Transplant hope crashes, leaving Will still waiting for a heart


Wednesday was a day of celebration and relief for Bettendorf's Chris and Meghan Kohn. They believed their prayers and the prayers of friends and family had finally been answered.

On Thursday, hopes of a new heart for their ailing 6-year-old son, Will, were dashed.

"Heart was declined,'' Chris "Moose" Kohn said in a text, referring to the harvested donor heart they were told would be the one to replace their son's worn-out organ.

The heart that could save Will's life had to be harvested from a child weighing between 25 and 45 pounds, according to donor specifics shared with the Kohns months ago. Those specifics were met.

But before a team of surgeons at the University of Iowa Stead Family Children's Hospital was scheduled to replace Will Kohn's worn-out heart Thursday, tests showed the harvested donor heart was not an acceptable organ.

Heartache has again surrounded the Kohns.

Young Will, a brave lad, suffers from hypoplastic left heart syndrome, a heart defect that affects four out of every 10,000 babies. Those who have it are born with an underdeveloped and nonfunctioning left ventricle. In non-medical terms, his heart has a leaking left rear tire that cannot keep pace with the rest of the functions of the heart. Continue reading

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