Utah family who lost daughter awaiting heart transplant becomes advocates for organ donation

FOX 13 | Hope Woodside

UTAH – A Utah family became advocates for organ donation after the death of their 8-year-old daughter, and they are sharing their story in this week's edition of Gift of Hope.

James and Valeria Frandsen’s daughter, Vittoria, was born with Marfan syndrome, which is a connective tissue disorder.

At the age of eight she needed surgery to replace her aorta with a synthetic implant.

“In surgery there were complications, her heart was damaged, and she lost the use of half of her heart,” James Frandsen said.

After a month, a heart transplant didn’t happen, and she passed away in the ICU.

“She was a very stubborn, awesome girl,” Valeria Frandsen said. “She was beautiful, she was very generous, very talented. She loved drawing, she loved watching ‘Untold Stories of the ER’ with her dad because she spent so much time in the hospital... She loved her little brother, just for the nine months she was able to be with him.” Continue reading
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