Before you act on health care, Congress, consider children like my Wendy

STAT NEWS | Darcy Daniels
Dear senators and representatives of the 115th United States Congress,

The media tell me that you will once again be taking up legislation to repeal and replace Obamacare. If you do this, please make sure that whatever new law you come up with keeps three key features of the Affordable Care Act that I need to keep my daughter, Wendy, alive.

Wendy was born healthy and perfect. At the age of 3, she was infected by bacteria called Escherichia coli. Most of these bacteria are harmless, but some types can cause serious infections. In Wendy’s case, the infection turned into something called hemolytic uremic syndrome that caused irreversible damage to her body. Her kidneys failed, requiring an emergency kidney transplant. Her damaged pancreas could no longer make insulin, leaving her with type 1 diabetes. She needed to have parts of her intestines removed, and still suffers from seizures.

Wendy spent more than 200 days as an inpatient at Massachusetts General Hospital. She was there for so long that she wrote a story about living at Mass. General that was turned into an animated video. It is shown to sick and scared kids when they come into the hospital’s emergency department. Continue reading

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