Philly Mag | Adjua Fisher
Name: Emily Kramer-Golinkoff
Role: Founder of Emily’s Entourage, a nonprofit that raises money and awareness to help find a cure for Cystic Fibrosis.
Who or what motivates you to be healthy?
In 2012, a breakthrough drug to treat the root cause of Cystic Fibrosis was approved by the FDA for 4 percent of the CF population with one particular genetic mutation. For those it helped, the drug was an absolute life-saver — allowing people to run marathons, start families, and come off the transplant list. Unfortunately I am not part of the lucky 4 percent, but this drug showed what’s possible and lit a fire in my belly to make that dream become a reality for everyone with CF.
What "policy" would you institute to make Greater Philadelphia a healthier region?
Currently, there are more than 120,000 people waiting for a lifesaving transplant in the US. Sadly, many of them will not ever get their second chance at life due to a major national organ shortage. Continue reading