Saturday, May 28, 2016

Baby with rare liver ailment desperately needs lifesaving transplant

Parents Barry and Renee have moved from Perth to Sydney while Mia’s fight goes on. Picture: Sam Ruttyn
HERALD SUN | Jane Hansen

YOU hold the life of baby Mia in your hands. She is going to die in the next few weeks without your help.

Unless she gets a liver transplant, the five-month-old baby will not make it to six months.

Mia Evans was born with biliary atresia, a rare disease of the liver that destroys the bile ducts. The disease means that the bile is unable to drain and as a result it builds up in the liver and causes significant damage, leading to death.

The Perth baby was flown to the Children’s Hospital at Westmead and listed for an urgent transplant three weeks ago.

As each day passes, the more urgent her need for the lifesaving operation ­becomes. She is at the top of the list but the waiting game is torture for Mia’s parents Barry and Renee Evans, who have moved over from Perth with their two-year-old son to care for Mia. Continue reading

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