Saving Noah: A Sacramento family, their infant son and a rare, often fatal disease

THE SACRAMENTO BEE | Marcos Breton
Reymon and Alyssa Hernandez thought their infant son Noah was suffering from jaundice. Instead, he was diagnosed with a liver disease called biliary atresia. Jose Luis Villegas Jose Luis Villegas


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A 6-month-old baby shouldn’t be fighting for his life. He shouldn’t have to be hurriedly baptized in a hospital room in advance of an emergency liver transplant. His young parents shouldn’t be stricken by grief and guilt during what should be a glorious period in their lives.

But this is where the Hernandez family finds itself. They currently are keeping vigil more than 100 miles away from their home in Sacramento, at the Lucile Packard Children’s Hospital Stanford in Palo Alto, praying for their son to survive an extremely rare disease that can be fatal unless luck and fate intervene.

The Hernandezes soon will find out if good fortune is on their side. They’ve had their hopes raised and dashed so many times they’ve lost count in the two months since baby Noah was diagnosed with biliary atresia. It’s a condition that occurs in infants when bile flowing to the gallbladder is blocked and accumulates in the liver, eventually causing liver failure. Continue reading

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ead more here: http://www.sacbee.com/news/local/news-columns-blogs/marcos-breton/article170515007.html#storylink=cpy

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