Seymour mother gives big gift to daughter with rare disorder

WBAY |  Nolan Blair

SEYMOUR, Wis. (WBAY) Ellie Reed spent Friday afternoon smiling, playing, and jumping. But it hasn't always been this way for the three-year-old.

Back when she was in her mother’s womb, doctors noticed something wrong.

"Okay now the bladder, you can tell it's outside of the body and it looks like intestines are going to be outside of the body," Ellie’s mom, Ashley Reed, recalls.

Doctors were concerned about her surviving until birth.

But Ellie did. She was born with a rare birth defect called cloacal exstrophy.

Her abdominal organs were outside of her body when she was born.

She was immediately rushed to the Children’s Hospital in Milwaukee with her dad.

Two days later, he called his wife Ashley with news no parent wants to hear.

"I think you really, if you can get down here, I really want you to see her because she's really awesome, she's really fun to hold, but they don't think she's going to make it much longer," Ashley remembered. Continue reading 


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