Will push priorities on early detection, living organ donation, and more funding to battle kidney diseaseNEW YORK, March 2, 2017 /PRNewswire-USNewswire/ -- Nearly 150 advocates from six kidney organizations around the country will converge on Capitol Hill, March 6-7, 2017, to meet personally with lawmakers and put a human face on kidney disease during the 4th Annual Kidney Patient Summit organized and led by the National Kidney Foundation (NKF). This largest event to date brings together, in a unified voice, NKF's Kidney Advocacy Committee members and advocates from Alport Syndrome Foundation, Polycystic Kidney Disease Foundation, NephCure Kidney International, Home Dialyzors United and American Association of Kidney Patients.
Among the attendees, 70 advocates selected by NKF to represent nearly all 50 states – learn who they are– will share their stories and urge Members of Congress to support a pilot program which seeks to improve early detection, care and outcomes for people with chronic kidney disease (CKD); support H.R. 1270, The Living Donor Protection Act 2017, which was just introduced by Representatives Jerrold Nadler (D-NY) and Jaime Herrera Beutler (R-WA) and would prohibit discrimination in life, disability or long-term care insurance for living organ donors and add living donation to the Family Medical Leave Act; and support funding for CKD programs run by the Centers for Disease Control and Prevention, National Institute of Diabetes and Digestive and Kidney Diseases, and Health Resources and Services Administration.
At the Summit, individuals who have kidney disease, dialysis patients, living donors, family members and caregivers will be united by the affirmation and hashtag "My Kidneys, My Life" (#MyKidneysMyLife) to underscore the direct relationship between having at least one healthy kidney and living at all. Continue reading