road to recovery.

The most serious setback came weeks before her successful transplant. Tianna and her parents were called in about 10pm on a Sunday because a donor had been found and the surgeons were ready to operate. She was prepared for surgery about 6am. Unfortunately, the donor organs were found to be unviable and the transplant was aborted about 8am on the Monday.

Even after her successful transplant, the problems continued. There were complications that led to three more operations in a fortnight.
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Jay Williams honored for commitment to organ donation

Durham Herald Sun| John McCann

DURHAM – As big shots go, Jay Williams sure has knocked down a bunch of them, like those 3s to help his Duke squad beat Maryland on the road in 2001 in what became known as the Miracle Minute.

But now Williams is shooting shots to win more important victories.

At halftime of Saturday’s Western Washington-Duke men's basketball game in Cameron Indoor Stadium, Williams received the Donate Life Champion award for his work to raise awareness about the need for people to sign up to become organ donors.

This is the inaugural year of the award, presented on behalf of Donate Life America and Donate Life North Carolina. The honor is being given to select members of the country's athletics community – including basketball legend Michael Jordan – who have inspired others to give what literally is the gift of life through organ donations.

“People in the athletic community have such a capacity to inspire people in our culture, so it means everything to us to have someone like Jay Williams agree to be a spokesman for us,” Donate Life North Carolina executive director Sharon Hirsch said.
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Most determined little girl

Palladium Item | Pam Tharp

Photo: Rebecca Stoermer, 15, works at home with teacher Michelle Holliday on a grammar lesson Friday, Oct. 12, 2012.

Richmond High School freshman Rebecca Stoermer has a goal: earn an RHS letter jacket by the end of her senior year. Meeting that goal is a bigger challenge for Stoermer than for most students. The 15-year-old must first overcome a stubborn bacterial infection in her lungs, then undergo a double lung transplant.

It’s an operation Stoermer hopes will put her back on the basketball floor.

“I want that letter jacket really bad,” Stoermer said. “I’m disappointed because I couldn’t do my sport this year and start earning it.”

Stoermer, the daughter of Mike and Dena Stoermer of Richmond, was diagnosed as a 2-year-old with cystic fibrosis, a congenital condition that affects the lungs and other organs. Despite her health problems, last year Stoermer was a cheerleader and played girls basketball at Dennis Middle School. Since then, Stoermer’s lung problems have worsened and the teen is now in end-stage pulmonary failure.

“The bacteria is destroying her lungs. (Doctors) have thrown everything at it,” said Dena Stoermer, Rebecca’s mother. “She’s on oxygen all the time now. She now has only 20 to 24 percent of her lung capacity.”
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Living donors and families join together in celebration of life


Photo: Transplant organ recipient Aleta Irving tells her story Saturday at an organ donor symposium at Boonsboro American Legion. (By Kevin G. Gilbert/Staff Photographer / October 27

BOONSBORO, Md.— They received “the nightmare call of all parents,” Charles Hutchinson said.

He and his wife, Cindy Hutchinson, received news at their Boonsboro home on Thanksgiving morning three years ago that their son, C.J., then 20, a U.S. Marine stationed in Twentynine Palms, Calif., had been in a car accident. Police assume he fell asleep at the wheel.

The couple needed to get to the hospital there “ASAP.” After they arrived, a scan of C.J.’s brain showed no activity. Hospital staff asked if the family was interested in organ donation.

“We just did not know what to do,” Hutchinson said. “After much discussion, we knew that we had to say yes. In life, C.J. was a giving person. He would want to give someone an opportunity to have a better life.”
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Imagined Fear

Yes Utah!

You are walking down a dark passageway. There is fog blocking your view and moss hangs down, rubbing across your head and shoulders. Suddenly, someone with a chainsaw jumps in your path. His face is pale and blood drips from a wound on his cheek. You jump and your heart races, but down deep, you know it isn’t real.

Not only is this not real, you actually paid money for someone to frighten you like this.

You are in an accident. You are rushed to the hospital, but when you get there, someone looks at your driver license. They see you are an organ donor and move on to the next room. They will not try to save your life!
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Merced transplant recipient sees dire need for organ donors

Transplant recipient hopes bill will help educate Californians

Photo: Marci Steinberg. Merced Sun-Star - Teri Rhodes had to go to Florida to get an organ transplant. She now lives in Merced with her husband, Daniel.

Teri Rhodes got the gift of life and now hopes to spread the word about the importance of organ donations in California -- an effort that's in line with a new piece of state legislation.

Last year, the 48-year-old Merced resident was given three months to live after she was diagnosed with nonalcoholic fatty liver disease, a kind of cirrhosis.

Rhodes needed a liver transplant to survive, but the waiting list in California was three to five years because of the shortage of donors.

Her Stanford doctors recommended she try the Mayo Clinic in Arizona and Florida. Last October, Rhodes and her husband, Daniel, packed their bags and moved to Arizona.

The wait time there was from six to eight months, so they decided to pack their bags one more time and give Florida a try.
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Note: Californians represent 21% of the national transplant waiting list.
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One kidney, two lives

South Coast Today | Don Hammontree

Photo: Peter Pereria
For 32-year-old Joanne Del Rio of New Bedford, what should have been a difficult decision was a no-brainer: giving up one of her healthy kidneys to save the life of her mother-in-law, who had been suffering on dialysis for over three years.

But it wasn't only one life she saved.

On October 6, Del Rio traveled to Waltham to meet 67-year-old retired schoolteacher LeRoy Ehmling, who received the kidney Joanne donated via the New England Kidney Exchange Program (NEPKE) back in May 2011. more than a year after the surgery.

The program takes a willing donor who is incompatible with a loved one in need and matches them with someone else on a waiting list — and when a kidney comes available to help the loved one, it is transplanted as soon as a matching donor is found.

"I have no regrets — if I had more kidneys, I'd do it again," Del Rio said.
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Sheriff receives life-saving liver transplant

Richmond Register | By Sarah Hogsed

Madison County Sheriff Jerry Combs was making tomato juice Friday night with this twin brother when he got one of the most important phone calls of his life.

“The call came about 10 o’clock, and they told him to be (at the hospital) at 11 or 11:30,” Fiscal Court Magistrate Larry Combs said.
A compatible liver had just become available. The sheriff’s bag had been packed for months, and he was ready to go to the UK Medical Center at a moment’s notice, his brother said.

Sheriff Combs got out of surgery at 7 a.m. Saturday, Larry said.
This isn’t the first time the brothers have faced transplant surgery. Due to the same hereditary disease, Larry also experienced liver failure and received a donor liver five years ago.

Although Larry said his brother isn’t out of the woods yet and faces a period of recuperation, the joy was obvious in his voice.
“He’s doing great,” Larry said.

On Thursday, the Kentucky Circuit Clerks’ Trust for Life had an event promoting organ donation at the Madison County Hall of Justice. In the press release, the Combses lent their support to the call for more people to sign up as organ.
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Health First’s Tiger Team Promotes Life-Saving Organ Donation

Space Coast Daily

Provides Awareness, Funding For Organ Donation

The term “Tiger Team,” which originated in the space industry, refers to a group of individuals united in solving a serious problem.

Health First’s Tiger Team, formed in 1990, is fiercely interested in educating the public about the importance of organ and tissue donation. The group was created after nurses Mary Gainey of Health First Cape Canaveral Hospital and Judi Cavazos of Health First Holmes Regional Medical Center heard of the concept during a conference of the International Association for Nurses Endorsing Transplantation.

Over the ensuing years, the Tiger Team has raised awareness of the need for organ transplants through venues that have ranged from health fairs and bone marrow drives to surf tournaments and a children’s calendar contest.

The Health First Tiger Team has also provided $100,000 in grants to families who have experienced or are awaiting organ donations for one of their members.
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Photo: THE TIGER TEAM: Top row, left to right – Suzanne Muliolis, Lions Eye Institute; Stephanie Cranfield, RN, Chair CCH Tiger Team; Leo Paradis, President, BCOTSG, Brevard County ORGAN, Inc., Heart & Kidney Transplant Recipient; and Barbara Seymour, RN, CCH Nurse Manager of Critical Care and Surgical Services. Bottom row, left to right – Father Bob Bruckart, Co-Chair Health First Tiger Team; Dee Rogers, Co-Chair Health First Tiger Team; Amelia Fuguro, RN, CCH, Emergency Department, Mary Gainey, Co-Founder of the Tiger Teams and Tammy Adams, CCH Administration, CCH Tiger Team Treasurer. (Image for
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Saturday, October 27, 2012

OneLegacy hosts the 2012 Organ Donation + Transplantation Symposium

OneLegacy | Glenn Matsuki
Photo Credits:  Luis Ramirez, OneLegacy | Glenn Matsuki, OneLegacy, O&T Blog

850 hospital partners assembled this week at the Fairplex Conference Center in Pomona to learn about optimal best practices and trends in the donation and transplantation arena.

Billed as the largest DSA collaborative conference in the nation, we were led by national faculty members Thomas A. Nakagawa, MD, FAAP, FCCM, Professor, Anesthesiology and Pediatrics, Director, Pediatric Critical Care, Wake Forest University School of Medicine and Nader Habashi, MD, Medical Director for Multi-trauma Critical Care Unit, R. Adams Cowley Shock Trauma, Center, University of Maryland Medical School of Medicine.  

Topics covered included donation after circulatory death (DCD); the impact of administrative consent policies; the role of Palliative Care, Social Work and Spiritual leaders; hospital administrative consent policies and digital integration between OPO and Hospital EMR systems.

Reg Green, author of "The Nicholas Effect: A Boy’s Gift to the World" along with Donate Life Ambassadors inspired conference attendees with their stories of hope.
For more information and to download conference presentations please visit OneLegacy

OneLegacy Organ Donation + Transplantation Symposium 2012 from Glenn Matsuki on Vimeo.

Friday, October 26, 2012

San Antonio toddler battles kidney disease

KSAT | Jennifer Dodd
The Kidney Foundation hosts annual Walk N' Stroll

SAN ANTONIO -Miguel Carmona, age 2, is not the face of kidney disease. He's much, much younger than the norm.

"It's very hard and heartbreaking, but most of the time, we know it's best for him," his mother, Magdalena Carmona, said of the treatment Miguel must undergo.

Miguel was born with two non-working kidneys.

He started 10-hour night dialysis treatments when he was just 9 months old.

"He has his good days and he has his bad days," Carmona said.

Miguel goes on the donor list in a few months.

Until recently, he didn't meet the weight requirement of 22 pounds.

Carmona said anyone who is even willing to get tested to be a living donor is a hero to her.
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Some face transplant patients may regain sensory, motor function

Medical Express

For the study, Dr. Bohdan Pomahac, director of the plastic surgery transplantation program at Brigham & Women's Hospital in Boston, and colleagues assessed the return of sensory and motor functions in four patients who had full or partial face transplants between 2009 and 2011.

Initially, the transplant patients could not breathe through their new mouth or nose and required a breathing tube. They were also unable to speak or chew, and could not sense objects touching the surface of their skin. But one year after the transplant, some of the patients could breathe, eat and talk quite easily. They also regained their sense of smell, were able to make facial expressions and could do some socializing, the investigators found.

These successes depended on whether major nerves in the body were able to be reconnected with those in the transplanted face, the researchers noted. In some patients, severe damage from their original injuries made it impossible to reconnect nerves in some areas.
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Local teacher needs life-saving kidney donation

KABC Channel7 | Jovana Lara
WESTCHESTER, LOS ANGELES (KABC) -- Parents are joining together to help a kindergarten teacher who will soon need a kidney donation. The teacher has a genetic disease that affects tens of thousands of people.

Lucy Knight is among the favorite pre-kindergarten teachers at Kentwood Elementary School in Westchester, and she considers herself lucky to have been able to teach for the last 14 years. But now Knight is concerned her days in the classroom may be cut short.

"I want to continue to really help these kids, sharpening their minds and get them ready for life. And this is what I love to do," said Knight.

The 42-year-old has polycystic kidney disease (PKD), a genetic disorder that spurs clusters of cysts to grow in the kidneys and can lead to full kidney failure.

"None of my family members are qualified for donations, and so my husband, he wanted to donate his kidney, but we found out he has cancer," said Knight.

Doctors tell Knight she has six months to a year to find a kidney donor. And that's where a group of parents, teachers and children come in.
Read more - Video
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Sick Kiwis turn to transplant tourism: researcher - New Zealand

Otago Daily Times
Desperate New Zealanders are turning to illegal organ trafficking because of a shortage of organs here, a University of Canterbury law researcher says.

Masters student Rachel Walsh is investigating the booming international organ trafficking market, made popular because of a severe shortage of organs here and internationally.

More people were seeking alternative options to acquire a desperately wanted organ, she said.

"One of the more popular trends is to obtain an organ through transplant tourism, which is where potential organ recipients travel to another country to receive an organ transplant."

Transplant tourism involved the buying and selling of solid organs through companies, middlemen or directly with the organ seller, which could easily be done on the internet within a matter of hours, she said.
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Never be enough thank yous’ - Newbridge transplant recipient - Ireland

Leinster Leader

Photo: Sonia Treacy (37)�from Newbridge received a kidney transplant just two months ago took part in the Irish Kidney Association's Run for a Life event at the weekend. She had been receiving nightly dialysis treatment for four years prior to being called for her successful kidney transplant. The event which celebrates life and promotes organ donation is sponsored by pharmaceutical company Astellas Pharma Co.

Newbridge woman, Sonia Treacy, took part Run for a Life event at the weekend just two months after receiving a kidney transplant to honor the life of her donor.

“It was brilliant,” said Sonia. “If somebody had of told me when I was in hospital that in two months time I would be walking 3k I would not have believed them. To be able to honour my donor was fantastic. I didn’t want to do it in a certain time or to run it - I just wanted to finish.”

Almost 400 adults and children f supported the family event called ‘Run for a Life’ which was organised by the Irish Kidney Association, and took place at Park West Business Park, Dublin 12 on Saturday, October 13 last.
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New treatment in clinical trial at Cleveland Clinic may vastly increase number of donor lungs

Cleveland | Brie Zeltner

Photo: Cleveland Clinic. Dr. Kenneth McCurry, Program and Surgical Director of lung and heart-lung transplantation at the Cleveland Clinic.

CLEVELAND, Ohio-- In a lab at the Cleveland Clinic, underneath what looks like an oversized plastic cake dome, a pair of human lungs sit, tethered to tubes and hoses.
Disembodied, the pinkish-yellow organs rise and fall to the rhythm of a mechanical ventilator.

They are among the 80 percent of donated lungs deemed unsuitable for transplant -- damaged or infected or simply waterlogged from prolonged resuscitation attempts -- a situation that has led to a chronic shortage of suitable organs and a steady waiting list.

But if the transformation process this set of lungs is about to undergo is approved by the FDA in the next year, the waiting list for a lung transplant could become a thing of the past.

So here they sit, hooked up to a mini heart-lung machine, undergoing an experimental rehabilitation.
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