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Showing posts from May, 2013

North Miami HS student who had 6-organ transplant celebrates graduation

Local 10News | Christina Vazquez
Student born with rare disease, Pseudo-obstruction Syndrome
North Miami, Fla- Simone Brewton's excitement about wearing her cap and gown for North Miami Senior High School’s Friday graduation brims to a giggle.

"I worked so hard to get here, it's been a long, long journey for me so for this to come true is just mind blowing for me," said Brewton.

A life's journey that almost ended for Simone, just as it was starting.

"I was born with Pseudo-obstruction Syndrome," explained the 19-year-old, "that's like a rare disease. I was originally about to die when I was 1 years old."

"It was like a nightmare," said Simone's dad Burley Brewton of getting the news shortly after he birth, "I cried all the way from the doctor's office to my mom's house and then I collapsed. I couldn't believe what I was hearing."
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"You ha…

Heart patient is 1st grad of Duke Hospital School

The San Francisco Chronicle | Martha Waggoner
DURHAM, N.C. (AP) — Courtney Montgomery got the lone diploma Friday as the first and only graduate of the Hospital School at Duke University Hospital.

The 18-year-old had a heart transplant in April 2011 and suffered her third rejection of the organ in November. She finished her first semester of her senior year at the Hospital School, then her second semester, taking classes in English, Spanish and math.

"First off, as the student body president and class clown, I want to welcome you to my high school graduation," Montgomery said — perhaps the only time in her speech that tears didn't well in her eyes.

At the ceremony, Jim Key, area superintendent of Durham Public Schools, declared Montgomery an official graduate, giving her permission to move the tassel on her cap from the right to the left.
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"You have the power to SAVE lives."
To register as a donor i…

Review of U.S. lung transplant policy unlikely to save girl's life

CNN News | Michael Martinez

(CNN) -- U.S. officials will review the nation's lung transplant policy for children, but any change could take up to two years, not enough time to save the life of a 10-year-old Pennsylvania girl who's already been waiting 18 months for new lungs.

United Network for Organ Sharing, a nonprofit that manages the nation's transplant system under federal contract, agreed to the review Friday, the same day that an urgent request was made by U.S. Health and Human Services Secretary Kathleen Sebelius, UNOS spokeswoman Anne Paschke said.

But because the review process involves research and public comment and because there's not enough organ donations for children, the nation's transplant system won't likely be able to save the life of Sarah Murnaghan, who could die within weeks without a transplant of lungs.

When pressed on this emerging reality, Paschke stated: "I don't have anything additional to add."
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New Artificial Heart Is Part Cow, Part Pump

Discovery News | Jesse Emspak

Photo: Every year between 2,000 and 3,000 people in the United States get a new heart from an organ donor. About the same amount of people remain on waiting list and many die before they ever get a chance at a transplant.

Artificial hearts are currently used as a stopgap measure while patients wait to get a donor heart. By definition the hearts only last a certain amount of time. That can be years — one made by SynCardia Systems, Inc. has lasted up to 1,374 days — but it’s still not a permanent solution. On top of that, an artificial heart requires a “driver” that has to be worn outside the body and connects through the skin — increasing the chance for infection.

Paris-based Carmat has built the first implantable artificial heart that exists completely inside the chest cavity, with no external components. Locating everything inside the body cavity reduces the number of sites where infection can happen and could allow the replacement heart to last longer than…

Researchers closing in on printing 3-D hearts

USA Today | Laura Unger, The Courier-Journal

Stuart Williams, director of the Cardiovascular Innovation Institute in Louisville, Ky., was on the forefront of three-dimensional printing when he worked in Arizona and is now working on research into printing tissues such as heart valves.
(Photo: Michael Clevenger, The Courier-Journal, Louisville, Ky.)
The artificial organ would need no anti-rejection drugs because it would use cells derived from a patient's fat.
LOUISVILLE, Ky. — Researcher Stuart Williams is not talking about a far-off, science-fiction effort when he describes how scientists here will create new, functioning human hearts — using cells and a 3-D printer.

The project is among the most ambitious in the growing field of three-dimensional printing that some say could revolutionize medicine.

"We think we can do it in 10 years — that we can build, from a patient's own cells, a total 'bioficial' heart," said Williams, executive and scientific director of t…

Lung Transplant Recipient’s Memorial Quilt Honors Fallen Officer

Livermore CA Patch | Beatrice Karns

Photo: LIVERMORE, CA: Livermore resident Michael Lause with Mayor John Marchand in front of the quilt. Photo credit: Beatrice Karnes
Richmond Police Officer Brad Moody died in the line of duty. His lungs live on today in Livermore resident Michael Lause.
Livermore resident Michael Lause almost didn’t get the transplant that saved his life. The just-right lungs that fit his tall frame were donated by fallen Richmond Police Officer Brad Moody. But as Moody lay in a hospital bed, doctors asked his wife Susan if they could remove his organs for donation. She told them no.

Left alone with her husband who was kept alive by beeping, whooshing machines, Susan began to question her decision. She thought about his role as a police officer. As Lause relates the story, she came to the conclusion, “You saved lives your whole life, why not save lives at the end of your life?”

When hospital staff arrived with the paperwork that would have authorized them to turn of…

Anonymous kidney donation is on the rise, fueled by compassion

Chicago Tribune | James A. Fussell |Kansas City Star

Photo: Aimee Bultemeier of Lee's Summit, a nursing assistant at the Mid America Heart Institute, not only wears a Donate Life bracelet, but already has donated one of her kidneys to someone she never met. FRED BLOCHER, MCCLATCHY-TRIBUNE

The idea kept nagging at Aimee Bultemeier.

"I have two perfectly good kidneys, and I only need one," the 37-year-old nursing assistant thought. "I could save somebody's life."

Here's the thing: She had no idea who that somebody was.

It wasn't a friend or family member. Just another human being who was waiting for a chance at a new life.

For Bultemeier, that was enough. The single mother of two called the Midwest Transplant Network in Westwood, Kan., and volunteered to have major surgery to save the life of a stranger.

She is one of a growing number of anonymous kidney donors nationwide. Such altruistic, nondirected organ donations have grown in recent years, experts say, …

Longtime TN nurse has insurance but not enough for new liver

The Tennessean | Tom Wilemon

Photo: Beverly Loyd lies in bed at her Crossville, Tenn., home after being released from the hospital last week. Sanford Myers / The Tennessean

Beverly Loyd found out having bad insurance is worse than having no insurance when she needed a liver transplant.

Her policy that might pay $250 for every day she spent in the intensive care unit at Vanderbilt University Medical Center won’t cover the cost of a transplant — and keeps her from qualifying for programs for the uninsured.

She lies in bed at her Crossville, Tenn., home suffering from a chronic case of hiccups caused by the swelling that comes with cirrhosis of the liver.

Jessica Reed watches, worries and wears out the telephone trying to get help for her mother. She said it’s not a fair deal for a woman who worked for decades as a nurse, paid her taxes and played by the rules. Loyd contracted hepatitis C from an emergency hysterectomy, with the virus slowly destroying her liver before effective drug treatme…

Lahey Hospital & Medical Center recognized

The Boston Globe | Wendy Killeen

Photo: Dr. Deeba Husain is now at Mass. Eye and Ear’s retina clinic in Stoneham.

At its annual reception, Lahey Hospital and Medical Center celebrated transplant recipients and organ and tissue donors. It also received a US Department of Health and Human Services award for increasing organ donation rates. The Festival of Trees in Methuen kicks off a yearlong celebration of its 20th anniversary with “An Emerald Evening.’’
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"You have the power to SAVE lives."
To register as a donor in California: |
Outside California: | www.donatelife.

Philadelphia Presbyterian working to increase organ donation awareness

The Mint Hill Times | Derek Lacey
An organ donation can save a life. Sometimes, it is the only thing that can, and knowing as much as possible about how the organ donation system works could help save many lives.

According to the United States Department of Health and Human Services, 118,211 people are waiting for an organ, 18 people will die each day waiting for an organ, and a single organ donor could save as many as eight lives.

Spurred by a member of the congregation who needs an organ transplant and his family, Philadelphia Presbyterian has been actively promoting organ donation awareness.

Doctors discovered a tumor in Philadelphia Presbyterian member Tom Watson’s liver last December, and since mid-February, Tom has been on the list for a new liver, which is the most-needed organ transplant in the U.S., with 96,249 people on the waiting list.

“It’s definitely the support to know that people are surrounding us and trying to take this opportunity to move forward and help people in the f…

Cairns man saved by a stranger's organ donation -Australia | Bianca Keegan

STEWART Howard admits he had surrendered to his seemingly imminent death after being diagnosed with terminal lung disease and joining more than 1600 Australians on the organ transplant waiting list.
Despite being a non-smoker and leading a healthy lifestyle, Mr Howard, of Bentley Park, was diagnosed in 2011 and given only months to live.

"I was in the closing stages of the disease and the doctors said I was probably dead by Easter 2012," he said.

While some wait up to two years for a life-saving transplant, Mr Howard didn't have time on his side and on doctor's advice he moved to Brisbane to wait for the phone call which would give him a second chance of life.

"It was quite a rollercoaster. The hardest part was preparing to leave my wife, my children and grandchildren. I didn't think I was coming back.

"The emotional bit was signing off with a cheery face when it was more like a long slow walk to the gallows."

After 18 Heart Attacks, Man Undergoes Successful Double Organ Transplant Surgery

KUTV | Dan Racon

(KUTV) A West Jordan man, who has survived 18 heart attacks in just 10 years, is being called a walking miracle.

Mike Mader says he's feeling like a new man after undergoing a double organ transplant surgery.

“Feel amazing,” said 31-year-old Mike Mader. “Couldn't feel better. Never happier in my life."

Mader joined a team of doctors at Intermountain Medical Center in Murray to talk about the success of the surgery in a press conference held Thursday.

The transplants took place on the same day, April 23rd. Mike was released from the hospital on May 6th. Both surgeries took about four hours. The heart transplant was first. Mader says before the surgeries he “felt like garbage” and was “extremely fatigued.”

Mader was born with a genetic disorder called familial hypercholesterolemia—it causes the liver to be unable to process cholesterol. At the age of three, his mom says his cholesterol level was in the high 400’s. At the age of 22, Mader suffered his first h…

Warminster resident, transplant recipient hopes to give back to children

Montgomery Media | Caitlin Burns
Warminster resident and soon-to-be nurse Caitlin McAllister didn’t have the normal childhood. Since a young age, she has dealt with organ failure and transplantation. After graduating from Jefferson School of Nursing May 29, McAllister hopes to provide the care to the children she closely understands and show them that there is hope.

“I think the adolescent group is who I relate to more,” McAllister said. “When you’re older... it isn’t as easy being in the hospital.”

McAllister, who currently works as a sitter at the Children’s Hospital of Philadelphia, said as a child she didn’t mind being in the hospital. She said there are many instances she actually liked it. However, she remembers in her pre-teen and throughout her teenage years disliking being there since she couldn’t hang out with friends or explore the new opportunities growing up provides.

“When you’re younger they make it very fun for you,” McAllister said, “but then with the adolescents, they’re…

Woman's tweet saves a life, inspires documentary

AX | Yetta Gibson
PHOENIX -- Social media is great for a lot of things -- spreading news and information, catching up with old friends, making new ones. That ability to connect can changes lives in incredible ways. Case in point: A single tweet led to a life-saving organ transplant for a Valley woman and inspired a film called "Social Media Stole My Kidney: A Documentary About a Girl Who Lost Her Kidney on Twitter."

It all started in January 2011. It was just another Friday night for Amy Donohue, until she spotted a tweet by@diyamarketing. It said: “Help me save my mother’s life, help me find a kidney donor.”VIDEO Continue reading 
______________________________________________________ "You have the power to SAVE lives." To register as a donor in California: | Outside California: |

Pa. members ask Sebelius to help secure lung transplant for child

The Hill | By Pete Kasperowicz
Members of Pennsylvania's congressional delegation this week urged Department of Health and Human Services (HHS) Secretary Kathleen Sebelius to help approve a lung transplant for a 10-year-old Pennsylvania child in critical condition.

"I respectfully request that you do everything you can to assist Sarah Murnaghan," Sen. Pat Toomey (R-Pa.) wrote to Sebelius in a May 28 letter. "CHOP [the Children's Hospital of Philadelphia] is aggressively treating Sarah in order to maintain her life and viability on the transplant list, but her time is running out.

"Your immediate attention to this issue is needed and appreciated."

Toomey explained that in 2000, HHS required that organ availability must be based on medical necessity instead of the order in which organs are requested. However, the Organ Procurement and Transplantation Network (OPTN) imposed a process that only applies to patients 12 and older.

"Sarah is therefore ineligib…

20 Facts You Don’t Know About Organ, Eye and Tissue Donation

Living Legacy Foundation Maryland | Mia
Photo: Leave a legacy behind by saying “yes” to organ, eye and tissue donation.

With all the myths and misconceptions about organ, eye and tissue donation, it can be hard to answer the question, “Would you like to be an organ donor?” Organ donation is a positive act which saves and enhances the lives of many. Currently, there are more than 117,000 people nationally waiting for a life-saving organ transplant and more than 2,300 of those live in Maryland. Knowing the facts about donation will help you make an informed decision to potentially give the gift of life. Here is a list of 20 facts you probably didn’t know about organ, eye and tissue donation:

1. No patient is ever too old or too young to give the gift of life. The decision to use a patient’s organs and tissue is based on strict medical criteria, not age.

2. One donor can save up to nine lives, enhance the lives of 50 people through tissue donation and restore sight for up to two people throu…

Family of slain Fort Worth student finds strength in memories Dallas Ft Worth | Monika Diaz
FORT WORTH — Broderick Patterson's angry outburst in a courtroom a year ago was caught on camera moments after a jury found the 18-year-old guilty of murder.

But his victim's family said he is the last person they think about.

Instead, they prefer to remember Eric Forrester without ever thinking of his killer.

The 17-year-old Southwest High School student was shot and killed three years ago when he discovered a burglar in his family's Fort Worth home.

Eric's family doesn't let a day go by without remembering him at their home on Poco Court in Fort Worth.

"He told me he loved me every single night before we went to bed," said his mom, Debbie Forrester. Every morning, the Forrester family lives with the heartbreaking silence of a stolen son.

"I think it's the toughest when I wake up in the morning, because you wake up and you think, 'Oh no. It's real. He's really not here," Mrs. Forrester said.

The pi…

Brave Accrington teenager needs new heart to stay alive

Lancashire Telegraph | Lawrence Dunhill
COURAGEOUS teenager Blake Calverley is braving himself for a heart transplant as doctors bid to keep him alive.

The 18-year-old from Accrington, who has a five-inch defibrillator fitted under his skin, has been told he will need a new heart ‘as soon as possible’.

He suffers from hypertrophic cardiomyopathy – a fatal condition which means his heart can stop at any point – as happened to Bolton Wanderers footballer Fabrice Muamba during an FA Cup tie last year.

Blake endured a difficult few days at Wythenshawe Hospital in Manchester last week, where medics carried out several tests to discover the extent to which his organs were coping with the condition.

Tearful mum Dawn, 47, of Sandy Lane, said: “They have told us that Blake needs a heart transplant as soon as possible and he’s been put on the donor register.

“It’s just so hard to take it all in.

“When I’m listening to the doctors I’m thinking I need to try and be brave for Blake, but it’s so hard.Cont…

The LifeLines that connect us all

LifeLine of Ohio

Soprano sings on after getting new lungs — twice

The Seattle Times | By Maggie Fazeli Fard | The Washington PostPhoto: Charity Tillemann-Dick still sings opera despite having undergone two double-lung transplants. She also speaks about pulmonary hypertension and organ donation. Bonnie Jo Mount -The Washington Post
Singer Charity Tillemann-Dick overcomes a double-lung transplant and returns to opera, only to face a second transplant.
Growing up in a family of 11 children, singer Charity Tillemann-Dick accumulated what she calls “a lovely collection of scars”: pinched skin from the time one of her brothers accidentally twisted her right arm in a playground swing; a shaving nick on her right shin; a pockmark from tripping in a pothole.

But the collection’s hidden masterpiece is a long, narrow ridge under her breasts that marks not one but two double-lung transplants.

For an opera singer, lungs are a musical instrument — like a Steinway to a pianist or a Stradivarius to a violinist. Singers spend years training their lungs. To lose them i…

Help Jason Spangler Raise Money For His Kidney Transplant

Digitriad | WFMY NEWS | Tracey McCain
Jamestown, NC - If you need some inspiration, this is it. Jason Spangler is in the fight for his life. But while he waits for a kidney, he's also raising awareness about organ donation.

"I just want to be around as a father," Spangler told WFMY News 2's Tracey McCain.

Spangler lives each day for his wife, Melissa and busy toddler Amelia. At 36, Jason has already beaten the odds, surviving on one kidney his entire life.

"I was 5-years-old. I had an accident that led to the discovery of a single kidney so I had surgery after that and it left the kidney about 30 percent functional," Spangler explained. His father George Spangler talked about the doctor's original diagnosis.

"They told us he'd need a transplant by 12. Then at 12 they said 16. Then at 16 they said 21. He's never been on dialysis; which is amazing!" his father said.VIDEO Continue reading

Join Gift of Life Michigan MOTTEP for the LIFE Walk/Run

Gift of Life Michigan
Join us for LIFE Walk/Run? Register today to join the fun:

She gave kidney, he asked for heart | by Barrett Tryon and Eric BurkeKANSAS CITY, Mo. — The gift of life is a precious one and on Tuesday evening, a couple was honored by the Kansas City Royals to help highlight Donor Awareness Night.

The story began a few months ago, after Taesha Benson donated a kidney to her boyfriend, Travis Spire-Sweet.

The Royals rolled out the red carpet for the couple, letting them watch batting practice on the field before the game.

The two became bonded for life around Valentine’s Day.

“It just takes someone who’s brave and willing to do that, which luckily I got to meet one of those people,” said Spire-Sweet.

Benson said she didn’t do it without reservation. She was scared, but knew how bad off Travis was and did some research.

“That research came back showing the numbers 95,000 people needing kidney donations. So I felt if I am a match why not donate,” Benson said.VIDEO Continue reading
"You have the power to SAVE lives." 

Our son, Nick was a bundle of creativity

LifeShare Oklahoma

The Power to be the Donation Miracle is in our Hands

LifeLine Ohio
Photo: The Phillips family honors son and brother, donor David III, in their daily lives.
Growing up, David was a pleasant, kind and gentle child who laughed often and adored his siblings. Our David matured into a loving young man who enjoyed listening to music, spending time with his girlfriend and hoped to explore Aviation and the Air Force. We were so excited for what David’s future held.

Our son, David Phillips III, was just 15 years old when he was taken from us August 8, 2012. David was in the passenger seat of a car with a group of band students when the driver lost control of the vehicle. Unfortunately, as the band regrouped at the hospital night, we learned the tragic news that David hadn’t survived. In that moment, David became an organ and tissue donor and took us on a journey that changed our lives forever.Continue reading
"You have the power to SAVE lives." 
To register as a donor in California: 

Detroit-Area Billboard Seeks Kidney Donation for Grandma

Yahoo News | By Marilisa Sachteleben

The wait list to get a new kidney is estimated at five to 10 years, says Living Kidney Donors Network (LKDN), and more than 93,000 people need one. So what do you do when someone you love needs a kidney and you can't provide it? Jerry Millen, of Hartland Township, Michigan, is asking via billboard for a kidney for his mother, Virginia Millen, says the Daily Press & Argus.

Kidney Donation Issues

Jerry Millen said he didn't think much about organ donation until his 73-year-old mother got sick. He said he'd gladly give up a kidney to help her -- "It's your mom. You do that for her." But donor blood type must match the recipient's. He doesn't match Virginia's type-O blood. She did match with her other son, but there was a problem with antibodies. Jerry would have paid a donor, but it's illegal, to prevent human trafficking and organ harvesting, to transact money for organ transplant donation.

Kidney Donation Bi…

Teen celebrates heart transplant anniversary by spreading awareness about organ donations

The News | Amy MacKinzie

Photo: Jennifer Gillis embraces her daughter Rebecca after her heart transplant surgery last year. SUBMITTED

PICTOU – About a year ago, Jennifer Gillis received a phone call that changed her daughter’s life. The voice on the other end of the line told her a heart had been found for her daughter, Rebecca.

Rebecca,now 15 years old, was diagnosed with complex congenital heart disease when she was eight-months-old. Jennifer was told that her daughter wouldn’t live in to her 20s and would not be able to have children unless she received a heart transplant, for which she didn’t become eligible until she was 13 when the veins between her heart and lungs had grown.

When she became eligible for a heart transplant, Jennifer and Rebecca packed up their belongings and moved from Pictou to the Ronald McDonald House in Toronto where they lived for almost a year waiting for a heart.

Rebecca has faced a number of challenges since receiving the new heart a year ago.
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Worcester grandfather's prayers are answered as donor is found for one-year-old with time running out

Worcester News

Photo: Tony Marcangelo has spoken of his relief after 'Little Angel' Carina's successful heart transplant

A DEVOTED grandad has spoken of his relief and elation after his ‘Little Angel’ was given a new heart and a second chance at life.

Tony Marcangelo had no choice but to look on helplessly as his one-year-old grandaughter Carina lay in a hospital bed for almost five months in desperate need of a transplant to replace her damaged heart.

The scarcity of donor organs and the severity of her condition left Carina in a desperate race against the clock, with no guarantees that a heart could be found in time.

So it came as an overwhelming relief to Mr Marcangelo when Carina was taken from London’s Royal Brompton Hospital, where she had been waiting since October, to Great Ormond Street for her life-saving operation.

Although her nine-hour surgery was a success there were several complications that saw Carina in a critical-state and her family were warned they may lose…

Shaping the Future of Medicine: Why You Should Care About Tissue Engineered Organs

Huffington Post-UK | Eleni Antoniadou, CEO Transplants Without Donors

A novel idea is incubating in biomedical labs: tissue engineered organs made from biomaterials and the patient's own stem cells. Such a concept may sound like science fiction when one considers the vast knowledge required to provide a functional substitute for one of nature's creations; however this immense scientific breakthrough is a reality. You might be thinking - are we one step closer to becoming an immortal species? Can we order our extra body parts and store them in banks in a case of emergency? Well, not just yet.

The scientific community is facing many limitations in developing artificial organs with complex functionalities such as the heart, lungs and kidneys but has made a remarkable progress in developing bio-artificial skin, nerves, arteries, noses, tracheas and many more. Yet again, limitations can be thought of as the mother of invention; it helps you create the impossible. In order to embrace…

Afghan Rugby Star Gives Of Himself To Save His Mother

Radio Free Europe | By Farangis Najibullah and Safiullah Stanikzai

Afghan sportsman Mustafa Sadat is no stranger to the spotlight.

At the age of 25 Sadat, a former kickboxing champion, is a star in the country's fledgling rugby league. But none of his sporting success has brought him the fame he has found since giving part of himself to save another's life.

Sadat's popularity among Afghans has skyrocketed since he risked his health and his career to donate part of his liver to his mother, a procedure that is not universally accepted in Islam.

On February 15 at a private clinic in New Delhi, mother and son underwent a total of 17 hours of surgery. The procedure was a success, and the two are well on the road to recovery.

Sadat says the decision to travel to India for the risky operation -- called living donor liver transplantation -- was an easy one.

"I immediately offered to become a liver donor to my mother. She has seen many hardships and I was ready to sacrifice my life…

Facebook post that led to transplant in spotlight

SF Gate | Brian Zimmerman
RICHMOND, Ind. (AP) — The story of how the social networking website Facebook afforded Richmond professor Jerry Wilde with a kidney transplant last year is going nationwide this spring.

Wilde and the two women who made it possible — Becky Melton, his donor, and Leah Hostalet, the creator of the "Find A Kidney for Jerry Facebook" page — are slated to appear on an upcoming episode of the "Today" show, the trio says.

Wilde, Melton and Hostalet also recently flew to New York City to be filmed for an upcoming episode of "The Lisa Oz Show."

"I am so proud that this opportunity will potentially save hundreds or thousands of lives," Hostalet told the Palladium-Item ( ) as he discussed the scheduled appearances on both shows. "The awareness that this will bring to the need for more kidney donors and organ donation is truly awesome."

Hostalet, one of Wilde's former students, reconnected with him …

Single mom survives organ transplant

The Telegraph | Dan Brannan

The Telegraph/JOHN BADMAN
Photo: Coena and Eric Royal
Coena Royal, who received a double organ transplant, was comforted during the ordeal by her son, Eric, who now is 15. Coena Royal has suffered from health issues much of her life.

Some say Coena Royal's first name means "angel" in the Hawaiian territories.

For her son, Eric, the single mom has literally been "an angel" in his mind through all the years. In 2012, Coena, 43, of Alton, was in dire straits, needing a pancreas and kidney transplant. If she hadn't received the transplant on May 2, 2012, she likely would not have survived.

She now calls May 2 her birthday and she is enormously thankful for beating the odds and staying alive.

"As I look back over my life, I have always had health issues and in most cases, my life was in jeopardy. As a child, going outside was a painful event. I had to wear long sleeves and pants all the time.

"The sun burned my skin, causing a thick…

Organs on demand: the future of transplants

PM Live | Phil Taylor
Researchers in the US have transplanted lab-grown kidneys into animals that are functional and produce urine, though not as efficiently as the real thing

Ridley Scott's 1982 dystopian thriller describes a world in which bioengineered human beings or 'replicants' can be made using genetic engineering and tissue culture techniques.
Widely regarded as a science fiction classic, Blade Runner arguably brought the concept of genetic engineering more firmly into the public eye than any work of fiction preceding it and sparked concerns about the ethical and moral implications of human control over biological life and enthusiasm over its potential in almost equal measure.

We can build you
More than 30 years after Blade Runner was first screened – complete with the memorable image (to me anyway!) of eyeballs being grown in a jar - the news that researchers in the US have successfully created and implanted a semi-functional kidney into an animal suggests medical scie…

Four-year-old kidney transplant recipient graduates preschool | Dustin Hodges
Cooper Hendrix's mother Gillian donated her kidney to her son a year and a half ago

BRANSON, Mo. - A local preschool graduate has a lot more to celebrate than just the end of the school year. Tim and Gillian Hendrix weren't sure if they would see their son Cooper graduate preschool.

Cooper was diagnosed with Chronic Kidney Disease before he was even born. He had a kidney transplant at the age of four that his mother Gillian donated to him.

Cooper was born at the Children's hospital in St. Louis. Tim and Gillian spent countless hours in the hospital with Cooper who already needed a new kidney by age four.

Thanks to the Children's Organ Transplant Association, or COTA, Cooper's medical expenses have been taken care of, and a year and a half later he's getting ready for kindergarten and his parents Tim and Gillian couldn't be more proud of him.

"It just amazes me how fast he's grown, the years have really flown by and it's fun t…

Patients with end-stage kidney disease have different expectations than their doctors

Eureka Alert | Kelly Lawman
Beth Israel Deaconess Medical Center research suggests that improved communication could help with end of life decision making.

BOSTON – In any given year, 400,000 Americans suffering from end-stage kidney disease will undergo dialysis, and as many as 20 to 25 percent of those dialysis patients will die, a statistic comparable to many types of cancer. But while cancer doctors may be more accustomed to talking with patients about the likely course of their disease, a new study from Beth Israel Deaconess Medical Center finds that doctors who treat patients with kidney failure are reluctant to discuss a difficult prognosis, and their patients are likely to have distorted expectations about their own probable outcomes.

The results of the study appear online, May 27th in JAMA Internal Medicine.

"Our study suggests that we may not be serving these patients as well as we could. These missed opportunities and misperceptions may actually be influencing patients'…

LH Health Department teams with Donate Life Connecticut

Lauralton Hall

During the week of May 20, students in Peg McGowan’s health classes welcomed Jamie Lazarus, a representative of Donate Life Connecticut, an organization dedicated to the purpose of public education and awareness for all Connecticut residents concerning the lifesaving benefits of organ and tissue donation and increasing the number of registered donors. Jamie, a 23 year old, has been diagnosed with kidney disease and is passionate about organ/tissue donation as her mother passed away while awaiting a donor last year. She is helping to educate Lauralton’s “soon-to-be" drivers about making educated decisions regarding organ & tissue donation, dispelling any myths and making sure the students talk with their families about this issue before making the decision to be…or not to be…a donor. The students are getting ready to get their driver’s licenses, so the timing for this is perfect.Continue reading
"You hav…

En Ecuador los trasplantes crecen 574% en cinco años

Pais-La Hora Noticias de Ecuador
Photo: GRATUIDAD. Los trasplantes en Ecuador son totalmente gratuitos.
La transformación de la sociedad ecuatoriana en torno al delicado tema de la donación está comenzando. Ciudadanos, médicos, técnicos e instituciones públicas y privadas aúnan esfuerzos para ubicar a Ecuador en el mapa de los trasplantes de Latinoamérica.
Así lo demuestra el reciente estudio publicado por el Instituto Nacional de Donación y Trasplante de Órganos, Tejidos y Células (Indot). En 2011 se produjeron 443 trasplantes de diversa índole. Mientras que en 2012 la cifra aumentó hasta 563, lo que implica un aumento del 27%. Los datos se acentúan más cuando se comprueba que en 2009 fueron 180 y en 2007, los trasplantes únicamente ascendían a 98. Eso quiere decir que en cinco años, estas operaciones han crecido en un 574%.

Son varios los factores que han disparado el número de trasplantes en el país: “Hasta hace un año no existía un banco propio de tejidos. Esto agiliza considerablemen…

Registered Organ Donors are ALL HEROES

LifeLine of Ohio

"You have the power to SAVE lives." 
To register as a donor in California: | 
Outside California: |

Lititz boy, 7, needs organ transplants, campaigns for donor sign-ups

WHTM | ABC 7 | By Sari Heidenreich

Tony Forte, 7, was born with Hirschsprung's disease, which has left him in need of three new organs.

Tony Forte carries a burden no 7-year-old should have to bear.

"It's going to take a child's life to save Tony's, it's gotta be the same match, the same size," said his mom Monica Forte.

Tony needs several new organs—a stomach, intestines and a liver.

In his Lititz backyard, Tony swung a wiffle ball bat, sending white dandelion seed into the air.

He's hesitant to say what his wish was, fearful that it won't come true.

"[It was] something that I always wanted," he said after much prodding. "[A] transplant, and I was lucky, that was the last dandelion."

Tony has Hirschsprung's disease, an intestinal disease that doesn't allow him to digest food properly.

Monica Forte said she knew within the first week of Tony's life that something wasn't right. After an admission to Hershey Medical C…

Doc: Face transplant patient making good progress

KOMO News | Associated Press

Photo: Doc: Face transplant patient making good progress
WARSAW, Poland (AP) - A surgeon who operated on Poland's first face transplant patient says the man is already practicing swallowing and making sounds.

The 33-year-old man received a skin-and-bone transplant on May 15, three weeks after losing his nose, upper jaw and cheeks in a workplace accident. Doctors say it was the world's fastest time frame for such an operation.

Dr. Maciej Grajek told The Associated Press on Monday the man is practicing to swallow liquids, has gotten out of bed a few times this weekend, communicates through writing and can make sounds when his tracheotomy tube - which helps him breathe - is closed for a moment. Grajek called that "very good progress."

The patient remains in isolation to guard against infections.
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"You have the power to SAVE lives."
To register as a donor in California:

OPTN Statement regarding lung transplantation and pediatric priority

Transplant Pro

Recent media coverage has focused public attention on the needs of lung transplant candidates, especially those who are young children. Nearly 1,700 people nationwide await a life-saving lung transplant, including 30 children age 10 or younger. Unfortunately, due to the shortage of organ donors, many people must wait months or years for a transplant opportunity and some patients die without a transplant. Another 117,000 people are listed for other types of organ transplants.

United Network for Organ Sharing (UNOS) manages the national Organ Procurement and Transplantation Network (OPTN) under federal contract. The OPTN is charged with developing national policy to distribute available organs among all waiting list candidates. OPTN allocation policy is applied consistently to allow all candidates an equitable opportunity to receive a transplant, recognizing that their individual medical needs and circumstances will vary.

Every transplant begins with someone’s selfless commi…

Parents of dying 10-year-old girl challenge organ donor rule blocking her from lung transplant
The parents of a 10-year-old girl dying of cystic fibrosis are fighting organ-donation rules that require adult lungs be offered first to adults, who are in less serious need than their daughter.

Sarah Murnaghan, who has only weeks to live, is eligible for adult donor lungs, but because of her age, she can only receive them after all adult candidates – regardless of the seriousness of their condition -- have the chance to receive them.

"We're starting to face the fact that, you know, she may not make it. And that we're sitting here with weeks," her mother, Janet Murnaghan, of Philadelphia, told Fox affiliate WTXF.

"I want to be famous and be on stage and sing and dance, and play my xylophone," the young girl told the station.

Pediatric lungs are rare, and the Murnaghan family thought their daughter would have a shot at a transplant when she made a list of adults. But they soon found a national organ rule standing in their way, according to the statio…

Sean and Noel Elliott: Joined By A Kidney and NBA History

San Antonio Spurs | Ken Rodriguez

The famous basketball-playing brother remembers anxiety. The anonymous stock clerk brother remembers awe.

In the thunderous, energy-charged Alamodome, Spurs fans were on their feet, chanting, cheering, screaming the name of an Elliott who'd barely made his high school basketball team. That Elliott looked up into a sea of faces and saw a sign, "We love you, Noel!" Then he saw another and another and the sight and the sound overwhelmed him.

"Wow," Noel thought as the Dome seemed to detonate around him. "This is crazy. Everybody would donate a kidney to their brother, wouldn't they?"

Well, no, not everybody. According to one estimate, 35 percent of potential donors don't donate because family members refuse to give consent. Recovery is painful. There's a risk of complications. Not everyone wants to surrender a major body part.

Then there was Noel, the older brother who was working as a stock clerk and gave a kidne…

Preventing Ethical Dilemmas: Understanding Islamic Health Care Practices

Medscape | Barbara B. Ott, PhD, RN, Jamal Al-Khadhuri, MSN, Suad Al-Junaibi, BSN

Those who practice the religion of Islam are called Muslims. There are 1.1 billion Muslims in the world and about 10-26% of them are Arab (Bill, 1994). The majority of Muslims worldwide are Asian or African. Islam is one of the world's largest religions and is the fastest growing religion in North America (National Perinatal Association, undated), with 7 million Muslims in the United States (Council on American-Islamic Relations [CAIR], 2002). This article will reflect how knowledge of Islamic cultural practices will influence the health care of children and families.

Islamic religious practices can reflect cultural and geographic differences as others do. Religious practices can be quite different between a South American Roman Catholic living in a rural area and an American Roman Catholic living in New York City even though the religious tenants are the same. A Jew living in Israel and a Jew living in…